Category B CIO Project Plans_Modified.pdf

Project Title: Enhancing modeling and forecasting capacity of public health epidemiologists with CFA resources.

Population of Focus: Category B: Workforce Segments in Governmental Public Health Departments

Population of Focus Description:

Epidemiologists and data scientists at the STLT level as well as the public health decision makers these entities support (e.g. elected officials, and those with decision -making authority).

Project Plan Details Project Purpose: The project builds upon previous (and recent) efforts funded by the Center for

Forecasting and Outbreak Analytics (CFA) through the CDC Partnership Cooperative Agreement: Strengthening Public Health Systems and Services through National Partnerships to Improve and Protect the Nation's Health. The goal of this project is to provide capacity building assistance to STLT jurisdictions and the public health professionals working within such in the awareness of, CFA resources and the ability to shape the development and dissemination of such to support utilization of these resources and enhance understanding of and appropriate application of disease forecasting and modeling resources. Earlier efforts have focused on needs assessments analyzing the interest in and ability of STLT entities to engage in disease forecasting and modeling efforts as well as the extent to which results can be easily understood and utilized as actionable decision making support, especially in times of public health response to outbreaks. Through these needs assessments, it was determined that while there is great interest in and recognition of the need to utilize disease forecast and modeling analytics, both the capacity to develop as well as the ability (particularly among public health decision makers without a public health background) to appropriately interpret and understand the results of which are significantly lacking. What work is being done in these areas is being done by staff epidemiologists. Through this project, the Center for Forecasting and Outbreak Analytics (CFA) seeks to build on earlier findings to support the capacity of state and territorial public health epidemiologists by: (1) fostering awareness of CFA resources / outputs including training materials and tools and their use , (2) enhance the ability of public health decision makers to appropriately interpret and utilize output from CFA and (3) evaluate the extent to which efforts towards objectives 1 and 2 have been successful - why and why not, obtaining unique perspectives among their population of focus as to how to improve their utility and impact.

CIO: CFA

Division/Branch/Office /Unit:

Office of the Director (OD)

Proposed FY24 Project Funding Total:

$300,000.00

Funding Appropriation:

75-2324-0943

Funding Statutory Authority:

2 year appropriation given to CFA for use in FY 23 and FY 24.

Expected Project Length:

1 Year

Recipient Organizational Capacity:

Successful candidate organizations will have knowledge of and established connections with epidemiologists at State, Tribal, Local and Territorial (STLT) public health entities. More specifically possess the ability to gather substantial and representative feedback (quantitative and qualitative, routine and ad hoc) from STLT partners, and provide such to CFA. Particular emphasis will be sought from organizations that have established workgroups or listservs that focus on disease analytics and/or forecasting. Desired, but not essential, capacity is that organizations reach underserved populations.

Recipient Program Experience:

Successful recipient organizations should have experience in working with epidemiologists within STLT entities, especially those working in infectious disease modeling, to collect assessments or feedback on initiatives or specific products as well as convening workgroups or representative groups to engage in collective such.

Expectations for Collaboration:

It is expected that successful candidate organizations will collaborate with the CDC Center for Forecasting and Outbreak Analytics (CFA) on a routine and ‘as needed’ basis ensuring that the objectives and specific goals of the cooperative agreement are being met.

Expected Subcontractual Work and Criteria:

N/A

General Instructions for Use of Funds:

It is expected that successful candidate organizations will use funds provided via the cooperative agreement to support appropriate staff engagement with CFA, cover ancillary travel and participation costs (e.g. conference registration fees) associated with cooperative agreement objectives or initiatives

Strategic Area: Organizational Capacity and Performance Improvement

Strategic Area Details

Outcomes: Short-term: Increased awareness of best/promising practices and/or tools by populations of focus of CBA services and products;Intermediate: Enhanced skill and ability to support decision-processes, policies, programs, and practices within the strategic areas

Activities: The selected organization recruit and convene a representative (geographic and demographic) sample of STLT epidemiologists and will host routine (e.g.

monthly) calls and foster ad hoc requests from CFA for feedback on CFA products or resources. Providing analyses and aggregated data on feedback that may improve workforce capacity and/or improved utility of CFA products.

Process Measures: By the end of the 6th week of the performance period, the recipient organization will have recruited / identified a representative and substantial group of participants to engage in plan objectives.

After each routine call (e.g. monthly) or adhoc request, within 7 days the recipient organization will forward notes and action items to CFA.

Outputs: Routine notes and action items from routine (e.g. monthly calls)

Baseline assessment of awareness, perceived utility and identification of best features or identified gaps in CFA outputs.

Ongoing feedback that will improve / shape both development and dissemination of CFA outputs. and final report.

Budget Period Outcomes:

Final report summarizing and stratifying feedback and recommendations as well as ’use case’ examples from participants.

Outcome Measures: At least 30% of participants report increased awareness and intended utility of CFA products from initial ./ baseline assessment conducted at beginning of budget period.

Strategic Area: Partnership Development and Engagement

Strategic Area Details

Outcomes: Short-term: Increased awareness of best/promising practices and/or tools by populations of focus of CBA services and products;Intermediate: Increased awareness and understanding of recommended processes, policies, programs, and practices within the strategic areas

Activities: Anticipated activities include:

Recruiting, assembling and ensuring participation of a substantial number of representative (e.g. geographic and demographic diversity) epidemiologists among STLT entities to review and provide input on selected CFA materials including means of promotion / dissemination, construct and clarity for non PH professional decision makers as well as utilization or barriers to such. This group will meet at least once every three months via virtual meeting platforms, then once in person in the 4th quarter of the performance period.

Process Measures: It is expected that the workgroup of epidemiologists assembled by the recipient organization will encompass at least 17 states and territories and as part of each meeting, 50% participation will be achieved with at each participant participating in at least 50% of the meetings and responding to calls for input / feedback.

As part of each meeting, a 30% increase is expected among participants of awareness/ perceived utility and/or use of a CFA product over the baseline established before the first meeting.

Outputs: The successful candidate organization will provide to CFA contact information for participant organizations/ staff as well data and analysis following each quarterly meeting on metrics established by CFA and recipient organization and a final report to include data analysis and recommendations.

Budget Period Outcomes:

All outputs noted above will be delivered to CFA by the end of the budget / performance period.

Outcome Measures: Desired outcomes include achieving at least 30% of participating epidemiologists report increased awareness and understanding of CFA products and 25% of participating epidemiologists reporting intent to utilize CFA products as part of routine or response related activities.

Project Title: Data Modernization to Advance Population-Based Birth Defects Surveillance

Population of Focus: Category B: Workforce Segments in Governmental Public Health Departments

Population of Focus Description:

Informatics Practitioners (Informaticians)

Project Plan Details Project Purpose: This program is to advance data modernization capacity among state and territorial birth defects surveillance programs by bringing together public health, health informatics, and health care professionals, as well as providing training, technical assistance, educational opportunities, and other resources.

Modernization activities can include, but are not limited to business process analysis and requirements development, data system modernization, data management methods, and interoperability with electronic health record systems (EHRs), including electronic case reporting (eCR).

CIO: NCBDDD

Division/Branch/Office /Unit:

Division of Birth Defects and Infant Disorders (DBDID)

Proposed FY24 Project Funding Total:

$150,000.00

Funding Appropriation:

Funding Statutory Authority:

Expected Project Length:

1 Year

Recipient Organizational Capacity:

Organizations with expertise in data modernization such as system advancement, business process analysis, requirements development, and interoperability with EHRs. Organizations should also have capacity to develop and deliver trainings and educational resources appropriate for STLT partners.

Recipient Program Experience:

Demonstrated ability to develop resources, trainings, and tools to assist public health programs with data modernization efforts, facilitate program capability-building meetings and stakeholder engagement to advance knowledge and capacity.

Expectations for Collaboration:

Plan and coordinate with state and territorial departments of health to gather feedback on draft resources for birth defects surveillance program use and to ensure the membership is aware of training and technical assistance opportunities

Expected Subcontractual Work and Criteria:

For any gaps in capacity or experience, the applicant should demonstrate their ability to identify and collaborate with qualified sub-awardees or subcontractors to accomplish project goals.

General Instructions for Use of Funds:

Funds are authorized for general budget categories such as: personnel, fringe benefits, consultants, supplies, travel, equipment, contractual, other, and indirect costs.

Funds may not be used for capital expenditures such as construction and renovations.

Funds may not be used for clinical care.

Funds for conducting conferences and workshops such as registration, travel, per diem, room rental, audio-visual and related expenses are allowed. Funds may not be used for other food and beverage expenses.

Strategic Area: Data Modernization, Informatics, and Information Technology

Outcomes: Short-term: Increased availability of and access to CBA services and products that address the strategic areas;Short-term: Increased awareness of best/promising practices and/or tools by populations of focus of CBA services and products;Short-term: Increased use of CBA services and products by populations of focus;Intermediate: Increased awareness and understanding of recommended processes, policies, programs, and practices within the strategic areas;Intermediate: Enhanced skill and ability to support decision-processes, policies, programs, and practices within the strategic areas;Intermediate:

Increased implementation and sharing of recommended processes, policies, programs, and practices within the strategic areas

Activities: Develop resources and tools to assist birth defects surveillance programs with data modernization efforts, including those supporting system advancement and electronic case reporting (eCR) as an interoperability solution.

Provide training and educational opportunities to assist birth defects surveillance program and affiliated informatics staff to understand and utilize resources and tools to modernize data systems and processes.

Work collaboratively the National Birth Defects Prevention Network (NBDPN), and other partners to assist birth defects surveillance programs with implementation of data modernization strategies.

Process Measures: Draft resources and tools presented to birth defects surveillance program staff for input.

Appropriate training and educational modalities identified.

Birth defects surveillance programs in need of technical assistance to implement data modernization strategies identified.

Outputs: Dissemination of documented data modernization resources and tools Training and educational events conducted Technical assistance for data modernization provided to birth defects surveillance programs

Budget Period Outcomes:

Improved workforce capacity to identify and implement data modernization strategies for birth defects surveillance Improved capacity of data systems to collect and manage birth defects surveillance data

Outcome Measures: At least 1 birth defects surveillance program implementing data modernization strategies to improve data quality and utility.

Project Title: Implementing Automated Audiology Concept Extraction Application to Support Public Health Reporting

Population of Focus: Category B: Workforce Segments in Governmental Public Health Departments

Population of Focus Description:

Public health informaticians in STLT health departments; and public health professionals in STLT health departments working to improve quality, performance, and outcomes of individuals, programs, and organizations by utilizing data science techniques.

Project Plan Details Project Purpose: State Early Hearing Detection and Intervention (EHDI) programs collect and track newborn hearing screening, audiological results, and referrals to intervention, if recommended. In the second step, state EHDI programs rely on audiology providers to report results for infants who did not pass newborn hearing screen or were referred directly to diagnostics. However, under-reporting and delayed reporting of audiological results to state EHDI programs is common for several reasons including 1) reporting audiologic results to EHDI may be voluntary in a state; or 2) lack of or delayed reporting due to a duplicative and time-consuming process.

To address both under/delayed reporting and reporting burden, we propose to support the next phase of a data science project that uses a machine learning (ML) algorithm to extract key concepts from deidentified diagnostic audiology reports. In phase one of the project, the tool to read and extract relevant audiologic information from audiology reports was developed and proof of concept established. The second phase will focus on implementation, evaluation, and consideration for expanded use across EHDI programs. The extracted key elements from the diagnostic reports will be shared in a format that a state’s EHDI information system (EHDI-IS) can identify and extract. The intent is that this technology will save audiologists the burden of dual reporting and has the potential to reduce under/delayed reporting by streamlining collection of surveillance data from audiologists. This, in turn, will enable EHDI programs to more efficiently and completely ascertain data on the early audiologic assessment of infants suspected of being deaf or hard of hearing (D/HH).

CIO: NCBDDD

Division/Branch/Office /Unit:

Division of Human Development and Disability (DHDD)

Proposed FY24 Project Funding Total:

$300,000.00

Funding Appropriation:

75-24-0958

Funding Statutory Authority:

Public Health Service Act, Section 317c (42 U.S.C.)

Expected Project Length:

1 Year

Recipient Organizational Capacity:

The applicant should have access to:

• State and/or territorial programs (minimum 1) that conduct tracking and surveillance on infants who are D/HH

• Data scientists/computer scientists and/or computer software developers with experience in natural language processing and concept extraction, preferably in the healthcare/medical domains

Recipient Program Experience:

The applicant should have demonstrated experience and ability to:

• Work with state and territorial child health programs and clinical providers

• Manage and/or conduct computer software development projects, including requirement analysis, algorithm and user interface design, and testing

• Foster collaborations in a multi-disciplinary setting

• Ability to effectively communicate complex informatics topics

• Analyze results, prepare summary reports, and present results

• Experience evaluating time and cost savings of new ML/IT projects

Expectations for Collaboration:

Plan and coordinate with CDC on project activities, including working with state or territorial programs and clinical providers, developing and testing concept extraction applications, implementation/hosting of application within a state or territory, and analysis of results including time and cost-savings.

Expected Subcontractual Work and Criteria:

Subcontractual work may be needed for this project. Period of performance may include the entire time of this funded work. Funding may be determined by the recipient based on activities conducted by the subcontractor. Activities of subcontractors include enhancements to products (including machine learning models) to improve accuracy in the data flow and implementation of the application within the volunteer program’s data system. Subcontractor should have the experience, skills, and capacity to work with both state EHDI programs and in healthcare settings, understand and utilize data use agreements/data sharing agreements, and have the technical data science and/or informatic skills to improve and implement a ML application.

General Instructions for Use of Funds:

• Funds are authorized for general budget categories such as: personnel, fringe benefits, consultants, supplies, travel, equipment, contractual, other, and indirect costs.

• Funds may not be used for capital expenditures, such as construction and renovations or for clinical care.

• Funds for conferences and workshops such as registration, travel, per diem, room rental, audio-visual and related expenses are allowed.

• Except for travel related per diem expenses of grantee, consultants, contracts, and subcontracts/sub awardees, funds may not be used for other food and beverage expenses.

Strategic Area: Data Modernization, Informatics, and Information Technology

Strategic Area Details

Outcomes: Short-term: Increased availability of and access to CBA services and products that address the strategic areas;Short-term: Increased use of CBA services and products by populations of focus;Intermediate: Increased awareness and understanding of recommended processes, policies, programs, and practices within the strategic areas;Intermediate: Increased implementation and sharing of recommended processes, policies, programs, and practices within the strategic areas

Activities: • Explore the use of trusted third party and/or CDC as host for the application.

• Support one state EHDI program that is establishing use of application.

• Identify and onboard at least one additional state EHDI program to fully integrate the environment for hosting the ML application in their system.

• Sign data use/data sharing agreement(s) with participants, as needed.

• Identify and discuss the key concepts needed for public health reporting with the partner state EHDI program.

• Cross-check and match the key concepts with data fields available on the clinical audiology report.

• Continue to train, test, and update the model using the provided audiology reports as needed to improve model accuracy.

• Support at least two EHDI programs using the ML application in an evaluation of the effectiveness of the application for audiology reporting. This can include evaluating time and cost of implementing and maintaining the application, as well as time and cost savings for both the audiologist(s) and state EHDI program(s).

• Development of documentation for best practices for implementation and sustainment of this application in other state EHDI programs.

Process Measures: • Development of detailed project plan for the course of the funding cycle.

• Maintain support for one state that is establishing use of the application.

• Identification and outreach of at least one additional state EHDI program.

• Refinement and testing of data extraction tools.

• Refinement and testing of concept extraction algorithms.

• Implementation of ML application within a minimum of one state environment .

Outputs: • A stand-alone application for concept extraction from a clinical audiology report.

• An error report on terms or concepts not identified or categorized incorrectly by the application according to review by program SME(s).

• A missing concept report that correctly identified concepts that are missing in the clinical report.

• User feedback log.

• Application source code and corresponding documentation.

• Training materials.

• Evaluation report on implementation processes and time/cost savings to the state EHDI program.

• Findings from exploration of program, trusted third party, and CDC-hosted options for future implementation of this application.

Budget Period Outcomes:

• Apply the latest data/computer science techniques to improve capacity and efficiency of state and/or territory EHDI programs to conduct public health monitoring and surveillance.

• Promote the integration, linkage, and interoperability of data regarding early hearing loss and multiple sources to increase information exchange between clinical care and public health.

Outcome Measures: • Improve data quality through identification of decreased lost-to-documentation for diagnostic evaluation among babies that fail their infant hearing screen.

National baseline is 32.4%.

• Improve timeliness by reducing the amount of time spent by both audiologist and public health staff in reporting diagnostic results. This will be measured by comparing estimated time to completion before and after integration of the application. This outcome measure is program specific.

Project Title: Resource Guide: Getting the Most from Your Jurisdictional EHDI Program

Population of Focus: Category B: Workforce Segments in Governmental Public Health Departments

Population of Focus Description:

Public health program directors, epidemiologists, and informaticians in STLT health departments; and public health professionals in STLT health departments working to improve quality, performance, and outcomes of individuals, programs, and organizations by utilizing data science and evaluation techniques.

Project Plan Details Project Purpose: Jurisdictional Early Hearing Detection and Intervention (EHDI) programs have staff with a variety of backgrounds and are consistently onboarding new staff due to high turnover at the state level. EHDI programs need tools to help define roles and responsibilities in order to be successful. The purpose of this project is to update a previously developed resource guide intended to be a simple “one-stop shop” for everything state-level EHDI staff need to know; it should serve as an orientation for new EHDI Project Directors or a refresher for veteran managers/staff wanting a better understanding of their role in EHDI and the skills needed to be successful at collecting and utilizing EHDI data. The most recent EHDI resource guide was developed in 2017, in which the content aligned with specific activities proposed for a particular funding opportunity. The updated resource guide would be developed as a general, evergreen document that aligns with standard processes related to staff responsibilities and data usage that are a part of jurisdictional EHDI programs.

CIO: NCBDDD

Division/Branch/Office /Unit:

Division of Human Development and Disability (DHDD)

Proposed FY24 Project Funding Total:

$175,000.00

Funding Appropriation:

75-24-0958

Funding Statutory Authority:

Public Health Service Act 317C [42 U.S.C. 247b-4]

Expected Project Length:

1 Year

Recipient Organizational Capacity:

The applicant should be able to conduct an environmental scan of EHDI guidance manuals that may exist either through state program websites or other relevant stakeholder websites. The applicant should be able to engage with jurisdictional EHDI programs to identify essential content. Team member expertise should include communications, plain language writing, project management, evaluation, and the ability to systematically conduct an environmental scan.

Recipient Program Experience:

The applicant should demonstrate experience and the ability to:

• Work with state and territorial child health programs

• Foster collaborations in multi-disciplinary settings

• Manage and/or conduct environmental scans

• Analyze findings/results, prepare summary reports, and present results

• Effectively communicate timelines and progress

Expectations for Collaboration:

Plan and coordinate with CDC on the project activities and personnel, including reaching out to state or territorial EHDI programs to get input on helpful information to have in an EHDI program guidance manual.

Expected Subcontractual Work and Criteria:

General Instructions for Use of Funds:

- Funds are authorized for general budget categories such as: personnel, fringe benefits, consultants, supplies, travel, equipment, contractual, other, and indirect costs.

- Funds may not be used for capital expenditures, such as construction and renovations or for clinical care.

- Funds for conferences and workshops such as registration, travel, per diem, room rental, audio-visual and related expenses are allowed.

- Except for travel related per diem expenses of grantee, consultants, contracts, and subcontracts/sub awardees, funds may not be used for other food and beverage expenses.

Strategic Area: Workforce

Strategic Area Details

Outcomes: Short-term: Increased availability of and access to CBA services and products that address the strategic areas;Intermediate: Increased awareness and understanding of recommended processes, policies, programs, and practices within the strategic areas

Activities: 1. Conduct an environmental scan of EHDI guidance that may currently exist on state/territorial or stakeholder websites.

2. Conduct virtual stakeholder engagement sessions to obtain input on outlined content, draft resource guide, and share final resource guide.

3. Produce a final 508-compliant EHDI site operational document by the end of the project period describing important documents current and new Project Directors and EHDI staff should become familiar with. The document will also include links to key EHDI program materials (e.g., data website, pediatric audiology listings, guidance manual for building effective data and information systems, functional standards with specifications on what EHDI information system should have, etc.) to improve understand of use of EHDI data.

4. Provide two virtual orientation webinars to familiarize EHDI personnel of the content of the manual.

5. Provide final, editable document file(s) to share with jurisdictional EHDI programs.

Process Measures: Development of project plan for the course of the funding cycle.

Number of websites and documents reviewed.

Number of virtual EHDI program engagement sessions held to obtain input on necessary inclusions into the final document.

Development of draft EHDI program resource guide.

Outputs: Delivery of a final document that has been informed by an environmental scan and EHDI stakeholder input. The final document should conform to standards to make it accessible on websites.

Improved access to materials that delineate the mission of EHDI programs and provide program materials and processes for current and new jurisdictional EHDI program staff.

Budget Period Outcomes:

Delivery of a final document that has been informed by an environmental scan and EHDI stakeholder input. The final document should conform to standards to make it accessible on websites.

Improved access to materials that delineate the mission of EHDI programs and provide program materials and processes for current and new jurisdictional EHDI program staff.

Outcome Measures: The recipient will develop a draft project plan by October 1, 2024.

The recipient will conduct an environmental scan by November 30, 2024.

The recipient will convene virtual meetings of at least 10 stakeholders to provide input on the outlined draft of the resource guide by January 31, 2025.

A draft resource guide, informed by an environmental scan and stakeholder input will be provided by April 30, 2025.

Project Title: Implementing disability definitions for syndromic surveillance: informing equitable emergency response

Population of Focus: Category B: Workforce Segments in Governmental Public Health Departments

Population of Focus Description:

Epidemiologists in state, territorial, and local health departments

Project Plan Details Project Purpose: Emergency department (ED) visit data included in the National Syndromic

Surveillance Program’s Electronic Surveillance System for the Early Notification of Community-based Epidemics (NSSP-ESSENCE) are used to guide decision making during emergencies at the local, state, and national level. However, prior to a recent CDC-funded project to develop syndrome definitions to identify emergency department visits by people with disabilities, epidemiologists utilizing these data have not had the option to include people with disabilities in analyses using NSSP-ESSENCE to inform their jurisdiction’s emergency response. These newly developed syndrome definitions can be used for syndromic surveillance as a demographic identifier to disaggregate monitored health outcomes, like suicide or drug overdose, by disability status and type (e.g., hearing, vision, mobility, cognition) among individuals presenting to the ED. The purpose of this project is to build capacity among state, territorial, or local jurisdictions impacted by an emergency in the past year (e.g., oil spill, wildfire, flood, hurricane, etc.) to analyze data included within the NSSP-ESSENCE using the newly created syndromic surveillance definitions to identify emergency department visits by people with disabilities, in collaboration with people with disabilities. These analyses will inform ongoing and future preparedness and response efforts and provide applied examples for other jurisdictions on how to use data from NSSP- ESSENCE in collaboration with people with disabilities to inform a disability-inclusive response.

CIO: NCBDDD

Division/Branch/Office /Unit:

Division of Human Development and Disability (DHDD)

Proposed FY24 Project Funding Total:

$350,000.00

Funding Appropriation:

75-24-0958

Funding Statutory Authority:

Public Health Service Act 317C [42 U.S.C. 247b-4]

Expected Project Length:

1 Year

Recipient Organizational Capacity:

The recipient must have the capacity to 1) work collaboratively with state, territorial, and local epidemiologists, disability partners, and CDC to conduct analyses of data included in NSSP-ESSENCE to inform emergency preparedness, response, and recovery; and 2) ensure meetings and materials are accessible for all participants (e.g., this may include but is not limited to providing materials in advance of meetings and ASL services if needed).

Recipient Program Experience:

The recipient must have demonstrated experience providing technical assistance to state, territorial, and local jurisdictions to analyze emergency department data included within NSSP-ESSENCE. The recipient must also have disability inclusion and emergency preparedness subject-matter expertise that can help inform recommendations for public health action.

Expectations for Collaboration:

The recipient will collaborate with epidemiologists from state, territorial, and/or local jurisdictions, disability-led and/or disability-serving organizations, and CDC staff (Division of Human Development and Disability and the National Syndromic Surveillance Program).

Expected Subcontractual Work and Criteria:

Subaward(s) with state, territorial, and/or local health departments who analyze data included within NSSP-ESSENCE may be used to complete expected outputs. Subawardees should be based on their ability and experience to perform the scope of work described in this project plan. Subawardees should work collaboratively with local disability-led or disability-serving organizations within their jurisdictions on all activities throughout the project period. Recipient may request TAG participant honorariums in the budget narrative for CDC review (e.g., $50/hour per participant).

General Instructions for Use of Funds:

Funds may be used for:

Salaries and wages Fringe benefits Consultant costs Supplies Travel Other categories (meetings) Contractual costs Total indirect costs Total direct costs

Strategic Area: Data Modernization, Informatics, and Information Technology

Strategic Area Details

Outcomes: Short-term: Increased availability of and access to CBA services and products that address the strategic areas;Short-term: Increased awareness of best/promising practices and/or tools by populations of focus of CBA services and products;Short-term: Increased use of CBA services and products by populations of focus;Intermediate: Increased awareness and understanding of recommended processes, policies, programs, and practices within the strategic areas;Intermediate: Enhanced skill and ability to support decision-processes, policies, programs, and practices within the strategic areas;Intermediate:

Increased implementation and sharing of recommended processes, policies, programs, and practices within the strategic areas

Activities: 1) Develop and disseminate a request for proposals;

2) Select and fund 2–3 state, territorial, or local jurisdictions recently impacted by an emergency (e.g., oil spill, wildfire, flood, hurricane, etc.) in the past year to analyze data included within NSSP-ESSENCE using newly created syndromic surveillance definitions to identify emergency department visits by people with disabilities, in close collaboration with local disability-led and disability-serving organizations (e.g., the jurisdiction could compare rates of a monitored outcome per 100,000 ED visits before, during, and after an emergency, by disability status and type to identify groups who are disproportionately impacted);

3) Establish or strengthen partnerships with local disability organizations within the funded jurisdictions to collaborate on all project activities;

4) Host 4–6 virtual monthly learning communities with funded jurisdictions and local disability partners to share best practices and lessons learned throughout the project period;

5) Develop analytic plan(s) and analyze data from NSSP-ESSENCE in collaboration with funded jurisdictions and local disability partners;

6) Identify public health action recommendations for emergency preparedness, response, and recovery based on analytic results;

7) Develop an implementation guide of how the disability definitions can be used during emergencies (i.e., use case examples) informed by the applied experiences of the participating jurisdiction(s), including lessons learned and best practices using the disability definitions; and

8) Disseminate findings and accompanying implementation guide through at least one virtual, recorded publicly available webinar.

Process Measures: • Number of state, territorial, or local jurisdictions with executed contracts

• Number of newly established partnerships between funded jurisdictions and local disability-led and/or disability-serving organizations

• Number of learning community meetings held

• Number of applied examples using the definitions to identify emergency department visits by people with disabilities to inform emergency preparedness, response, and recovery

Outputs: • At least one request for proposals

• At least two executed contracts

• At least two analytic plans (1 per jurisdiction funded)

• At least four summaries from learning community meetings, including best practices and resources shared

• At least one implementation guide summarizing how the disability definitions can be used during emergencies (i.e., use case examples) informed by the applied experiences of the participating jurisdictions

• At least one recorded publicly available webinar to promote use case examples, best practices, and lessons learned included in the implementation guide

Budget Period Outcomes:

Project outcomes include

• Increased understanding of the importance of data identifying people with disabilities to inform emergency preparedness and response among state, territorial, and local epidemiologists;

• Enhanced state, territorial, and local capacity to conduct syndromic surveillance of monitored health outcomes among people with disabilities;

• Increased jurisdictional capacity to develop intervention strategies to reduce morbidity and mortality, promote health equity, and meet the needs of people with disabilities before, during, and after disasters.

Outcome Measures: • At least 75% of webinar participants report increased knowledge of how to identify people with disabilities for emergency and ongoing surveillance efforts.

Project Title: Building Infrastructure for Disability Health Surveillance and Data Use

Departments

Population of Focus Description:

Public health program directors, epidemiologists, and informaticians in STLT health departments; and public health professionals in STLT health departments

Project Plan Details Project Purpose: First, this project will increase the capacity of public health infrastructure to monitor the health and wellbeing of adults with intellectual and developmental disability (IDD) by evaluating the capabilities of multiple service-based data sources (e.g., all payer claims, Medicaid/Medicare, electronic health record data) to identify population cohorts of adults with intellectual and developmental disabilities along with relevant health metrics. Second, it will contribute to the meaningful analysis and use of existing population data to further knowledge and opportunities for policy, systems, and environmental actions to enhance health and wellbeing of people with IDD. Specifically, this applicant will coordinate a community of practice related to Adult IDD Population Health and Wellbeing and provide coordination of a request for proposals (RFPs) to conduct analyses of existing datasets on topics related to disability, health, and the implementation of evidence-based interventions. Third, it will evaluate the health of infants born deaf or hard of hearing (D/HH) through additional RFPs specific to the D/HH population.

CIO: NCBDDD

Division/Branch/Office /Unit:

Division of Human Development and Disability (DHDD)

Proposed FY24 Project Funding Total:

$900,000.00

Funding Appropriation:

75-24-0958

Funding Statutory Authority:

Public Health Service Act 317C [42 U.S.C. 247b-4

Expected Project Length:

1 Year

Recipient Organizational Capacity:

The selected awardee is required to 1) have the ability to convene and facilitate a community of practice among public health science professionals who have current access to administrative data or electronic health record data; 2) have the ability to lead an evaluation of the data systems relevant to adults with intellectual and developmental disabilities (IDD) for surveillance purposes; 3) provide operational and technical support a call for proposals, awards, and completion of secondary analyses. The evaluation include will leading quarterly meetings, interviewing stakeholders, providing technical assistance with evaluating the data systems, and leading a written report within the period of performance. All meetings and presentations should be accessible to people with diverse disabilities.

Recipient Program Experience:

The selected awardee should have experience with 1) evaluating public health surveillance systems, 2) the access and analysis of surveillance, administrative health, and electronic health records data; and 3) providing technical assistance and collaborating with public health science professionals and engaging people with disabilities as a technical assistance group (TAG). They should have some understanding of the current landscape of disability and early hearing detection and intervention measurement, data, and surveillance, and coordination of analytic proposals and products.

The selected awardee should be prepared to collaborate with multiple groups of public health science professionals who have experience with surveillance datasets, administrative datasets (e.g., Medicaid/Medicare, All-payer claims), or electronic health record data, and to provide an evaluation report on the evaluation of existing datasets for ongoing IDD Adult Health and Wellbeing Surveillance. The awardee should expect to convene quarterly calls in a community of practice and discuss the utility of the datasets for disability surveillance as part of an evaluation. The awardee will coordinate on the priority topics for the secondary data call for proposals and on the completion and dissemination of products and facilitate at least 2 webinars to present project results.

Expected Subcontractual Work and Criteria:

Sub-awards are recommended to complete expected outputs during the period of performance. Sub-awardees should be based on their ability and experience to perform the scope of work described in this project plan.

General Instructions for Use of Funds:

Salaries and wages

Honorariums

Fringe benefits

Supplies

Other categories (meetings)

Contractual costs

Total indirect costs

Total direct costs Strategic Area: Data Modernization, Informatics, and Information Technology

Strategic Area Details

Outcomes: Short-term: Increased awareness of best/promising practices and/or tools by populations of focus of CBA services and products;Intermediate: Enhanced skill and ability to support decision-processes, policies, programs, and practices within the strategic areas

Activities: 1.1 As necessary, execute sub-awards and identify and sub-contract public health science professionals (data scientists, epidemiologists, disability experts) who have current access to large administrative (e.g., national Medicaid/Medicare, all-payer claims, linked NCHS-Medicaid data) or electronic health record data (EHR) in a competitive manner.

1.2 Convene three quarterly meetings with the group as a community of practice.

1.3. Identify surveillance evaluation tool and create evaluation Metrics for evaluation include but aren’t limited to 1) prevalence of IDD, 2) health status [measures related to physical health (e.g., chronic conditions, preventive screenings), mental health (e.g., depression, anxiety), and overall well-being], 3) access to care, and 4) social determinants of health and equity measures.

1.4 Provide technical assistance to collaborating public health science professionals to collaboratively evaluate each data system.

1.5 Conduct interviews with collaborating public health science professionals to evaluate their experience with data system as a surveillance system.

1.6 Conduct literature scan (scientific and grey) for administrative and EHR based surveillance systems.

2.1 Coordinate a request for proposals (RFPs) to conduct at least 1 project (funded range $50-$75k) analyses of existing datasets or literature on topics related to developmental disability and health. Priority topics include:

understanding disparities in morbidity and mortality among adults with IDD;

incidence of disability due to post-COVID conditions; examination of differences in disability prevalence estimates based on data source, definition, or other factors; and understanding how disability prevalence estimates from national surveys (e.g., BRFSS, ACS, NHIS) are used for specific policy, eligibility, and services allocation.

3.1 Coordinate an RFP to conduct at least 3 projects (funded range 50k-100k) focused on the health of infants with D/HH. These may include the assessment of early intervention services for children who are D/HH; understanding the ongoing impact of the COVID-19 pandemic on loss to follow-up/loss to documentation, hearing diagnosis and early intervention (EI) enrollment of infants that do not pass hearing screening; understanding cost savings of timely diagnosis and early intervention enrollment for children born D/HH; associations between infant hearing screening, diagnosis, enrollment in EI, and early language outcomes;

environmental scan to identify newborn screening services with integrated data capture systems, and how early hearing data may be included.

Process Measures: 1.1 Two or more subcontracts with different public health science professionals are executed within 45 days of project initiation.

1.2 Initial community of practice meeting occurs within 30 days of executed subcontracts.

2. RFPs released within 30 days of the project initiation

Outputs: 1.1 Evaluation plan that includes an evaluation tool as well as table shells to compare data systems.

1.2 Evaluation report and final presentation. The report should include results from the environmental scan and interviews as well as the results from the subawards.

2.1 Request for proposals with completed project presentation and submission for publication, as appropriate.

Budget Period Outcomes:

1. An evaluation report and final presentation. The report should include results from the environmental scan and interviews as well as a systematic evaluation of data systems’ ability to report about the health of people with intellectual and developmental disabilities and act as the backbone of a future surveillance system.

2. Completed request for proposals and any associated products.

Outcome Measures: 1.1 A draft of the final report

1.2 Responsiveness to collaborator edits.

2. Successfully awarded and executed secondary analyses.

Strategic Area: Partnership Development and Engagement

Strategic Area Details

Outcomes: Short-term: Increased awareness of best/promising practices and/or tools by populations of focus of CBA services and products;Intermediate: Increased awareness and understanding of recommended processes, policies, programs, and practices within the strategic areas

Activities: 1. Identify partners, including a technical assistance group (TAG) comprised of people with disabilities to inform relevant work.

Process Measures: 1. Technical assistance group established within 30 days of the project initiation.

Outputs: 1. Community of Practice facilitated sessions with TAG.

Budget Period Outcomes:

1. Completion of community of practice sessions.

Outcome Measures: 1. Feedback from community of practice participants, including TAG.

Project Title: Increasing evidence-based decision-making about policies that support the health of children with neurodevelopmental disorders.

Population of Focus: Category B: Workforce Segments in Governmental Public Health Departments

Population of Focus Description:

Health Department Legal Epidemiologists

Project Plan Details Project Purpose: This project will leverage policy knowledge, skills, and expertise to increase the use of evidence to inform decision-making about policies to improve children’s behavioral and developmental health in support of:

DHDD Goal 2/Strategy 2.1 (Support the awareness and implementation of impactful interventions inclusive of PSE changes;/Enhance understanding of policy, systems, and environmental (PSE) factors on health and well-being outcomes across interventions). Specific policy areas can include early childhood education and school, Medicaid/CHIP, economic security, parenting supports, and telehealth policies. Focus will be on children with neuro-developmental disorders e.g., Attention Deficit Hyperactivity Disorder, Tourette syndrome, and other persistent tic disorders.

CIO: NCBDDD

Division/Branch/Office /Unit:

Division of Human Development and Disability (DHDD)

Proposed FY24 Project Funding Total:

$300,000.00

Funding Appropriation:

75-24-0958

Funding Statutory Authority:

Section 306 of the Public Health Service Act (42 U.S.C.)

Expected Project Length:

5 Years

Recipient Organizational Capacity:

The applicant should document capacity to access a network of public health attorneys and other experts to support policy description, analysis, and interpretation.

Recipient Program Experience:

The applicant should document expertise in the characterization, tracking, and analysis of laws and policies to improve health outcomes. Specifically, the applicant should be able to conduct systematic and replicable policy scans to support cross-sectional and/or longitudinal policy analysis, experience in supporting statistical analyses to evaluate policy impact, developing issue and policy briefs informed by published literature, and supporting publishing of results in peer-reviewed journals.

Expectations for Collaboration:

The recipient and CDC will collaborate to refine the scope and coding scheme for policy scans, determine the topic and audience for issue and policy briefs, and write articles for submission to peer-reviewed journals.

Expected Subcontractual Work and Criteria:

Applicant may include, but is not required to include, subcontracted work as justified to complete the components of this project.

General Instructions for Use of Funds:

The majority of funds are intended to be allocated to support time and effort by project staff, consultants, and/or subcontractors. Travel or other budget requests within the scope of the umbrella cooperative agreement are allowable with appropriate justification.

Strategic Area: Policy and Programs

Outcomes: Short-term: Increased awareness of best/promising practices and/or tools by populations of focus of CBA services and products;Intermediate: Increased implementation and sharing of recommended processes, policies, programs, and practices within the strategic areas

Activities: · Applicant can propose up to…