The Amyotrophic Lateral Sclerosis Association
Arlington, VA Doing business as The Als Association
- UEI
- KMHZW7EM1997
- CAGE
- 4SX84
- Primary NAICS
- 813212 Voluntary Health Organizations
- SAM.gov registration
- Active through
Company facts
- FY2025 rankings
- Self-certified in SAM.gov
- Entity structure
- Corporate Entity (Tax Exempt)
- SAM.gov registration date
- Physical address
- 1300 Wilson Blvd #600, Arlington, VA 22209, USA
- Website
- als.org
- Founded
- 1985
- Employees
- 251-1K
- Estimated annual revenue
- $50M-$100M
- Industry
-
- Health Care
- Health Care Equipment & Services
- Health Care Providers & Services
- Health & Wellness
- SIC code
- 83 Social Services
- Profiles
Registration and certifications come from SAM.gov and the SBA; company details from public web sources. Updated .
Contract obligations by fiscal year
| Fiscal year | Obligated |
|---|---|
| FY2027 To date | $0 |
| FY2026 | $124,324 |
| FY2025 | $85,573 |
| FY2024 | $406,097 |
| FY2023 | $714,914 |
Top agencies by obligations
| Rank | Agency | Obligated, FY2026–FY2027 | Share |
|---|---|---|---|
| 1 | Department of Health and Human Services | $124,324 |
Contract awards
| Award | Agency | Obligated | Awarded |
|---|---|---|---|
| ALS registry expansion EO 14398 | CDC Pittsburgh | $475,049 | |
| National ALS registry communications and outreach | CDC Pittsburgh | $1,786,114 | |
| For other functions national ALS registry communications and outreach | CDC Pittsburgh | $1,932,543 | |
| Education and outreach for the national ALS registry | CDC Pittsburgh | $2,063,338 |
Grant awards
Grant subawards
| Prime recipient | Prime award | Amount | Awarded |
|---|---|---|---|
| A New Jersey Nonprofit Corporation Christopher Reeve Foundation | 90PRRC0006 | $40,000 | |
| A New Jersey Nonprofit Corporation Christopher Reeve Foundation | 90PRRC0006 | $30,000 | |
| A New Jersey Nonprofit Corporation Christopher Reeve Foundation | 90PRRC0006 | $39,975 | |
| A New Jersey Nonprofit Corporation Christopher Reeve Foundation | 90PRRC0006 | $30,000 | |
| A New Jersey Nonprofit Corporation Christopher Reeve Foundation | 90PRRC0006 | $30,000 |
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About the company
The Amyotrophic Lateral Sclerosis Association, doing business as The ALS Association, is a tax-exempt nonprofit organization based in Arlington, Virginia, that functions as a prime recipient of federal grants and a prime contractor on federal service awards focused on ALS patient support, disease registry expansion, and durable medical equipment access. The organization operates entirely outside set-aside categories and does not hold parent contract vehicles; recent work anchors to direct-award grants from the Department of Health and Human Services and a purchase-order contract with CDC for registry support.
The ALS Association's federal footprint concentrates within HHS and its subagencies. The top four customer agencies account for 92% of recent awards, all within HHS: the Administration for Community Living (5 awards), the Centers for Disease Control and Prevention Pittsburgh (4 awards, $8.5 million combined potential value), the Health Resources and Services Administration (1 award), and the National Institutes of Health (1 award). The CDC award dominates the potential-value ranking at $8.5 million.
The organization's prime work includes a $2.59 million CDC purchase order awarded September 28, 2026, running through September 27, 2031, for ALS Registry Expansion under Executive Order 14398, encompassing communications, outreach, data collection, and patient assistance programs focused on amyotrophic lateral sclerosis. The organization also received a congressionally directed spending construction grant from the Healthcare Systems Bureau (award date September 30, 2024, completion September 29, 2027) to establish durable medical equipment loan lockers in Alaska for people with ALS. As a sub-recipient, the ALS Association receives federal funding flowing through the Christopher Reeve Foundation across five sub-awards covering virtual home modification and safety assessment programs for rural ALS populations across eleven Midwest states, assistive technology and augmentative alternative communication programs in multiple states, equipment-provision projects in West Virginia and Kentucky, community care and caregiver support services, and assistive technology loan programs for Florida residents with ALS diagnoses.
Activity has remained sparse and episodic: one award in 2021, two each in 2023, 2024, and 2025, and one in 2026, with only one award facing ultimate completion inside the next twenty-four months. SCI-reportable prime-contract invoicing across the organization totaled $571 thousand over FY2022–FY2025, with the largest single-year invoicing of $351 thousand and 18.3 FTEs in FY2024; SCI activity shows no sub-hours engagement. Government-paid hourly rates on SCI-reportable contracts ran a median of $63.56 per hour, with senior labor pricing through $107.01 per hour. The organization's federal engagement is mission-driven and grant-dominated, with service-contract activity serving as a secondary channel; the 58% prime-to-42% sub split reflects the organization's role as both a direct federal grantee and a sub-recipient flowing funds from larger foundations and federal intermediaries.
Quick answers
Is The Amyotrophic Lateral Sclerosis Association registered in SAM.gov?
Yes. The Amyotrophic Lateral Sclerosis Association's SAM.gov registration is active through October 22, 2027.
What is The Amyotrophic Lateral Sclerosis Association's CAGE code?
The Amyotrophic Lateral Sclerosis Association's CAGE code is 4SX84, and its Unique Entity ID (UEI) is KMHZW7EM1997.
How much has The Amyotrophic Lateral Sclerosis Association received in federal contracts?
Federal contracts obligated $85,573 to The Amyotrophic Lateral Sclerosis Association in fiscal year 2025 and $1,330,908 in fiscal years 2023 through 2027.
How does The Amyotrophic Lateral Sclerosis Association rank among federal contractors?
The Amyotrophic Lateral Sclerosis Association ranked #93 in NAICS 813 in FY2025.
What is The Amyotrophic Lateral Sclerosis Association's most recent federal award?
The Amyotrophic Lateral Sclerosis Association's most recent federal contract award is ALS registry expansion EO 14398 (75D30126P21712), from CDC Pittsburgh, on September 28, 2026.
On GovTribe
See The Amyotrophic Lateral Sclerosis Association's full federal record
- Federal contract awards
- Federal grant awards
- Funding analysis by agency, NAICS and set-aside
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