National Fragile X Foundation
Washington, DC Doing business as Childrens Inhereted Brain Disorders Foundation
- UEI
- HUJHX93GLXJ7
- CAGE
- 47EN5
- Primary NAICS
- 813212 Voluntary Health Organizations
- SAM.gov registration
- Active through
Company facts
- Self-certified in SAM.gov
- Entity structure
- Other
- NAICS codes registered in SAM.gov
- SAM.gov registration date
- Physical address
- 1012 14th St NW #500, Washington, DC 20005, USA
- Website
- fragilex.org
- Founded
- 1984
- Employees
- 11-50
- Estimated annual revenue
- $1M-$10M
- Industry
-
- Health Care
- Health Care Equipment & Services
- Health Care Providers & Services
- Health & Wellness
- SIC code
- 83 Social Services
Registration and certifications come from SAM.gov and the SBA; company details from public web sources. Updated .
Recent federal awards
| Award | Agency | Obligated | Awarded |
|---|---|---|---|
| Translating fragile x knowledge into action: a nfxf nationwide dissemination and education initiative supported by the… | Office of Financial Resources | $200,000 | |
| The national fragile x foundation requests funding to help defray the costs for c | National Institutes of Health | $5,831 | |
| 11TH international fragile x conference of the national fragile x FDN - 300.1 | Centers for Disease Control and Prevention | $65,293 |
About National Fragile X Foundation
National Fragile X Foundation, doing business as Childrens Inhereted Brain Disorders Foundation, is a non-profit organization that serves individuals and families living with Fragile X syndrome by providing awareness, research, and community support. The organization has not received any prime federal grants but has participated as a subrecipient on grants related to research on Fragile X syndrome.
Specifically, National Fragile X Foundation has received subawards from Rush University Medical Center to participate in research characterizing the natural history of Fragile X syndrome. This research aims to inform the development of interventions and outcome measures for Fragile X syndrome. The subawards supported National Fragile X Foundation's involvement in longitudinal studies analyzing data on the progression of Fragile X syndrome over time. The goal is to use these findings to improve services and treatments for those with the condition. Through these subawards, National Fragile X Foundation contributed its expertise and engagement with the Fragile X community while Rush University Medical Center served as the prime grantee responsible for administering the federal grants.
Quick answers
What is National Fragile X Foundation's UEI?
National Fragile X Foundation's Unique Entity ID (UEI) in SAM.gov is HUJHX93GLXJ7.
What is National Fragile X Foundation's CAGE code?
National Fragile X Foundation's CAGE code is 47EN5.
What is National Fragile X Foundation's primary NAICS code?
National Fragile X Foundation's primary NAICS code is 813212 (Voluntary Health Organizations).
Where is National Fragile X Foundation located?
National Fragile X Foundation's physical address in SAM.gov is 1012 14th St NW #500, Washington, DC 20005, USA.
Is National Fragile X Foundation registered in SAM.gov?
Yes. National Fragile X Foundation's SAM.gov registration is active through July 7, 2027.
What is National Fragile X Foundation's most recent federal award?
National Fragile X Foundation's most recent federal grant award is Translating fragile x knowledge into action: a nfxf nationwide dissemination and education initiative supported by the… (NU50DD000113), from Office of Financial Resources, on September 30, 2026.
On GovTribe
See National Fragile X Foundation's full federal record
- Federal grant awards
- Funding analysis by agency, NAICS and set-aside
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