Understanding and Promoting Resources and Opportunities for People with Autism and Fragile X and their Families Across the Lifespan
Closed Posted
- Opportunity number
- CDC-RFA-DD-26-0025
- Agency
-
Centers for Disease Control and Prevention
Department of Health and Human Services
- Applications due
- Award size
- Not on record
Opportunity facts
- Assistance listings
- Funding instrument
- Cooperative Agreement
- Category
-
- Health
- Eligible applicants
-
- For Profit Organizations
- Tribal Organizations (Not Federally Recognized)
- Non-501(c)(3) Nonprofits
- Higher Education Inst. (Public)
- State Governments
- 501(c)(3) Nonprofits
- Small Businesses
- City/Township Governments
- Independent School Districts
- Tribal Governments (Federally Recognized)
- Unrestricted
- Public or Indian Housing Auth.
- County Governments
- Special District Governments
- Higher Education Inst. (Private)
- Points of contact
-
- Seema Gupta cvk9@cdc.gov (770) 488-6527
- Full announcement
Opportunity details come from Grants.gov. Updated .
About this opportunity
The Centers for Disease Control and Prevention (CDC) is soliciting cooperative agreement applications to fund surveillance and research activities that gather unique information on resources and opportunities for people with autism and Fragile X Syndrome across the lifespan, with applications due June 15, 2026 at 11:59 p.m. Eastern Time.
Eligible applicants include for-profit organizations, tribal organizations (federally recognized and non-federally recognized), non-501(c)(3) nonprofits, higher education institutions (public and private), state governments, 501(c)(3) nonprofits, small businesses, city and township governments, independent school districts, public and Indian housing authorities, county governments, special district governments, and unrestricted applicants.
The NOFO comprises three components with $18 million total funding over five years in 12-month budget periods. Component A (SPROUT—Survey to Promote Resources and Opportunities for aUtistic Teens and young adults) offers $12 million for up to seven awards ranging from $230,000 to $650,000 per budget period. This component will utilize cohorts from the Study to Explore Early Development (SEED) Phases 1-3 (collected 2007–2020) to conduct caregiver and self-report surveys of participants aged approximately 10–25 years at award, capturing service and support needs, co-occurring conditions, and educational, transitional, social, and vocational needs and experiences of autistic adolescents and young adults. Component B (FAST FORWARD—Focus on Advancing Support and Transition with the Fragile X Online Registry With Accessible Research Database) provides $5 million for up to three awards averaging $333,333 per budget period, employing clinic-based enrollment with a recruitment goal of at least 200 eligible persons with FXS per clinic to collect data on diagnosis timing and barriers, service and support needs, and impact of co-occurring conditions. Component C allocates $1 million for one award of $200,000 per budget period focused on creating resources and strengthening capacity for FXS.
Applications require submission through Grants.gov with a project narrative (20-page maximum), budget narrative, organizational charts, resumes, letters of support, and evaluation plans. An optional letter of intent is due June 1, 2026. Expected award date is August 31, 2026, with an expected performance start date of September 30, 2026. Post-award reporting includes annual performance reports and financial reports due 90 days after each budget period; recipients must comply with 2 CFR 200 and HHS Grants Policy Statement requirements. The opportunity number is CDC-RFA-DD-26-0025, assigned to CFDA 93.073 (Birth Defects and Developmental Disabilities - Prevention and Surveillance).
Synopsis
The goal of this NOFO is to gather unique information not collected by other federal programs to gain a better understanding of the resources (e.g., services, supports) and opportunities (e.g., education, employment, housing, social participation) needed to reduce morbidity, mortality, and economic impacts and improve other long-term outcomes for people with autism or Fragile X Syndrome (FXS) across the lifespan. CDC proposes to implement three components in this NOFO.Component A: Survey to Promote Resources and Opportunities for aUtistic Teens and young adults (SPROUT) will utilize cohorts from the Study to Explore Early Development (SEED) Phases 1-3 (collected from 2007-2020), which were case-control studies of autism in children 2-5 years of age. Participants will range from about 10-25 years of age when this NOFO is awarded. SPROUT will be comprised of caregiver and self-report surveys intended to offer unique information on (1) service and support needs and the impact of co-occurring conditions on autistic people and their families and (2) the educational, transitional, social, and/or vocational needs and experiences of autistic adolescents and young adults. Information from these surveys will be used to improve the health and wellbeing of autistic people and their families. These activities are intended to provide data to inform ways to lessen individual, familial, and societal costs associated with autism, reduce morbidity and mortality, and improve health and well-being.Component B: Focus on Advancing Support and Transition with the Fragile X Online Registry With Accessible Research Database (FAST FORWARD) awardees will employ clinic-based enrollment of eligible participants with a recruitment goal of at least 200 eligible persons with FXS per clinic. Similar to SPROUT, awardees will collect data on (1) timing of and barriers to diagnosis, (2) service and support needs and the impact of co-occurring conditions on people with FXS and their families and (3) the educational, transitional, social, and/or vocational needs and experiences of people with FXS and their families. Awardees will participate in project meetings, recruit participants, collect data, record data in a centralized platform, and produce quality public health products. These activities are intended to provide data to inform ways to lessen individual, familial, and societal costs associated with FXS, reduce morbidity and mortality, and improve health and well-being. Component C: The purpose of this component is to disseminate quality public health products that can improve the health and wellbeing of people with FXS and their families. The awardee will participate in project meetings, develop materials, and disseminate materials to relevant audiences to strengthen the capacity among healthcare providers to appropriately support patients with FXS on a national level.
Files
| File | Type | Posted |
|---|---|---|
| cdc-rfa-dd-26-0025_ForPublication.pdf |
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