Exhibit-B-SCDD-Performance-Measures-1.pdf

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Attached to
Cycle 47 Tribal Health Program Development Grants
Solicitation number
0000032552
Issued by
California

About this file

This document is the June 2016 FINAL Revised Performance Measures for the American Institute on Developmental Disabilities (AIDD) DD Council. It outlines the annual performance measures for Individual and Family Advocacy (IFA) as well as Systems Change (SC). The IFA measures track the number of people with developmental disabilities and their family members who participate in Council-supported activities, and the percent who report increasing their advocacy as a result. The SC measures track the number of Council efforts to transform fragmented approaches into a coordinated and effective system, including the number of policy, procedure, statute, or regulation changes, and the number of promising and/or best practices created and/or supported. The document defines key terms such as policy, procedure, statute, regulation, promising practice, and best practice, and provides detailed sub-measures for tracking and reporting on these systems change activities and outcomes.

The document does not contain information about a specific state or local contract opportunity. It appears to be an internal performance measurement framework for the AIDD DD Council to track and report on its activities and outcomes related to individual/family advocacy and systems change.

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June 2016 FINAL Revised Performance Measures

AIDD DD Council Performance Measures – June 2016

INDIVIDUAL and FAMILY ADVOCACY ANNUAL PERFORMANCE MEASURES

IFA 1: Output Measures1

IFA 1.1 The number of people with developmental disabilities who participated in Council supported activities designed to increase their knowledge of how to take part in decisions that affect their lives, the lives of others, and/or systems

IFA 1.2 The number of family members who participated in Council supported in activities designed to increase their knowledge of how to take part in decisions that affect the family, the lives of others, and/or systems

IFA 2: Outcome Measures2

IFA 2.1 After participation in Council supported activities, the percent of people with developmental disabilities who report increasing their advocacy as a result of Council work.

IFA 2.2 After participation in Council supported activities, the percent of family members who report increasing their advocacy as a result of Council work.

IFA 2: Sub‐outcome measures:

IFA 2 Individual and Family Advocacy Sub‐outcome Measures

IFA 2.3 The percent of people who are better able to say what they want or say what services and supports they want or say what is important to them

IFA 2.4 The percent of people who are participating now in advocacy activities

IFA 2.5 The percent of people who are on cross disability coalitions, policy boards, advisory boards, governing bodies and/or serving in leadership positions.

IFA 3 The percent of people satisfied with a project activity

IFA 3.1 The percent of people with developmental disabilities satisfied with a project activity

IFA 3.2 The percent of family members satisfied with a project activity.

1 **These two measures could be combined to report on the total number of participants but still collected by individuals with developmental disabilities and family members**

2 **These two measures could be combined to report on the total number of participants increasing advocacy but still collected by individuals with developmental disabilities and family members**

SYSTEMS CHANGE ANNUAL PERFORMANCE MEASURES

SC 1: Output Measure

The number of Council efforts to transform fragmented approaches into a coordinated and effective system that assures individuals with developmental disabilities and their families participate in the design of and have access to needed community services, individualized supports, and other forms of assistance that promote self‐ determination, independence, productivity, and integration and inclusion in all facets of community life.

Notes:

• Output measures are numbers that reflect Council efforts. Data could include staff member efforts (activities) as well as sub‐grantee efforts.

• Systems change efforts are intended to be viewed as a continuum and could reflect community systems, statewide systems or one agency; systems from small to most broad.

SC Sub‐output measures

Policy and/or procedure changes

Note: changes could include items created

SC 1.1 The number of policy and/or procedures created or changed.

Note: Data could include items drafted

Definitions:

Policy: A statement of how an organization or entity intends to conduct its services, actions, or business.

Policies provide a set of guiding principles to help with decision making.

Procedure: A description of how each policy will be put into action. Procedures often outline who will do what;

what steps will be taken, and which forms to use.

Policy and/or procedure change: A policy and/or procedure change reflects a course of action that has the potential to create or improve policies and/or procedures regarding services and supports that promote self‐ determination, independence, productivity, and integration and inclusion in all facets of community life.

Change: The act of making or becoming different

Created: To cause to come into being.

Statute or regulation changes

Note: changes could include items created

SC 1.2 The number of statute and/or regulations created or changed

Note: Data could include items drafted

Definitions:

Statute: A law or other enactment made by a legislature and expressed in a formal document.

Regulation: A rule or administrative code issued by governmental agencies at all levels, municipal, county, state, and federal. Regulations are not laws, but have the force of law since they are adopted under authority granted by statutes.

Statute and/or regulation change: A law and/or rule or administrative code that has the potential to improve laws, rules, or administrative codes regarding services, supports, and other assistance that promote self‐ determination, independence, productivity, and integration and inclusion in all facets of community life.

Change: The act of making or becoming different

Created: To cause to come into being.

SC 1.3 The number of promising and/or best practices created and/or supported

SC 1.3.1 The number of promising practices created

SC 1.3.2 The number of promising practices supported through Council activities

SC 1.3.3 The number of best practices created

SC 1.3.4 The number of best practices supported through Council activities

Definitions:

Promising Practice: a practice with an innovative approach that improves upon existing practice and positively impacts the area of practice. The practice should demonstrate a high degree of success and the possibility of replication in other agencies or settings, but has not been tested.

Best Practice: A technique or methodology that, through experience and research, has proven to reliably lead to a desired result.

Created: To cause to come into being.

Supported: Activities funded by the Council as based on the State Plan; Activities planned and funded by the

Council as based on the State Plan.

Training/Education

SC 1.4 The number of people trained or educated through Council systemic change initiatives

Definition:

Trained, or educated: Training is an organized activity designed to give information and/or instructions to improve performance or help attain knowledge or skill; educated means to give information about something. This number would not include general public education (web‐site hits, newspaper, social media, etc.)

Note: This number would reflect “others trained/educated”; it would not include people with DD or family member of people with DD – these numbers would be reported under IFA 1.1 and 1.2

Collaboration

SC 1.5 The number of Council supported systems change activities with organizations actively involved.

SC 2: Outcome Measures

SC 2.1 The number of Council efforts that led to the creation or improvement of best or promising practices, policies, procedures, statute or regulation changes. (sub‐measures 2.1.1; 2.1.3)

Note: 2.1 outcomes would be considered short‐term or immediate.

SC 2.2 The number of Council efforts that were implemented to transform fragmented approaches into a coordinated and effective system that assures individuals with developmental disabilities and their families participate in the design of and have access to needed community services, individualized supports, and other forms of assistance that promote self‐determination, independence, productivity, and integration and inclusion in all facets of community life. (sub‐measures 2.1.2; 2.1.4)

Note: 2.2 outcomes would be considered intermediate or long‐term; a demonstration of what the Council has been working on that has been transformed (result of experience).

Sub‐outcome measures Sub‐outcome Measures

SC 2.1.1 The number of policy, procedure, statute, or regulation changes improved as a result of systems change.

Note: Data could include statewide changes and local or organizational level changes. Improvement could be a result of the creation of, or a change to, a policy, procedure, statute, or regulation.

SC 2.1.2 The number of policy, procedure, statute, or regulation changes implemented

SC 2.1.3 The number of promising and/or best practices improved as a result of systems change activities

SC 2.1.4 The number of promising and/or best practices that were implemented

Definitions

Change: The act of making or becoming different

Created: To cause to come into being.

Implemented: To put into effect, put into action, put into practice, carry out, enact.

Improved: To make or become better, to raise to a more desirable condition, or quality.

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