SDY Registry Workplan Template 01.26.15.pdf

PDF 297 KB Posted

Attached to
Sudden Death in the Young (SDY) Registry
Opportunity number
CDC-RFA-DP14-140302CONT15
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WORK PLAN

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<State Name> SDY Registry Work Plan Template

SDY Case Registry 2014

Goals Objectives Activity to Reduce Barrier

Steps to Accomplish Activity Status Update

IDENTIFY

Identify all resident SDY cases for autopsy protocol within 24 hours

Find 100% of all resident SDY cases (case ascertainment)

Identify SDY Cases within 24 hours of death (timeliness)

Identify all SDY cases for child death review within 30 days of death

Find 100% of all resident SDY cases (case ascertainment)

Identify SDY Cases within 30 days of death

CONSENT AND BIOREPOSITORY

Obtain consent on all SDY cases

Completed consent form from family of 100% of cases

Obtain consent in a timely manner determined by your state’s process

Send samples to the biorepository

Send 100% of SDY case samples to the biorepository

Send all samples to the biorepository within one week.

REVIEW

Review all SDY cases for child death review within 90 days of identification

Have all data sources available for the review (data completeness)

Have data available for review within 90 days of identification (timeliness)

Review all SDY cases for advanced review within 90 days of review by the child death review team

Have all data sources available for the review (data completeness)

Have data available for review within 90 days of identification (timeliness)

ENTER

Enter all SDY case information within 30 days of review

All SDY case information is entered (data completeness)

Enter all data within 30 days of review (timeliness)

CLEAN

Clean all SDY cases within 120 days of data entry

‘Clean’ all SDY cases (data completeness)

Clean cases within 120 days of data entry

ANALYZE

Analyze SDY Data quarterly

Analyze your data for internal audiences

Analyze your data for external audiences

DISSEMINATE

Disseminate data

To internal audiences (QA)

To external audiences

PREVENT

Prevent SDY deaths Use SDY data to improve investigations, including death scene investigation and autopsy protocols and CDR Process and Systems

Use SDY data to inform prevention strategies to prevent similar deaths

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