DD24-0065 Surveillance of Spina Bifida Across the Lifespan - FAQ.docx

This document is a Frequently Asked Questions (FAQ) related to the federal grant opportunity with Solicitation Number CDC-RFA-DD-24-0065, titled "Surveillance of Spina Bifida across the Lifespan".

The grant opportunity is a cooperative agreement funded by the Centers for Disease Control and Prevention (CDC) to conduct population-based surveillance of children and adults with spina bifida. The objectives are to: (1) estimate the prevalence of spina bifida across all ages, along with mortality and survival rates; (2) describe healthcare utilization and sources of care; and (3) assess health status and long-term outcomes. The surveillance area can be an entire state or a region within a state, utilizing multiple data sources such as birth defects surveillance systems, vital records, and longitudinal data sources like electronic health records and administrative data. The total estimated funding for Component A is $8,000,000 for 5 years, while Component B, which focuses on developing and testing novel case-finding and outcome prediction approaches, has a total estimated funding of $400,000 for 2 years. This opportunity is assigned to the CDC's Birth Defects and Developmental Disabilities - Prevention and Surveillance federal grant program (CFDA 93.073).