Creutzfeldt-Jakob Disease (CJD) Increasing Educational Support for CJD Families and the Nation
Closed Posted
- Opportunity number
- CDC-RFA-CK-25-0144
- Agency
-
Centers for Disease Control and Prevention
Department of Health and Human Services
- Applications due
- Award size
- $75,000 to $100,000
Opportunity facts
- Assistance listings
-
- 93.317 Emerging Infections Programs
- Funding instrument
- Cooperative Agreement
- Category
-
- Health
- Eligible applicants
-
- Independent School Districts
- For Profit Organizations
- Higher Education Inst. (Private)
- Public or Indian Housing Auth.
- State Governments
- County Governments
- Special District Governments
- Small Businesses
- City/Township Governments
- Non-501(c)(3) Nonprofits
- Tribal Governments (Federally Recognized)
- Tribal Organizations (Not Federally Recognized)
- Unrestricted
- 501(c)(3) Nonprofits
- Higher Education Inst. (Public)
- Points of contact
-
- Tracey Ponder tponder@cdc.gov
Opportunity details come from Grants.gov. Updated .
About this opportunity
This Federal Grant Opportunity from the Centers for Disease Control and Prevention (CDC) seeks to provide educational support and resources for families affected by Creutzfeldt-Jakob Disease (CJD), a rare and fatal brain disorder. The awardee will be required to develop and distribute CJD fact sheets, plan and implement a national conference for families and researchers, and maintain a toll-free helpline to educate patients and family members. Key objectives include providing family members with access to CJD experts, facilitating educational opportunities between researchers and families, increasing general awareness about CJD, and promoting the importance of autopsies to identify new prion diseases. Eligible applicants include state/local governments, tribal organizations, nonprofits, educational institutions, and for-profit organizations. Applications are due by March 18, 2025.
The CDC expects to award one cooperative agreement for a 5-year performance period, with total funding of $500,000 ($100,000 per year). This program falls under the Emerging Infections Programs (EIP) Federal Grant Program (CFDA 93.317), which is administered by the CDC's National Center for Emerging and Zoonotic Infectious Diseases.
Synopsis
Creutzfeldt-Jakob disease (CJD) is an incurable brain disorder that occurs with an incidence of one case per million annually. The majority of patients die within six months of illness onset. The disease causes damage to the brain leaving patients completely dependent on their caregivers for the most basic needs of daily living. In 1996, a variant form of CJD emerged in the United Kingdom, which was causally linked to bovine spongiform encephalopathy (BSE). Over 230 variant CJD cases have been identified worldwide, including four cases in the United States whose BSE exposure is believed based on epidemiological evidence to have occurred outside of the United States.This Notice of funding opportunity (NOFO) will help provide the latest information on human prion diseases to families of loved ones affected by these diseases as well as to public health service providers, other health professionals, and groups at highest risk for these diseases. Providing this information in a timely manner will strengthen efforts to more effectively monitor, to better understand and to ultimately reduce the incidence of those forms of prion diseases such as variant CJD that are preventable. It will also strengthen efforts to identify early the emergence of potentially new prion diseases in people such as possible human chronic wasting disease (CWD). In the United States, the ongoing prion disease outbreak among deer and elk called CWD continues to spread.
Files
| File | Type | Posted |
|---|---|---|
| cdc-rfa-ck-25-0144.pdf |
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