National Fragile X Foundation

Washington, DC Doing business as Childrens Inhereted Brain Disorders Foundation

UEI
HUJHX93GLXJ7
CAGE
47EN5
Primary NAICS
813212 Voluntary Health Organizations
SAM.gov registration
Active through

Company facts

Self-certified in SAM.gov
  • Non-Profit Organization
Entity structure
Other
SAM.gov registration date
Physical address
1012 14th St NW #500, Washington, DC 20005, USA
Website
fragilex.org
Founded
1984
Employees
11-50
Estimated annual revenue
$1M-$10M
Industry
  1. Health Care
  2. Health Care Equipment & Services
  3. Health Care Providers & Services
  4. Health & Wellness
SIC code
83 Social Services
Profiles

Registration and certifications come from SAM.gov and the SBA; company details from public web sources. Updated .

Grant awards

Award Agency Obligated Awarded
Translating fragile x knowledge into action: a nfxf nationwide dissemination and education initiative supported by… NU50DD000113 Office of Financial Resources (CDC) $200,000
The national fragile x foundation requests funding to help defray the costs for c R13HD074382 National Institutes of Health $5,831
11TH international fragile x conference of the national fragile x FDN - 300.1 U13DD000360 Centers for Disease Control and Prevention $65,293

Grant subawards

Prime recipient Prime award Amount Awarded
Rush University Medical Center Characterizing the Natural History of Fragile X Syndrome to Inform the Development of Intervention, Outcome Measures U01DD001298 $3,545,029

Similar vendors

Vendor Location Primary NAICS
Nord UEI PCPAHHLS8VB6 Norwell, MA 813319 Other Social Advocacy Organizations
Fondazione Irccs Istituto Neurologico Carlo Besta UEI GCBDC324N8L4 Milano, Lombardia 622110 General Medical and Surgical Hospitals
Rfmh At Institute For Basic Research UEI LKEPMM3KKF27 NY 541714 Research and Development in Biotechnology (except Nanobiotechnology)
Institut De Recerca De L'hospital De La Santa Creu I Sant PAU UEI H2YLWEWGLN71 Barcelona, CT 541714 Research and Development in Biotechnology (except Nanobiotechnology)

See more similar vendors on GovTribe

About the company

Written by GovTribe AI ·

National Fragile X Foundation, doing business as Childrens Inhereted Brain Disorders Foundation, is a non-profit organization that serves individuals and families living with Fragile X syndrome by providing awareness, research, and community support. The organization has not received any prime federal grants but has participated as a subrecipient on grants related to research on Fragile X syndrome.

Specifically, National Fragile X Foundation has received subawards from Rush University Medical Center to participate in research characterizing the natural history of Fragile X syndrome. This research aims to inform the development of interventions and outcome measures for Fragile X syndrome. The subawards supported National Fragile X Foundation's involvement in longitudinal studies analyzing data on the progression of Fragile X syndrome over time. The goal is to use these findings to improve services and treatments for those with the condition. Through these subawards, National Fragile X Foundation contributed its expertise and engagement with the Fragile X community while Rush University Medical Center served as the prime grantee responsible for administering the federal grants.

Quick answers

Is National Fragile X Foundation registered in SAM.gov?

Yes. National Fragile X Foundation's SAM.gov registration is active through July 7, 2027.

What is National Fragile X Foundation's most recent federal award?

National Fragile X Foundation's most recent federal grant award is Translating fragile x knowledge into action: a nfxf nationwide dissemination and education initiative supported by… (NU50DD000113), from Office of Financial Resources (CDC), on September 30, 2026.

On GovTribe

See National Fragile X Foundation's full federal record

  • Federal grant awards
  • Funding analysis by agency, NAICS and set-aside
  • Similar vendors
Try for free Login