Recruitment and engagement in care to impact practice enhancement (recipe) for sickle cell disease
Active Project Grant Awarded Last action
- Award ID
- R01HL158807
- Recipient
-
University Of Alabama At Birmingham UEI YND4PLMC9AN7
- Awarding agency
-
National Heart Lung and Blood Institute
National Institutes of Health, Department of Health and Human Services
- Obligated
- $8,925,231
Award facts
- Assistance listing
- 93.837 Cardiovascular Diseases Research
- Completion date 84% complete
- Place of performance
- Birmingham, AL 35233, USA
Award details come from USAspending.gov.
Description
- Abstract
- The recruitment and engagement in care to impact practice enhancement (recipe) project has a goal to reduce the science-to-practice GAP in sickle cell disease (SCD) by identifying individuals who are not receiving guideline based SCD care. Up to 50% of affected adults may not see SCD specialists, which limits the delivery of disease-specific screenings and treatment with disease modifying therapies. Issues are worsened for individuals living in rural regions or with socio-economic challenges known to accentuate health disparities. This team of investigators has been working to address this problem since the inception of the nhlbi-funded sickle cell disease implementation consortium (scdic). In our previous studies, we identified a need to optimize research methodologies to engage individuals in evidence-based SCD care and established foundational terms through a delphi consensus process, for "unaffiliated patients with SCD" and "SCD specialist". The current project, recipe, will advance these efforts to identify and link unaffiliated patients to SCD specialists by applying implementation science research to adapt existing methods used in human immunodeficiency virus (HIV) care. Similar to SCD, individuals with HIV have faced significant healthcare scrutiny causing reciprocal misgivings about healthcare. In this project, we will adapt models for patient identification and engagement in HIV to SCD using a multi-staged, patient-oriented process. We embed this work in the interactive systems framework for dissemination and implementation to ensure high quality implementation and evaluation in each stage of the affiliation process, with emphasis on the readiness of health systems to serve traditionally underserved populations and sustainability of this work in these areas.
Transactions
| Action | Obligated | Date |
|---|---|---|
| Amendment | $1,641,480 | |
| Amendment | $1,693,548 | |
| Amendment | $1,734,926 | |
| Amendment | $1,242,769 | |
| Amendment | $1,306,254 | |
| Original award | $1,306,254 |
Subawards
| Subrecipient | Amount | Awarded |
|---|---|---|
| Arizona Board Of Regents | $40,000 | |
| Cleveland Clinic Lerner College Of Medicine Of Case Western Reserve University | $63,996 | |
| University Of Tennessee | $113,222 | |
| Phoenix Children's Hospital, Inc. | $242,898 | |
| The Trustees Of The University Of Pennsylvania | $316,936 | |
| University Of Texas Health Science Center At Houston | $365,040 | |
| The Regents Of The University Of California. San Francisco | $303,492 | |
| University Of Illinois | $348,006 | |
| Research Triangle Institute | $556,668 | |
| Abraham Wandersman Services LLC | $50,616 | |
| Augusta University Research Institute, Inc. | $176,384 | |
| The Medical University Of South Carolina | $30,848 | |
| The Regents Of The University Of California. San Francisco | $173,009 |
Show all 13
Quick answers
Who received award R01HL158807?
R01HL158807 was awarded to University Of Alabama At Birmingham by National Heart Lung and Blood Institute (National Institutes of Health) on August 15, 2022.
How much is award R01HL158807 worth?
$8,925,231 has been obligated on R01HL158807.
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