The National Organization For Rare Disorders Inc.
Doing business as Nord
- UEI
- PCPAHHLS8VB6
- CAGE
- 062L2
- Primary NAICS
- 813319 Other Social Advocacy Organizations
- SAM.gov registration
- Expired
Company facts
- Self-certified in SAM.gov
- Entity structure
- Corporate Entity (Tax Exempt)
- NAICS codes registered in SAM.gov
- SAM.gov registration date
- Website
- rarediseases.org
- Founded
- 1983
- Employees
- 51-250
- Estimated annual revenue
- $10M-$50M
- Industry
-
- Health Care
- Health Care Equipment & Services
- Health Care Providers & Services
- Health & Wellness
- SIC code
- 83 Social Services
Registration and certifications come from SAM.gov and the SBA; company details from public web sources. Updated .
Recent federal awards
| Award | Agency | Obligated | Awarded |
|---|---|---|---|
| Broad agency announcement: fdavaa-19-00123-A3 " a systems-based approach to patient-focused research and product… | Food and Drug Administration | $1,464,209 | |
| Disease natural history database development | Food and Drug Administration | $250,000 | |
| Purchase Order HHSN263200661233P | Office of the Director | $25,000 | |
| Scientific studies | Office of the Director | $99,100 | |
| Conference | Office of the Director | $50,000 |
About The National Organization For Rare Disorders Inc.
The National Organization For Rare Disorders Inc., doing business as Nord, is a non-profit organization providing advocacy, research support, educational services, and patient assistance programs on behalf of the rare disease community.
Nord has received one prime federal contract award from the Department of Health and Human Services Food and Drug Administration, a $1.46 million definitive cost plus fixed fee contract to support a systems-based approach to patient-focused research and product development related to rare diseases. This contract, awarded in September 2019, runs through June 2024.
Nord has received multiple federal grant subawards to provide various goods and services in support of rare disease research and drug development initiatives. These subawards were provided by prime grantees including The Critical Path Institute and Northwestern University. Nord's subaward activities have included co-hosting meetings and developing outreach plans, contributing to data architecture and acquisition efforts, developing educational content and engagement plans for stakeholders, and supporting governance of rare disease research programs. Through these subawards, Nord lends its expertise and channels within the rare disease community.
Quick answers
What is The National Organization For Rare Disorders Inc.'s UEI?
The National Organization For Rare Disorders Inc.'s Unique Entity ID (UEI) in SAM.gov is PCPAHHLS8VB6.
What is The National Organization For Rare Disorders Inc.'s CAGE code?
The National Organization For Rare Disorders Inc.'s CAGE code is 062L2.
What is The National Organization For Rare Disorders Inc.'s primary NAICS code?
The National Organization For Rare Disorders Inc.'s primary NAICS code is 813319 (Other Social Advocacy Organizations).
Is The National Organization For Rare Disorders Inc. registered in SAM.gov?
The National Organization For Rare Disorders Inc.'s SAM.gov registration expired on September 25, 2026.
What is The National Organization For Rare Disorders Inc.'s most recent federal award?
The National Organization For Rare Disorders Inc.'s most recent federal contract award is Broad agency announcement: fdavaa-19-00123-A3 " a systems-based approach to patient-focused research and product… (75F40119C10091), from Food and Drug Administration, on September 7, 2019.
On GovTribe
See The National Organization For Rare Disorders Inc.'s full federal record
- Federal contract awards
- IDV awards
- Federal grant awards
- Funding analysis by agency, NAICS and set-aside
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