Collaborative development of ethical report-back guidelines for householdexposure research
Active Project Grant Awarded Last action
- Award ID
- R01ES036237
- Recipient
-
University Of Rochester UEI F27KDXZMF9Y8
- Awarding agency
-
National Institute of Environmental Health Sciences
National Institutes of Health, Department of Health and Human Services
- Obligated
- $923,833
Award facts
- Assistance listing
- 93.310 Trans-NIH Research Support
- Completion date 60% complete
- Funding agency
- Office of the Director National Institutes of Health, Department of Health and Human Services
- Place of performance
- Rochester, NY 14642, USA
Award details come from USAspending.gov.
Description
- Abstract
- Home-based exposures and poor housing quality contribute to health inequities (e.g., asthma, lead, reproductive health etc.) and are a driving force behind many environmental injustices. Household exposure research can inform solutions to these urgent problems. Responsible report-back of individual-level research results (RBRR) from household exposure studies is essential to promote changes in behavior, housing provider practices, community action, and policies to improve health. While high level report-back principles have been developed for environmental health research, these do not provide specific guidance on the unique ethical challenges of household exposure research. RBRR for household exposure studies raises a number of ethically contentious issues related to the actionability of results, participants' housing status (e.g., income level, owner/renter, public/private housing), and the interests of third parties (including family members, neighbors, health professionals, landlords and community leaders), among others. This project aims to promote health equity and improve communication by developing guidelines for RBRR for household exposure studies in ways that respect participant preferences and inform appropriate action. We build on a longstanding community partnership with rochester energy efficiency and weatherization (RENEW) and actively involve a stakeholder advisory board that represents the diverse perspectives of community groups, housing providers, irbs, public health professionals and others who may be affected by RBRR. We integrate prior report back studies by recruiting participants from several past housing exposure research studies, including ROC home, to provide formative input to aim 2. Successful completion of this project will result in: (aim 1) a philosophically and empirically-informed typology of the key ethical questions faced by researchers during RBRR of household exposure studies; (aim 2) a tool for eliciting participants' preferences for RBRR in household exposure research; and (aim 3) decision-support guidelines to help research teams return individual results responsibly. Our collaborative approach will use a rigorous transdisciplinary framework to fill a crucial GAP in report-back guidance for household exposure research and will serve as a model for future research on report-back of environmental and non-genomic research results.
Transactions
| Action | Obligated | Date |
|---|---|---|
| Amendment | $100,000 | |
| Amendment | $179,778 | |
| Amendment | $0 | |
| Amendment | $0 | |
| Amendment | $0 | |
| Amendment | $0 | |
| Amendment | $0 | |
| Amendment | $0 | |
| Amendment | $0 | |
| Amendment | $214,685 | |
| Amendment | $214,685 | |
| Original award | $214,685 |
Show all 12
Subawards
| Subrecipient | Amount | Awarded |
|---|---|---|
| Silent Spring Institute, Inc. | $42,237 | |
| President And Fellows Of Harvard College | $61,809 | |
| National Center For Healthy Housing Inc. | $56,026 |
Quick answers
Who received award R01ES036237?
R01ES036237 was awarded to University Of Rochester by National Institute of Environmental Health Sciences (National Institutes of Health) on June 11, 2024.
How much is award R01ES036237 worth?
$923,833 has been obligated on R01ES036237.
Which agency awarded R01ES036237?
National Institute of Environmental Health Sciences (National Institutes of Health) awarded R01ES036237, with funding from Office of the Director (National Institutes of Health).
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