Improving participation in pulmonary rehabilitation through peer-support and storytelling

Active Project Grant Awarded Last action

Award ID
R33HL157847
Recipient
Awarding agency
Obligated
$8,515,142

Award facts

Assistance listing
93.837 Cardiovascular Diseases Research
Completion date 83% complete
Originally
Place of performance
Springfield, MA 01199, USA

Award details come from USAspending.gov.

Description

As the agency reported it.

Abstract
Exacerbations of chronic obstructive pulmonary disease (copd) lead to roughly 1.5 million ED visits and 700,000 hospitalizations annually. Recovery is slow, and accompanied by high levels of acute care utilization and mortality. Pulmonary rehabilitation (PR) is a structured program of exercise and self-management support that has been shown to relieve dyspnea and improve quality of life. Clinical guidelines recommend PR for patients with stable copd and after an exacerbation. Unfortunately, even when referred by physicians, our research has shown that few patients who might benefit from PR ever begin treatment. The primary goal of this project is to identify effective strategies for promoting and sustaining participation in PR. Peer support involves pairing a patient with a trained peer from a similar background, and facing similar health challenges, who has completed PR. There is a growing body of evidence demonstrating the feasibility, acceptability, and effectiveness of telephonic peer support for chronic disease management. Narrative interventions, or `storytelling', are novel approaches for changing attitudes and behaviors of patients that involve creating and disseminating videos narrated by individuals with lived experience with the same condition or facing the same treatment. Storytelling interventions have been shown to help patients achieve better blood pressure control, and storytelling is being studied in a variety of other clinical contexts. In the R61 phase, we will recruit and train a cohort of peer coaches in behavior change techniques, and will recruit a diverse group of storytellers, capture their narratives on video, and create a library of 6-8 powerful stories. We will finalize our protocol, trial infrastructure, and pilot our recruitment strategy. During the R33 phase, we will recruit 305 adults treated for exacerbation of copd, and randomize them to 1) enhanced "usual care" (EUC); 2) EUC + storytelling; or 3) EUC + peer support. We will evaluate the effectiveness of each strategy compared to EUC, and to each other, at promoting participation in PR at 6 months. Using a mixed-methods approach, we will evaluate intervention acceptability, sustainability, and cost, from the perspectives of the patients and peer coaches as well as PR program staff and hospital leadership. We will use these findings to refine the strategies and to disseminate an implementation package that will enable other PR programs to adopt these approaches. This project engages key stakeholders in study conceptualization, execution, and dissemination, and is responsive to the nhlbi/CDC copd national action plan that calls for the development of strategies to increase the number of americans that benefit from PR.

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Subawards

Subrecipient Amount Awarded
Regents Of The University Of Michigan Dr. Michele Heisler, MD, MPA is a professor of Internal Medicine at the University Of Michigan School Of Medicine, the associate director of the medical… $217,226
Regents Of The University Of Minnesota Amendment 1 increasing total to over 30K through 08/31/2026. $38,900
Copd Foundation, Inc. The COPD Foundation will be instrumental in connecting the research team to potential storytellers and coaches through COPD360social, the COPD… $95,183
Regents Of The University Of Michigan Improving Participation in Pulmonary Rehabilitation through Peer-Support and Storytelling $217,226
University Of Massachusetts Medical School Improving Participation in Pulmonary Rehabiliation through Peer-Support and Storytelling. Subaward with Dr. Jeroan Allison at UMass. $371,404
Berkshire Healthcare Systems, Inc. We are establishing a new subaward with the Berkshire Medical Center in Y3 to include David Oelberg, pulmonologist as the site investigator and have extensive… $62,182

Quick answers

Who received award R33HL157847?

R33HL157847 was awarded to Baystate Medical Center, Inc. by National Heart Lung and Blood Institute (National Institutes of Health) on September 1, 2022.

How much is award R33HL157847 worth?

$8,515,142 has been obligated on R33HL157847.

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