The Familial Hypercholesterolemia Foundation

Fernandina Beach, FL

UEI
MNMJS1QRMJB7
CAGE
7RF60
Primary NAICS
813319 Other Social Advocacy Organizations
SAM.gov registration
Expired

Company facts

Self-certified in SAM.gov
  • Non-Profit Organization
  • Foundation
Entity structure
Corporate Entity (Tax Exempt)
Other NAICS codes in SAM.gov
SAM.gov registration date
Physical address
5548 1st Coast Hwy #204, Fernandina Beach, FL 32034, USA
Founded
2011
Employees
1-10
Estimated annual revenue
$0-$1M
SIC code
99 Non-Classifiable Establishments

Registration and certifications come from SAM.gov and the SBA; company details from public web sources. Updated .

Grant subawards

Prime recipient Prime award Amount Awarded
The Trustees Of The University Of Pennsylvania " Scope of Work for “Improving diagnosis and clinical management of familial hypercholesterolemia through integrated machine learning, implementation science,… W81XWH2110420 $57,449
Northwestern University Leveraging Behavioral Economics to Equitably Implement Cascade Screening in Individuals with Familial Hypercholesterolemia in Partnership with the FH Foundation R33HL161752 $141,978
The University Of Texas Southwestern Medical Center The FH Foundation will assist in Aim 1 by recruiting providers (from the CASCADE-FH registry) to participate in the key expert panel and telephone interviews.… W81XWH2110645 $321,581

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About the company

Written by GovTribe AI ·

The Familial Hypercholesterolemia Foundation is a patient-driven nonprofit organization that leads awareness, research, and advocacy efforts for familial hypercholesterolemia and lipoprotein(a). As a tax-exempt corporate entity structured as a non-profit foundation, The Familial Hypercholesterolemia Foundation has received federal grants to provide expertise and services related to outreach, education, and screening for familial hypercholesterolemia.

Through subawards on federal grants from the National Institutes of Health, The Familial Hypercholesterolemia Foundation has assisted with aims related to provider recruitment, patient engagement and education, coordination of cascade screening, data analysis, and dissemination of findings. Specifically, they have worked with academic institutions and health systems to conduct qualitative research, implement high touch screening, track screening outcomes, and co-design approaches to engage individuals with familial hypercholesterolemia and their family members. The Familial Hypercholesterolemia Foundation has also utilized its patient registry and database to provide data for research on familial hypercholesterolemia prevalence and screening. Prime grantees have included Northwestern University, the University of Texas Southwestern Medical Center, Columbia University, the University of Pennsylvania, and Geisinger Clinic.

Quick answers

Is The Familial Hypercholesterolemia Foundation registered in SAM.gov?

The Familial Hypercholesterolemia Foundation's SAM.gov registration expired on June 3, 2026.

On GovTribe

See The Familial Hypercholesterolemia Foundation's full federal record

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