The FTD Disorders Registry. Llc
King of Prussia, PA
- UEI
- VCN3BZZSCK85
- CAGE
- 93FR8
- Primary NAICS
- 813212 Voluntary Health Organizations
- SAM.gov registration
- Expired
Company facts
- Self-certified in SAM.gov
- Entity structure
- Corporate Entity (Tax Exempt)
- SAM.gov registration date
- Physical address
- 2700 Horizon Dr Suite 120, King of Prussia, PA 19406, USA
- Website
- ftdregistry.org
- Founded
- 2015
- Employees
- 1-10
- Estimated annual revenue
- $0-$1M
- Industry
-
- Industrials
- Commercial & Professional Services
- Professional Services
- Research & Consulting Services
- SIC code
- 87 Engineering & Management Services
Registration and certifications come from SAM.gov and the SBA; company details from public web sources. Updated .
Grant subawards
| Prime recipient | Prime award | Amount | Awarded |
|---|---|---|---|
| Mayo Clinic | U19AG063911 | $281,765 | |
| Mayo Clinic | U19AG063911 | $754,762 | |
| Mayo Clinic | U19AG063911 | $253,750 |
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About the company
The FTD Disorders Registry LLC is a non-profit organization that provides research and data to advance understanding of frontotemporal lobar degeneration (FTLD). Through federal grants, they operate a consortium conducting longitudinal studies on FTLD to address scientific questions and assist with clinical trial planning.
The FTD Disorders Registry has received multiple federal sub awards from the National Institutes of Health (NIH) to contribute data, samples, and imaging scans to national repositories that support Alzheimer's and FTLD research. These include the National Alzheimer's Coordinating Center, National Centralized Repository for Alzheimer's Disease and Related Dementias, and Laboratory of NeuroImaging. Specifically, they combined two previous NIH funded programs, ARTFL and LEFFTDS, into an expanded consortium called "ALLFTD" that performs longitudinal tracking of FTLD patients, collects associated pathology data, and partners with patient advocacy groups and industry around clinical trials and data sharing. The prime grantee for these awards was Mayo Clinic. Through the consortium, The FTD Disorders Registry provides administrative coordination, study methodology, patient recruitment, data collection services as well as industry coordination aimed at supporting new FTLD treatments.
Quick answers
Is The FTD Disorders Registry. Llc registered in SAM.gov?
The FTD Disorders Registry. Llc's SAM.gov registration expired on September 10, 2026.
On GovTribe
See The FTD Disorders Registry. Llc's full federal record
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