Attachment_B_Submiss.pdf

2008 NPCR-CSS

Submission

Specifications

Submission Specifications-i

November 2007

NPCR-CSS 2008 Data Submission

2008 NPCR-CSS Submission Specifications

Attachments

Attachment 1 Programs on the NPCR-CSS Utilities Web Site

Attachment 2 Data Items by Diagnosis Year

Attachment 3 2008 Data Edits

Attachment 4 2008 NPCR-CSS Checklist

Attachment 5 File Transfer Instructions

Attachment 6 Overview of Data Security

Attachment 7 2008 NPCR-CSS Data Submission Form

Attachment 8 2008 NPCR-CSS Data Items Transmitted Form

Attachment 9 2008 Duplicate Protocol Results

Attachment 10 2008 NPCR-CSS Dataset Participation Agreement

Attachment 11 2008 Registry Follow-Up Sources

Attachment 12 Frequently Asked Questions About the NPCR-CSS

Data Submission

Table of Contents

Submission Specifications-1

The purpose of this document and attachments is to outline reporting requirements for the

January 2008 data submission to the National Program of Cancer Registries Cancer Surveillance

System (NPCR-CSS).

For your convenience, a number of programs and documents relating to the submission of your data have been placed on the NPCR-CSS utilities web site (https://www.npcrcss.org/utilities/).

For a description of these programs and documents, see Attachment 1, Programs on the NPCR-

CSS Utilities Web Site.

1. Report data using ICD–O–3 codes: Convert your pre-2001 ICD–O–2 morphology data to the corresponding ICD–O–3 codes. Conversion programs are available at http://seer.cancer.gov/tools/conversion/.

2. Diagnosis Years: Include cases diagnosed in all residents of your catchment area beginning with your NPCR reference year (e.g., 1995) through December 31, 2006. For guidance on residency, refer to page 15 of NAACCR Standards for Cancer Registries, Volume II, Version 11 (November 2004).

3. Reportable Diagnoses: All histologies with a behavior code of ―2‖ or ―3‖ (or in some cases behavior "0", see 3h or behavior "1", see tables under 3g below for details.) in the

International Classification of Diseases for Oncology, Third Edition (ICD–O–3) are reportable with the following exceptions or restrictions:

1, 2, 3, 4

a. Exclude neoplasms of the skin (C44.0–C44.9) with the following histologies

UNLESS they occur at the mucoepidermoid sites [vagina (C52.9), clitoris (C51.2), vulva (C51.0-51.9), prepuce (C60.0), penis (C60.9) , and scrotum (C63.2)]:

8000–8005 Neoplasms, malignant, NOS

8010–8046 Epithelial carcinomas

8050–8084 Papillary and squamous cell carcinomas

8090–8110 Basal cell carcinomas

b. Exclude carcinoma in situ of the cervix (C53.0-C53.9, any morphology and /2) after

January 1, 1996.

c. Exclude prostate intraepithelial neoplasia, grade III (PIN III) (C61.9. 8148/2) after

January 1, 2001.

d. Exclude squamous intraepithelial neoplasia, grade III (8077/2) of the following sites:

2008 NPCR-CSS

Submission Specifications https://www.npcrcss.org/utilities/

Submission Specifications-2

NPCR-CSS 2008 Data Submission anus (C21, AIN III), cervix (C53, CIN III), vagina (C52.9, VAIN III), and vulvar

(C51, VIN III).

e. If a pathologist reports a case as invasive (/3) and the histology is usually associated with a benign (/0) or borderline (/1) behavior code, the case is reportable. Include any appropriate over-ride codes.

f. Include all pilocytic astrocytoma. If necessary, convert behavior code to ―3‖ before submitting cases.

g. Include all cases as reportable in the year they were diagnosed. For example, those cases reportable in ICD–O–2 but not ICD–O–3 would be included for diagnosis years

1995-2000 only. However, as noted above, all ICD–O–2 codes should be converted to the corresponding ICD–O–3 codes prior to submission.

The following histologies should be reported for all cases diagnosed prior to January

1, 2001. These histologies are generally coded to ovary (C56.9), but are not limited to this primary site.

Descriptive terms and topography codes ICD–O–3 ICD–O–2

Serous cystadenoma, borderline malignancy (C56.9) 8442/1 8442/3

Serous tumor, NOS, of low malignant potential (C56.9) 8442/1 8442/3

Papillary cystadenoma, borderline malignancy (C56.9) 8451/1 8451/3

Serous papillary cystic tumor of borderline malignancy (C56.9) 8462/1 8462/3

Papillary serous cystadenoma, borderline malignancy (C56.9) 8462/1 8462/3

Papillary serous tumor of low malignant potential (C56.9) 8462/1 8462/3

Atypical proliferative papillary serous tumor (C56.9) 8462/1 8462/3

Mucinous cystic tumor of borderline malignancy (C56.9) 8472/1 8472/3

Mucinous cystadenoma, borderline malignancy (C56.9) 8472/1 8472/3

Pseudomucinous cystadenoma, borderline malignancy (C56.9) 8472/1 8472/3

Mucinous tumor, NOS, of low malignant potential (C56.9) 8472/1 8472/3

Papillary mucinous cystadenoma, borderline malignancy

(C56.9)

8473/1 8473/3

Papillary pseudomucinous cystadenoma, borderline malignancy

(C56.9)

8473/1 8473/3

Papillary mucinous tumor of low malignant potential (C56.9) 8473/1 8473/3

h. Beginning January 1, 2004, all nonmalignant primary intracranial and central nervous system tumors (see following table) with a benign (/0) or borderline (/1) behavior code are reportable, and are to be included in the data submission.

1, 4,5

However, exclude benign and borderline tumors of the cranial bones (C41.0). For further guidance, please refer to the following table.

Submission Specifications-3

NPCR-CSS 2008 Data Submission

Required Sites for Benign and Borderline Primary Intracranial and

Central Nervous System Tumors

General Term Specific Sites ICD-O-3 Topography

Code

Meninges Cerebral meninges C70.0

Spinal meninges C70.1

Meninges, NOS C70.9

Brain Cerebrum C71.0

Frontal lobe C71.1

Temporal lobe C71.2

Parietal lobe C71.3

Occipital lobe C71.4

Ventricle, NOS C71.5

Cerebellum, NOS C71.6

Brain stem C71.7

Overlapping lesion of brain C71.8

Brain, NOS C71.9

Spinal cord, cranial nerves, and other parts of the central nervous system

Spinal cord C72.0

Cauda equine C72.1

Olfactory nerve C72.2

Optic nerve C72.3

Acoustic nerve C72.4

Cranial nerve, NOS C72.5

Overlapping lesion of brain and central nervous system

C72.8

Nervous system, NOS C72.9

Pituitary, craniopharyngeal duct, and pineal gland

Pituitary gland C75.1

Craniopharyngeal duct C75.2

Pineal gland C75.3

4. Data Items: Include all data items listed in Attachment 2, Data Items by Diagnosis

Year. Use definitions and codes from Chapters IX and X of NAACCR Standards for

Cancer Registries, Volume II, Version 11 (November 2004).

a. Data items new to this submission or moved to ―core‖ from ―advanced‖ surveillance activities are noted in bold.

Submission Specifications-4

NPCR-CSS 2008 Data Submission

b. CDC no longer requires the reporting of Primary Payer at Diagnosis [NAACCR data item # 630].

c. Unless otherwise noted, leave missing or uncollected data items blank.

d. If state law prohibits the release of all or some county codes, please recode the county code to ―000‖ for relevant case records. The NPCR County at Dx edit will accept code ―000‖ as a valid code. Use code ―999‖ for unknown or missing county information. Do not leave this variable blank. Please note that the use of code ―998‖

(out of state resident) will generate an edit error as these cases are not reportable to

NPCR.

e. For cases diagnosed beginning January 1, 2006 and after, please include Follow-Up

Source Central [NAACCR data item # 1791].

5. For cases diagnosed beginning January 1, 2004, report the derived Summary Stage 2000

[NAACCR data item #3020] using the Collaborative Staging (CS) Algorithm version

01.03.00. It is expected that Version 01.04.00 will be released by AJCC sometime in

October 2007. However, the edits for collaborative staging data in the 2008 NPCR-CSS edits metafile were developed based upon Version 01.03.00. In order to avoid edit errors due to differences in CS algorithm versions, please use CS version 01.03.00.

6. Edits: Attachment 3, 2008 Data Edits, contains a list of single field, inter-field, and inter-record edits that will be used to evaluate your data submission.

a. Edits new to this submission or moved from ―advanced‖ to ―core‖ surveillance activities are noted in bold.

b. ―Core‖ edits will be used to assess program standards (i.e., percentage of records passing edits; see page 7).

c. ―Advanced‖ edits are to assist you in improving the overall quality of NPCR-CSS data and are to be run by all registries. Registries are strongly encouraged to resolve

―advanced‖ edit errors because these edits may become ―core‖ edits in future submissions.

d. There are both ―core‖ and ―advanced‖ inter-record edits sets contained within the

NPCR-CSS metafile. These edits should be run separately using GenEdits Plus.

7. Report Linkage and Algorithm Results:

i. Prior to performing the IHS Linkage and running the NAACCR Hispanic and

Asian/Pacific Islander Identification Algorithm (NHAPIIA), it is advised that you review your data carefully to make sure that variables used in the linkages

(i.e., SSN, birth date, names, etc.) are complete and valid.

ii. If you have performed the Indian Health Service (IHS) Linkage, report the results using the NAACCR data item number 192 and column number 232 in

NAACCR Standards for Cancer Registries, Volume II, Version 11. The codes are as follows:

code 0—did not match IHS database code 1—did match IHS database.

Submission Specifications-5

NPCR-CSS 2008 Data Submission

Leave the variable blank if the case record was not sent for linkage with IHS records.

iii. Next, run the NHAPIIA algorithm and place the output for NHIA in column

191 and the output for NAPIIA in column 236-237.

iv. To download a copy of the combined SAS program for NHAPIIA algorithm and its associated files, please visit the NAACCR Web site under the link

―Data Analysis Tools‖:

http://www.naaccr.org/index.asp?Col_SectionKey=11&Col_ContentID=463

Please contact Joe Rogers at (770) 488-4701 for assistance in obtaining a SAS license to run the SAS algorithm.

8. Identification of Duplicate Records Form: Please assess duplicate records in your database using the NAACCR Protocol for Assessing Duplicate Cases (NAACCR Call for

Data 2008). If you have completed this protocol for your NAACCR Call for Data 2008 submission, it is not necessary to rerun the protocol.

9. Record Format: Create a file in a NAACCR Record Layout Version 11.1 that includes only the data items listed in Attachment 2. Do not include data from the Patient-

Confidential Section portion of the record. A file extraction program is available on the

NPCR-CSS utilities Web site (https://www.npcrcss.org/utilities/).

a. Submissions that include data in the Patient-Confidential Section will not be accepted, and the registry will be notified.

b. For those registries that have data files in a NAACCR version lower than Version 11 format, you may use a free-standing Windows program that will convert files into other NAACCR versions. Input files may contain NAACCR version 6, 7, 8, 9, 10 or

11. Converted output files can be version 7, 8, 9, 10.2, or 11. You can download a copy of this conversion program from the following web site:

http://www.cdc.gov/cancer/npcr/tools/registryplus/up_download.htm

10. Submission Due Date: Data can be submitted during the month of January 2008

(through January 31), holidays excluded. Submission hours are from 8 a.m. EST to 6 p.m.

EST, Monday through Friday. If you need extended hours, contact the NPCR-CSS Help

Line at (301-572-0502), and Macro International staff will try to accommodate your needs.

11. Preparing and Transmitting Data: Please check the file prior to submission to ensure that all data years (including 12-month data) and all required data items are included.

An NPCR-CSS Checklist (see Attachment 4) is provided to help you prepare your data submission.

a. Data transmitted to NPCR-CSS are encrypted during transmission. The encryption is accomplished via Secure Sockets Layer (SSL) strong encryption, the same level of protection used by e-commerce sites to protect financial transactions.

b. Do not submit the 2008 NAACCR Call for Data file. The case definitions and diagnosis years are not the same for the NPCR-CSS and NAACCR submissions.

http://www.naaccr.org/index.asp?Col_SectionKey=11&Col_ContentID=463

Submission Specifications-6

12. File Transfer Instructions: Refer to the File Transfer Instructions (see Attachment 5).

Macro International staff will contact you in early December with your user ID and password for accessing your state folder on the NPCR-CSS document server.

13. Data Security: In accordance with the requirements of the 308(d) Assurance of

Confidentiality, Macro International has developed and implemented the NPCR-CSS

Security Plan. The Overview of the Security Plan is provided (see Attachment 6).

14. Transmitting Forms: The following forms are in electronic format at the NPCR-CSS document server (https://www.npcrcss.org/) log-in page. Choose the ―Submit Forms‖ option before you log in:

Attachment 7 2008 NPCR-CSS Data Submission Form

Attachment 8 2008 Data Items Transmitted Form

Attachment 9 2008 Duplicate Protocol Results

Attachment 10 2008 NPCR-CSS Dataset Participation Agreement

Attachment 11 2008 Registry Follow-Up Sources

These forms are available through a secure Web interface, may be completed, and submitted on-line. Alternatively, the forms may be printed, completed and submitted:

1) to your state folder on the NPCR-CSS document server, or

2) via fax [(301) 961-8537] with attention to Dr. Kevin Zhang, or

3) via postal mail to

Dr. Kevin Zhang, Cancer Surveillance Project Director

Macro International

7315 Wisconsin Avenue, Suite 400W

Bethesda, MD 20814

14. Questions about Your Submission: Refer to Frequently Asked Questions about the

NPCR-CSS Data Submission (see Attachment 12) or call the NPCR Help Line (301)

572-0502).

Topic Point of Contact

Technical questions related to data submission (including user ID, password, or accessing the NPCR-CSS

Web site)

NPCR Help Line

(301) 572-0502

Completion of Attachments 7–10 (see

#13 above)

Hannah Weir: (770) 488-3006

Reda Wilson: (770) 488-3245

SAS license to run NHAPIIA algorithm Joe Rogers (770) 488-4701 https://www.npcrcss.org/)

Submission Specifications-7

NPCR-CSS 2008 Data Submission

15. Data Evaluation: Data will be evaluated according to the following NPCR standards, and results will be reported in the NPCR-CSS Data Evaluation Reports, which will be made available in May 2008.

Criteria NPCR

12-Month

Standard

NPCR

24-Month

Standard

USCS

a

Publication

Criteria

U.S.

County

Public-Use

File b

Measurement

Error

Percentage

Completeness of Case

Ascertainment c

>=90% >=95% >=90% >=90% -1.0%

Percentage

Missing or

Unknown

Age NA <=2% <=3% <=3% -0.4%

Sex NA <=2% <=3% <=3% -0.4%

Race NA <=3% <=5% <=5% -0.4%

County NA <=2% NA <=3% -0.4%

Percentage Death

Certificate Only

(DCO)

d

NA <=3% <=5% <=5% -0.4%

Unresolved

Duplicates (per

1,000) e

NA <=1 NA NA -0.4

Percentage Passing

Core Edits f

>=97% >=99% >=97% >=97% NA

Notes a United States Cancer Statistics b See NPCR-CSS Data Release Policy, December 2007.

c Case completeness estimates will be calculated using the NAACCR method and adjusted for duplicates if the duplicate rate was derived from a sample of the incidence file.

Adjustment will not occur if duplicates were identified and corrected on the entire database.

d The registry must perform death clearance.

e Based on the results of NAACCR duplicate protocol.

f Only ―core‖ single field, inter-field, and inter-record edits will be used to evaluate data.

NA Not applicable

Submission Specifications-8

References

1.

Funding Opportunity Announcement #DP07-703, National Cancer Prevention and

Control Program, CDC, 2007.

2.

Program Announcement #2060, National Cancer Prevention and Control Program, CDC, 1992.

3.

Public Law 102-515. NPCR Home Page: http://www.cdc.gov/cancer/npcr/ npcrpdfs/publaw.pdf.

4.

SEER (Surveillance, Epidemiology, and End Results) Program, 2004. The SEER

Program Coding Manual, 2004 Fourth Edition. Bethesda, MD: U.S. Department of

Health and Human Services, National Institutes of Health, National Cancer Institute. NIH

Pub. No. 04-5561. January 2004, pages 1–5.

5.

Hultstrom D, editor. Standards for Cancer Registries Volume II: Data Standards and

Data Dictionary Version 11, Tenth Edition. Springfield, IL: North American Association of Central Cancer Registries, November 2004, pages 19-23.

6.

Hultstrom D, editor. Standards for Cancer Registries Volume II: Data Standards and

Data Dictionary Version 11, Tenth Edition. Springfield, IL: North American Association of Central Cancer Registries, November 2004, pages 65–322.

http://www.cdc.gov/cancer/npcr/npcrpdfs/publaw.pdf http://www.cdc.gov/cancer/npcr/npcrpdfs/publaw.pdf

Attachment 1-1

The following programs have been or will be posted to the NPCR-CSS utilities Web site

(https://www.npcrcss.org/utilities/). For assistance with these utility programs, please call Macro

International at (301) 572-0502.

1. ICD-O-2 to ICD-O-3 Conversion Program—(http://seer.cancer.gov/tools/conversion/).

2. NAACCR Hispanic and Asian/Pacific Islander Identification Algorithm

(NHAPIIA)—This SAS program combines NAACCR Hispanic Identification Algorithm, version 2 (NHIA v2) and the NAACCR Asian Pacific Islander Identification Algorithm, version 1 (NAPIIA). All NPCR registries are required to run this combined SAS program or equivalent in the NPCR-CSS 2008 data submission. The output for NHIA should be placed in column 231 and the output for NAPIIA should be put in columns 236-237; the columns refer to the NAACCR Record Layout Version 11.1. To download a copy of the combined SAS program and its associated files, please visit the NAACCR Web site under the link “Data

Analysis Tools”:

http://www.naaccr.org/index.asp?Col_SectionKey=11&Col_ContentID=463

Please contact Joseph Rogers at (770) 488-4701 for assistance in obtaining a SAS license to run the SAS program.

3. GenEDITS Plus with the NPCR 2008 Core and Advanced Edits Metafile—This is an edits program that contains the edits metafile to run the NPCR 2008 core and advanced single field and inter-field edits on NAACCR record layout Version 11.1. The program produces summary and detailed reports of core and advanced edit errors.

4. NPCR-CSS 2008 Edits Metafile—For those registries that prefer to use another edits program, this download contains the runtime metafile for the NPCR 2008 core and advanced single field and inter-field edits.

5. Inter-Record Edits Standalone Program 2008 -- This program runs SEER inter-record edits on NAACCR Record Layout Version 11.1, containing both ICD-O-2 and ICD-O-3 coded cases. The program produces summary and detailed reports of inter-record errors. Once you execute this program, a help file is available that describes how to use the program. The

Inter-Records Edits program should be run after the NPCR 2008 core and advanced edits have been run and errors have been corrected.

6. Data Extraction Utility 2008 -- This is an executable file that integrates three different extraction applications for different data extraction needs: National Death Index (NDI) linkage, Attachment 1

Programs on the NPCR-CSS Utilities Web Site https://www.npcrcss.org/utilities/ http://seer.cancer.gov/tools/conversion/ http://www.naaccr.org/index.asp?Col_SectionKey=11&Col_ContentID=463

Attachment 1-2

NPCR-CSS 2008 Data Submission

Indian Health Service (IHS) linkage, and National Program of Cancer Registries – Cancer

Surveillance System (NPCR-CSS) Call for Data. By clicking the tab labeled “CSS” the user will be prompted to the application to extract data for NPCR-CSS Call for Data submission. This application will read NAACCR record layout Version 11.1 and write a new

ASCII text file in NAACCR record layout Version 11.1 that contains only those data items requested for the 2008 submission. Once you execute the program and click the “CSS” tab, a help file that describes how to use the program is available by clicking “Help” near the bottom of the application interface.

7. Northcon11 Record Conversion Program -- For those registries that have data file in

NAACCR version lower than v11 format, you may use a free-standing Windows program that will convert files of cancer registry records in NAACCR data formats. Input files may contain

NAACCR version 6, 7, 8, 9, 10, or 11. Converted output files can be version 7, 8, 9, 10.2, or

11. You can download a copy of this conversion program from the following web site:

Required Status

1995–2006

Record Type [10] Y

Patient ID Number [20] (unique) Y

Registry ID [40] Y

NAACCR Record Version [50] Y

Address at Dx—State [80] Y

County at Dx [90]

Y

Address at Dx—Postal Code [100] Y

Census Tract 1970/80/90 [110] Y

Census Cod Sys 1970/80/90 [120] Y

Census Tract 2000 [130]

Y

Census Tr Cert 1970/80/90 [364] Y

Census Tr Certainty 2000 [365]

Y

Race 1 [160] Y

Race 2 [161] Y

Race 3 [162] Y

Race 4 [163] Y

Race 5 [164] Y

Spanish/Hispanic Origin [190] Y

NHIA Derived Hisp Origin [191]

Y

IHS Link [192]

Y

NAPIIA [use columns 236-237]

Y

Computed Ethnicity [200] As available

Computed Ethnicity Source [210] As available

Sex [220] Y

Age at Diagnosis [230] Y

Birth Date [240] Y

Birthplace [250] Y

Attachment 2

Data Items by Diagnosis Year

Record ID and Demographic Section—(Name and [Number])

Attachment 2-1

1995–2005

Sequence Number—Central [380] Y

Date of Diagnosis [390] Y

Primary Site [400] Y

Laterality [410] Y

Grade [440] Y

Site Coding Sys—Current [450] Y

Morph Coding Sys—Current [470] Y

Diagnostic Confirmation [490] Y

Type of Reporting Source [500] Y

Histologic Type ICD-O-3 [522]

Y

Behavior Code ICD-O-3 [523]

Y

ICD-O-3 Conversion Flag [2116]

Y

Required Status

1995–2006

Date of Initial Rx—SEER [1260]

As available

Date of 1st Crs Rx—COC [1270]

As available

Rx Summ—Surg Primary Site [1290]

As available

Rx Summ—Scope Reg LN Sur [1292]

As available

Rx Summ—Surg Oth Reg/Dis [1294]

As available

Reason for No Surgery [1340]

As available

RX Summ-Radiation [1360]

As available

RX Summ--Surg/Rad Seq [1380]

As available

Rx Summ—Chemo [1390]

As available

Rx Summ—Horm [1400]

As available

Rx Summ—BRM [1410]

As available

Rx Summ—Other [1420]

As available

Rad—Regional Rx Modality [1570]

As available

Rx Summ—Transplant/Endocr [3250]

As available

Cancer Identification Section—(Name and [Number])

Treatment First Course Section—(Name and [Number])

Attachment 2-2

1995–2006

SEER Summary Stage 2000 [759]

Y

SEER Summary Stage 1977 [760]

Y

CS Tumor Size [2800]

As available

CS Extension [2810]

Y

CS Lymph Nodes [2830]

Y

CS Mets at DX [2850]

Y

CS Site-Specific Factor 1 for C384 [2880]

Y

CS Site-Specific Factor 3 for C619 [2900]

Y

CS Version 1st [2935]

Y

CS Version Latest [2936]

Y

Derived SS2000 [3020]

Y

Derived SS2000-Flag [3050]

Y

Required Status

1995–2006

Date of Last Contact [1750] Y

Vital Status [1760] Y

Follow-Up Source [1790]

As available

Follow-Up Source Central [1791]

Y

Cause of Death [1910] Y

ICD Revision Number [1920] Y

Required Status

1995–2006

Over-Ride Age/Site/Morph [1990] Y

Over-Ride SeqNo/DxConf [2000] Y

Over-Ride Site/Lat/Sequence Number [2010] Y

Over-Ride Surg/Dxconf [2020] Y

Over-Ride Site/Type [2030] Y

Over-Ride Histology [2040] Y

Over-Ride Report Source [2050] Y

Over-Ride Ill-define Site [2060] Y

Over-Ride Leuk, Lymphoma [2070] Y

Over-Ride Site/Behavior [2071] Y

Over-Ride Site/Lat/Morph [2074] Y

Follow-Up/Recurrence/Death Section—(Name and [Number])

Over-Rides/Conversion/System Admin. Section—(Name and [Number])

Stage/Prognostic Factors Section—(Name and [Number])

Attachment 2-3

The data item names and numbers are those used in NAACCR Volume II, Version 11.1.

For reportable cases diagnosed 2006 and later, Follow-Up Source Central [1791] is required. For cases diagnosed prior to 2006, Follow-Up Source [1790] should be submitted as available.

Report the results of cases submitted for IHS linkage using codes 0 or 1. See the Submission

Specifications document for further details.

For reportable cases diagnosed in 2004 and later, code using Collaborative Staging Manual and Coding

Instructions.

Use of this field is recommended for reportable cases diagnosed in 1998 and later and required for reportable cases diagnosed in 2003 and later.

Report the results from the NHAPIIA SAS Program. See the Submission Specifications document and/or

Atachment 1 for more details. Please note that code 9, unknown, is not a valid code for NHIA data item, and code 96, Asian NOS, is not a valid code for NAPIIA data item.

Code “999” for unknown and missing. Do not include cases with code “998” in the submission file. If state law precludes the registry from identifying specific counties on a file of individual records, the registry may recode all valid county codes to “000.”

For reportable cases diagnosed 2004 and later, this item is the flag to indicate whether the derived SEER

Summary Stage 2000 was derived from the CS algorithm.

Shaded items denote variables that are considered advanced surveillance data. Non-shaded variables denote core surveillance data.

NOTES:

Data items new to this submission or having a status change are noted in bold.

Status key: Y = Yes

For reportable cases diagnosed in 2000 or before, code using SEER Summary Staging Guide 1977. For reportable cases diagnosed in 2001 and later, code using SEER Summary Staging Manual 2000.

For reportable cases diagnosed in 2001 or later, data should be coded using the ICD-O-3 manual, and data should be submitted with these original ICD-O-3 values. For reportable cases diagnosed before 2001, data should be coded using the ICD-O-2 manual. Prior to submission, convert these ICD-O-2 codes to ICD-O-3 codes and use the ICD-O-3 Conversion Flag [2116] to document the conversion.

For reportable cases diagnosed in 2003 or later, as available.

Submit either the SEER or COC field; for reportable cases diagnosed in 2003 or later, as available.

Attachment 2-4

Single Field Edits Source of Standard

Addr at Dx—State (NAACCR)

Age at Diagnosis (SEER AGEDX)

Behavior ICD-O-3 Conversion (NAACCR)

Birth Date (NAACCR DATEEDIT)

Birthplace (COC)

County at DX

1 (NPCR)

CS Extension (CS)

CS Lymph Nodes (CS)

CS Mets at DX (CS)

CS Site-Specific Factor 1 (CS)

CS Site-Specific Factor 3 (CS)

CS Tumor Size (CS)

CS Version 1st (CS)

CS Version Latest (CS)

Date of Diagnosis (NAACCR DATEEDIT)

Derived SS2000 (CS)

Derived SS2000-Flag (CS)

Diagnostic Confirmation (SEER DXCONF)

Grade (COC)

Histologic Type ICDO3 Conversion (NAACCR)

ICD-O-3 Conversion Flag (NAACCR)

IHS Link (NPCR)

Laterality (SEER LATERAL)

Morph Coding Sys—Current (NAACCR)

NAACCR Record Version (NAACCR)

NAPIIA (NPCR Subm)

NHIA Derived Hisp Origin (NAACCR)

Patient ID Number (SEER CASENUM)

Primary Site (SEER SITE)

Race 1 (SEER RACE)

Race 2 (NAACCR)

Race 3 (NAACCR)

Race 4 (NAACCR)

Race 5 (NAACCR)

Record Type (NAACCR)

Registry ID (NAACCR)

Sequence Number—Central (SEER SEQUENC)

Sex (SEER SEX)

Site Coding Sys—Current (NAACCR)

Attachment 3

2008 Data Edits

CORE SURVEILLANCE EDITS

Attachment 3-1

Spanish/Hispanic Origin (SEER SPANORIG)

Summary Stage 1977 (NAACCR)

Summary Stage 2000 (NAACCR)

Type of Reporting Source (SEER RPRTSRC)

Inter-Field Edits

Age, Birth Date, Date of Diagnosis (NAACCR IF13)

Age, Primary Site, Morphology ICDO3—Adult (SEER)

Age, Primary Site, Morphology ICDO3—Pediatric (NPCR)

Age, Primary Site, Morphology ICDO3 (SEER IF15)

Behav ICDO3, Date of DX, ICDO3 Conv Flag (SEER IF87)

Behavior Code ICDO3, Seq Num--Central (SEER IF114)

Behavior ICDO3, Site, Histology ICDO3 (NAACCR)

Behavior ICDO3, Summary Stage 1977 (NAACCR)

Behavior ICDO3, Summary Stage 2000 (NAACCR)

Birth Date, Date of Diagnosis (NAACCR IF47)

County at DX, Addr at DX--State (NPCR Subm)

CS Extension, CS Lymph Nodes, CS Mets at DX (CS)

CS Extension, CS Tumor Size, Site, Hist ICDO3 (CS)

CS Extension, Hematopoietic (CS)

CS Extension, Primary Site, Behavior ICDO3 (CS)

CS Extension, Primary Site, Histol ICDO3 (NAACCR)

CS Extension, Renal Pelvis/Ureter Schema (CS)

CS Items, Date of DX (NPCR)

CS Items, DX Pre-2004 (NPCR Subm)

CS Items, Type Reporting Source (NPCR)

CS Lymph Nodes, Primary Site, Histol ICDO3 (NAACCR)

CS Mets at DX, Primary Site, Histol ICDO3 (NAACCR)

CS SSF 1, Primary Site, Histol ICDO3 (NAACCR)

CS SSF 3, Primary Site, Histol ICDO3 (NAACCR)

CS Tumor Size, Primary Site, Histol ICDO3 (NAACCR)

CS Tumor Size, Site, Histol ICDO3 (CS)

CS Version 1st, CS Version Latest (CS)

Derived Items, Date of DX (NPCR)

Derived Items, DX Pre-2004 (NPCR Subm)

Derived SS2000-Flag, Derived SS2000 (CS)

Diagnostic Confirm, Seq Num—Central (SEER IF23)

Diagnostic Confirmation, Behavior ICDO3 (SEER IF31)

Diagnostic Confirmation, Histology ICDO3 (SEER IF48)

Edit Over-rides (SEER REVIEWFL)

Hemato ICD-O-3, Summ Stg 1977 (NPCR SUBM)

Hist ICDO3, Date of DX, ICDO3 Conv Flag (SEER IF86)

Laterality, Primary Site (NAACCR IF24)

Laterality, Primary Site, Morphology ICDO3 (SEER IF42)

Lymphoma ICD-O-3, Site, Summ Stg 1977 (NPCR SUBM)

Morphology—Type and Behavior ICDO3 (SEER MORPH)

CORE SURVEILLANCE EDITS

Attachment 3-2

Obsolete Codes - CS Extension (SEER IF146)

Obsolete Codes - CS Lymph Nodes (SEER IF147)

Obsolete Codes - CS Mets at DX (SEER IF148)

Obsolete Codes - CS SSF 3 (SEER IF150)

Primary Site, Behavior Code ICDO3 (SEER IF39)

Primary Site, Histology, Behav ICDO3 (NAACCR)

Primary Site, Laterality (SEER IF82)

Primary Site, Morphology—Imposs ICDO3 (SEER IF38)

Primary Site, Morphology—Type ICDO3 (NPCR Subm)

Race 1, Race 2, Race 3, Race 4, Race 5 (SEER IF93)

Race 2, Date of Dx (SEER IF89)

Race 3, Date of Dx (SEER IF90)

Race 4, Date of Dx (SEER IF91)

Race 5, Date of Dx (SEER IF92)

Seq Num—Central, Prim Site, Morph ICDO3 (SEER IF22)

Sex, Primary Site (SEER IF17)

Summary Stage 1977, Date of Diagnosis (NAACCR)

Summary Stage 1977, Summary Stage 2000 (NAACCR)

Summary Stage 1977, Type of Reporting Source (NAACCR)

Summary Stage 2000, Date of Diagnosis (NAACCR)

Summary Stage 2000, Site, Hist, Rpt Srce (NAACCR)

Type of Report Srce (DC/AO), Diag Conf (SEER IF05)

Type of Report Srce (DC), Seq Num—Cent, ICDO3 (SEER IF04)

Unknown Site Hist ICDO3, Summary Stage 1977 (NPCR SUBM)

Unknown Site, Laterality (NAACCR)

Inter-Record Edits

Verify Place of Birth Same on All Records for a Patient (SEER IR01)

Verify Date of Birth Same on All Records for a Patient (SEER IR02)

Verify Sequence Number-Central of 00-59 using Age at Diagnosis (SEER IR03A)

Verify Sequence Number-Central of 60-87 Using Age at Diagnosis (SEER IR03B)

Verify Race Same on All Records for a Patient (SEER IR04)

Verify Sex Same on All Records for a Patient (SEER IR05)

Verify Sequence Number-Central of 00-59 Using Dates of Diagnosis (SEER IR06A)

Verify Sequence Number-Central of 60-87 Using Dates ofDiagnosis (SEER IR06B)

Verify Sequence Number-Central not in Conflict with Number of Primaries in

Sequence Range of 00-59, and 99 (SEER IR07A) Verify Sequence Number-Central Not in Conflict with Number of Primaries in

Sequence Range of 60-88 (SEER IR07B)

Verify Same Primary Not Reported Twice for a Person (SEER IR09)

Verify No Multiple Bladder Primaries Reported for a Person (SEER IR13A)

Verify No Multiple Prostate Primaries Reported for a Person (SEER IR13B)

Verify No Multiple Kaposi Sarcoma Primaries Reported for a Person (SEER IR13C)

Verify Spanish Surname or Origin Same on all Records for a Person (SEER IR14)

CORE SURVEILLANCE EDITS

Attachment 3-3

Single Field Edits

Addr at Dx—Postal Code (COC)

Cause of Death (SEER COD)

Census Cod Sys 1970/80/90 (SEER RESSYST)

Census Tr Cert 1970/80/90 (SEER CENSCERT)

Census Tr Certainty 2000 (SEER)

Census Tract 1970/80/90 (SEER TRACT)

Census Tract 2000 (SEER)

Computed Ethnicity (SEER COMPETHN)

Computed Ethnicity Source (SEER ETHNSRC)

Date of 1st Crs Rx—COC

3 (NPCR)

Date of Initial Rx—SEER

3 (NPCR)

Date of Last Contact (NAACCR DATEEDIT)

Follow-up Source (COC)

Follow-up Source Central (NAACCR)

ICD Revision Number (SEER ICDCODE)

Rad—Regional Rx Modality (NPCR)

Reason for No Surgery (NPCR)

RxSumm—BRM (NPCR)

RxSumm—Chemo (NPCR)

RxSumm—Hormone (NPCR)

RxSumm—Other (NPCR)

RX Summ--Radiation (NPCR Subm)

RxSumm—Scope Reg LN Surg (SEER SCOPE)

RxSumm—Surg Oth Reg/Dis (SEER SURGOTH)

RxSumm—Surg Prim Site (SEER SURGPRIM)

RxSumm--Surg/Rad Seq (NPCR)

RxSumm—Transplnt/Endocr (NPCR)

Vital Status (COC)

Inter-Field Edits

Age, Histologic Type, COD ICDO3 (SEER IF43)

Census Tract 1970/80/90, Census Tract Coding Sys (SEER IF45)

CompEthn, Date of Diag (SEER IF71)

Date of 1st Crs Rx—COC, Date of Last Contact (COC)

Date of 1st Crs Rx—COC, Date of Dx (COC)

Date of Init Rx—SEER, Date Last Cont (NAACCR IF35)

Date of Init Rx—SEER, Date of Dx (NAACCR18)

Date of Last Contact, Date of Diag. (NAACCR IF19)

EthnSrc, Date of Diag (SEER IF72)

Follow-up Source Central, Date of DX (NPCR)

Follow-up Source, Vital Status (COC)

ICD Revision Number, Cause of Death (SEER IF37)

ICD Revision, Vital Stat, Date Last Contract (NPCR)

ADVANCED SURVEILLANCE EDITS

ADVANCED SURVEILLANCE EDITS

Attachment 3-4

RX Summ--Scope Reg LN Sur, Date of DX (NPCR)

RxSumm—Scope Reg LN Surg, Prim Site (SEER IF109)

RX Summ--Surg Oth Reg/Dis, Date of DX (NPCR)

RX Summ--Surg Prim Site, Date of DX (NPCR)

RX Summ--Surg Prim Site, Diag Conf (SEER IF76)

RxSumm—Surg Prim Site, Primary Site, ICDO3 (SEER IF108)

Surgery, Rad, Surg/Rad Seq (COC)

Type of Report Srce (DC/AO), COD (SEER IF09)

Type of Report Srce (DC/AO), Date of Dx (SEER IF02)

Type of Report Srce (DC/AO), Vit Stat (COC)

Inter-Record Edits

Verify Date of Follow-up Same on All Records for a Patient (SEER IR08)

Verify Vital Status Same on All Records for a Patient (SEER IR10)

Verify Cause of Death Same on All Records for a Patient (SEER IR11)

Verify Type of Reporting Source and Sequence Number—Central 00-59 (SEER IR16A)

Verify Type of Reporting Source and Sequence Number—Central 60-87 (SEER IR16B)

See the NPCR-CSS utilities Web site (https://www.npcrcss.org/utilities/) for the edits programs.

Edits new or having a status change to this submission are noted in bold.

ADVANCED SURVEILLANCE EDITS

Core inter-record edits are required to be resolved and will be used to assess program standards.

Central registries may code either the SEER or COC data item; the appropriate edit will be run on the completed field.

NOTES:

This edit has been modified to allow “000” as a valid code for recode if state law prohibits the release of county codes.

Edits labeled NPCR-SUBM are specifically for the NPCR-CSS submission and should be run only on the submission file.

Attachment 3-5

Attachment 4-1

For registry purposes only. Do not submit.

Place a checkmark () next to the tasks completed.

Please note that the order of tasks may vary.

Task

If you have not done so for your NAACCR Call for Data 2008 submission, identify duplicate records in your database using the NAACCR Protocol for

Assessing Duplicate Cases (2001–2005, 2005). Otherwise, copy your Duplicate

Protocol Assessment results from your NAACCR submission to Attachment 9.

Run the ICD-O-2 to ICD-O-3 conversion program on cases diagnosed prior to

2001.

If applicable, have the Indian Health Service (IHS) perform the IHS linkage on your state data and update your database with the linkage information.

Run the NAACCR Hispanic and Asian/Pacific Islander Identification

Algorithm to assign the derived Hispanic and Asian/Pacific Islander ethnicity to incident cases.

Run the edits program using the NPCR-CSS 2008 edits metafiles and resolve single field and inter-field edit errors.

Run the inter-record edits standalone program 2008 and resolve edit errors.

Extract the data file; verify that all required diagnosis years are included

(i.e., from your NPCR reference year through 2006)*.

Follow the steps for creating and transmitting data and send the data file to

Macro International by January 31, 2008.

Complete Attachments 7-11 via the secure web interface from the CSS login page, or submit these forms via CSS document server, or fax, or mail to Macro

International.

* Do not submit your NAACCR Call for Data 2008 submission to NPCR. The case definition and diagnosis years are not the same as those for the NPCR-CSS submission.

Refer to the 2008 NPCR-CSS Submission Specifications for details.

Attachment 4

2008 NPCR-CSS Checklist

Attachment 5-1

Data transmitted to NPCR-CSS is encrypted during transmission to render it useless to anyone who might attempt to intercept the transmission. The encryption is accomplished via Secure

Socket Layer strong encryption—the same level of protection used by e-commerce sites to protect financial transactions.

NPCR-CSS staff at Macro International will call each program in early December to provide the login, user ID, and password and to answer questions.

We will accommodate on-line form completion and submission this year. For data submission, it is recommended that each state use PKZIP or WINZIP to compress its files prior to posting them to the secure web site.

Instructions:

1. Open an Internet browser capable of 128-bit encrypted communication. Some, but not all, versions of Microsoft (MS) Internet Explorer (5.x and higher) and Netscape (4.x and higher) support 128-bit encryption. If your browser is not capable of 128-bit encrypted communication, you will be instructed on how to download the required browser software.

2. In the address or location line of your browser, type https://www.npcrcss.org/ and press

Enter.

3. A Security Warning page will pop up. Accept the security certificate by clicking on the Yes button (if using MS Internet Explorer) or the OK button (if using Netscape). The login screen will appear. Choose from the options by checking a radio button for either Forms submission or Data upload. Enter your user-specific ID and password and click on the Login button.

4. If you choose to submit the forms, you will be directed to a secure area where all required forms (i.e., Attachments 7-11) are available so that you can fill them in on-line and submit them through a web application. For each form completed, a PDF version of the completed form will be generated after you click on the ―Submit‖ button. A copy of the PDF file will be automatically delivered to your 2008 folder on the CSS document server for you to download.

Download a copy for your own record if you wish.

5. When you choose to upload your dataset, you will see a folder that appears on the left-hand side of the screen labeled with your state’s name. In order to upload your data file, open this

Attachment 5

File Transfer Instructions https://www.npcrcss.org/

Attachment 5-2

NPCR-CSS 2008 Data Submission folder and click on the 2008 Submission folder that appears under your state’s folder. Next, click on the yellow arrow labeled Upload a File on the right-hand side of the screen.

A new page will appear with the title Document Upload. You will need to enter a title for the document and then click on the Browse button to locate the data file on your local hard drive or network drive. For naming your document, begin the file name with the two-character state postal abbreviation, then use the year range of the file and NAACCR layout version.

For example, use the name GA95V11 for 1995 Georgia data in Version 11.1 and

GA9506V11 for 1995–2006 Georgia data in Version 11.1. Once you have selected the file and entered any descriptive text that you want to include with the submission, click on the

Continue button.

6. Depending on the size of the file and the speed of your Internet connection, the file uploading may take a few seconds to 30 minutes or more. You will receive a confirmation message after the file has been successfully uploaded.

7. Click on Logout in the upper right-hand corner, and you will return to the login screen.

Attachment 6-1

The NPCR-CSS project data reside on a dedicated server at Macro International. To ensure the security and confidentiality of project data, the following provisions have been incorporated into the Macro International NPCR-CSS Security Plan in accordance with the requirements of the

Assurance of Confidentiality.

The NPCR-CSS server is housed in a secure facility at Macro International’s Bethesda office with a guard on duty in the lobby 24 hours a day. Elevator and stairwell access is controlled by card key. The server resides on its own local area network (LAN) behind Macro International’s firewall.

Access to the NPCR-CSS server is limited to authorized Macro International project staff

(see below). It is password protected on its own security domain. No one, including nonproject staff at Macro International, is allowed access to the NPCR-CSS data.

All Macro International project staff must sign a confidentiality agreement before passwords and keys are assigned. All staff must pass background checks appropriate to their responsibilities for a public trust position.

NPCR-CSS data that are submitted electronically are encrypted during transmission from the

States. They arrive on a document server behind Macro International’s firewall. Each state has its own directory location so that no state has access to another state’s data. The data are moved automatically from the document server to the NPCR-CSS server.

Receipt and processing logs are maintained to document data receipt, file processing, and report production. All reports and electronic storage media containing NPCR-CSS data are stored under lock and key when not in use and will be destroyed when no longer needed.

A comprehensive security plan has been developed by Macro International’s security team.

The security team consists of Donald McMaster, Business Steward; Kevin Zhang, Project

Director; Leo Shen, Data Manager and Security Officer; David Radune, Database

Administrator; and Gretchen Stanton, LAN and WAN Security Steward. All project staff receive annual security awareness training covering security procedures. The Macro

International project security team oversees operations to prevent unauthorized disclosure of the NPCR-CSS data.

Periodic (currently quarterly, but no less than once a year) review and update of Macro

Attachment 6

Overview of Data Security

Attachment 6-2

NPCR-CSS 2008 Data Submission

International security processes will be conducted to adjust for rapid changes in computer technology and to incorporate advances in security approaches. The security plan will be amended as needed to maintain the continued security and confidentiality of NPCR-CSS data.

Macro International

Authorized Project Staff

Staff Member Position

Donald McMaster, M.B.A., M.S. Business Steward

Kevin Zhang, Ph.D. Project Director

Leo Shen, M.B.A. Deputy Director/Security Officer

David Radune, B.S. Lead Developer/Database

Administrator

Gretchen Stanton, M.S. LAN and WAN Security Steward

Qiming He, Ph.D. QA Manager/Sr. Programmer Analyst

Yuan Ren, Ph.D. Data and Statistical Manager/Sr.

Statistical Programmer

Jonathan Stanger, M.P.A. SQL Programmer

Phllips Schaeffer, M.S. Sr. SAS Programmer

Jagruti Rana, M.S. Sr. Developer

Shaobin Xu, M.S. Programmer Analyst

Shirley Zhou, M.S. Statistical Programmer

Attachment 7-1

NPCR-CSS 2008 Data Submission

Registry name: _____________________________________________ Date: ___________________________________________

Name: ____________________________________________________ Phone number:__________________________________ (Primary contact for data submission)

Please provide the following information. Instructions for completing the form are on page 3.

Diagnosis

Year

(1)

Total

Number of

Records

(2)

Number of

Excluded

Records

(3)

Number of DCOs

(4)

Death

Clearance

Conducted

(Yes/No)

(5)

NHAPIIA

Run

(S/M/N)

(6)

IHS

Linkage

(Y/N, N/A)

(7)

Comments

(8)

File Name

(9)

NAACCR

Version

(10)

NAACCR

Record

Type

Attachment 7

2008 NPCR-CSS Data Submission Form

Attachment 7-2

Instructions for Completing the 2008 NPCR-CSS Data Submission Form

NOTE: A Microsoft Word version of this form can be downloaded from the NPCR-CSS utilities Web site (https://www.npcrcss.org/utilities/) and submitted upon completion via the document server along with your 2008 data submission.

(1) Total Number of Records: Enter the number of records submitted for each year, including death-certificate-only cases. The form is designed for one file for each diagnostic year. If one file is used for all years, indicate that on the form.

(2) Number of Excluded Records: Enter the number of records in your database not included in this submission. Reasons for excluding a record may include case-sharing agreements with other registries or facility-specific contract requirements. Please record the reason for excluding cases under Comments.

(3) Number of Death-Certificate-Only Cases: Enter the number of DCOs included in the submission for each year.

(4) Death Clearance Conducted: Enter “Yes” if death clearance was performed that year to the extent allowed by state law. Enter “No” if it was not. If follow-up was initiated and information was not received, report the case as DCO.

(5) NHAPIIA Run: Run the NAACCR Hispanic and Asian/Pacific Islander Identification Algorithm and record the derived NHIA and

NAPIIA variable. For details, refer to NAACCR Call for Data 2008. Enter “S” if the SAS algorithm was run, “M” if done manually, or

“N” if not done.

(6) IHS Linkage: Data linkage must be performed between your 1995–2005 incidence data and Indian Health Service files and IHS Link variable must be coded and reported accordingly. Enter “Yes” for those years that linkage has been performed and “No” if not. Enter

“N/A” if not applicable (e.g., beyond reference year).

(7) Comments: Use this space as needed.

(8) File Name: Begin your filename with the two-character state postal code, a year range, and NAACCR layout version. For example:

1995 Georgia data, Version 11.1 = GA95V11

1995–2006 Georgia data, Version 11.1 = GA9506V11

(9) NAACCR Version: NAACCR Version 11.1.

(10) NAACCR Record Type: Should be “I,” Incidence (length = 1946) or “A,” Full Case Abstract (length = 6694), with the Patient

Confidential Section blanked out.

Attachment 8

2008 NPCR-CSS Data Items Transmitted

Reason for Not Transmitting Transmitted Consolidated or for Modifying Prior

(Yes/No) ( ) to Transmission Record Type [10] Patient ID Number [20] (unique) Registry ID [40] NAACCR Record Version [50] Address at Dx—State [80] County at Dx [90]1

Address at Dx—Postal Code [100] Census Tract 1970/80/90 [110] Census Cod Sys 1970/80/90 [120] Census Tract 2000 [130]2

Census Tr Cert 1970/80/90 [364] Census Tr Certainty 2000 [365]2

Race 1 [160] Race 2 [161] Race 3 [162] Race 4 [163] Race 5 [164] Spanish/Hispanic Origin [190] NHIA Derived Hisp Origin [191]3

IHS Link [192]4

NAPIIA [use columns 236-237]3

Computed Ethnicity [200] Computed Ethnicity Source [210] Sex [220] Age at Diagnosis [230] Birth Date [240] Birthplace [250]

Please write “Yes” or “No” to indicate the transmission status of each data item to CDC. If the data item will not be transmitted, is modified prior to transmission, or is transmitted blank, please explain (e.g., data not collected, state law prohibits). For shaded data items, please make a checkmark if the data item is consolidated. Please refer to the notes regarding specific data items.

Registry name: _____________________________________________________________________________

Record ID and Demographic Section

Attachment 8-1

Reason for Not Transmitting Transmitted Consolidated or for Modifying Prior

(Yes/No) ( ) to Transmission Sequence Number—Central [380] Date of Diagnosis [390] Primary Site [400] Laterality [410] Grade [440] Site Coding Sys—Current [450] Morph Coding Sys—Current [470] Diagnostic Confirmation [490] Type of Reporting Source [500] Histologic Type ICD-O-3 [522]5

Behavior Code ICD-O-3 [523]5

ICD-O-3 Conversion Flag [2116]5

Reason for Not Transmitting Transmitted Consolidated or for Modifying Prior

(Yes/No) ( ) to Transmission Date of Initial Rx—SEER [1260]6

Date of 1st Crs Rx—COC [1270]6

Rx Summ—Surg Primary Site [1290]7

Rx Summ—Scope Reg LN Sur [1292]7

Rx Summ—Surg Oth Reg/Dis [1294]7

Reason for No Surgery [1340]7

RX Summ-Radiation [1360]7

RX Summ--Surg/Rad Seq [1380]7

Rx Summ—Chemo [1390]7

Rx Summ—Horm [1400]7

Rx Summ—BRM [1410]7

Rx Summ—Other [1420]7

Rad—Regional Rx Modality [1570]7

Rx Summ—Transplant/Endocr [3250]7

Treatment First Course Section

Cancer Identification Section

Attachment 8-2

Reason for Not Transmitting Transmitted Consolidated or for Modifying Prior

(Yes/No) ( ) to Transmission SEER Summary Stage 2000 [759]8

SEER Summary Stage 1977 [760]8

CS Tumor Size [2800]9

CS Extension [2810]9

CS Lymph Nodes [2830]9

CS Mets at DX [2850]9

CS Site-Specific Factor 1 for C384 [2880]9

CS Site-Specific Factor 3 for C619 [2900]9

CS Version 1st [2935]9

CS Version Latest [2936]9

Derived SS2000 [3020]9

Derived SS2000-Flag [3050]10

Reason for Not Transmitting Transmitted Consolidated or for Modifying Prior

(Yes/No) ( ) to Transmission Date of Last Contact [1750] Vital Status [1760] Follow-Up Source [1790] 11

Follow-Up Source Central [1791]11

Cause of Death [1910] ICD Revision Number [1920]

Reason for Not Transmitting Over-Rides/Conversion/System Admin. Transmitted Consolidated or for Modifying Prior Section (Yes/No) ( ) to Transmission Over-Ride Age/Site/Morph [1990] Over-Ride SeqNo/DxConf [2000] Over-Ride Site/Lat/Sequence Number [2010] Over-Ride Surg/Dxconf [2020] Over-Ride Site/Type [2030] Over-Ride Histology [2040] Over-Ride Report Source [2050] Over-Ride Ill-define Site [2060] Over-Ride Leuk, Lymphoma [2070] Over-Ride Site/Behavior [2071] Over-Ride Site/Lat/Morph [2074]

Follow-Up/Recurrence/Death Section

Stage/Prognostic Factors Section

Attachment 8-3

Shaded items denote variables that are considered advanced surveillance data. Non-shaded variables denote core surveillance data.

Data items new to this submission are noted in bold.

The data item names and numbers are those used in NAACCR Volume II, Version 11.1.

Status key: Y = Yes

1 Code “999” for unknown and missing. Do not include cases with code “998” in the submission file. If state law precludes the registry from identifying specific counties on a file of individual records, the registry may recode all valid county codes to “000.”

2 Use of this field is recommended for reportable cases diagnosed in 1998 and later and required for reportable cases diagnosed in 2003 and later.

3 Report the results from the NHAPIIA SAS Program. See the Submission Specifications document and/or Atachment 1 for more details. Please note that code 9, unknown, is not a valid code for NHIA data item, and code 96, Asian NOS, is not a valid code for NAPIIA data item.

4 Report the results of cases submitted for IHS linkage using codes 0 or 1. See the Submission Specifications document for further details.

5 For reportable cases diagnosed in 2001 or later, data should be coded using the ICD-O-3 manual, and data should be submitted with these original ICD-O-3 values. For reportable cases diagnosed before 2001, data should be coded using the ICD-O-2 manual. Prior to submission, convert these ICD-O-2 codes to ICD-O-3 codes and use the ICD-O-3 Conversion Flag [2116] to document the conversion.

6 Submit either the SEER or COC field; for reportable cases diagnosed in 2003 or later, as available.

7 For reportable cases diagnosed in 2003…