Increasing engagement in patient reported outcome measurement to address breast cancer care disparities using health information technology in community cancer settings

Ended Project Grant Awarded Last action

Award ID
R01CA280619
Recipient
Awarding agency
Obligated
$6,537,472

Award facts

Assistance listing
93.393 Cancer Cause and Prevention Research
Completion date
Place of performance
Massachusetts, USA

Award details come from USAspending.gov.

Description

Abstract
Major disparities in breast cancer-related outcomes have been widely documented across the cancer care continuum, with black patients experiencing higher mortality and decreased quality of life (QOL) compared to white patients. Despite compelling evidence that routine patient-reported outcome (pro) measurement can improve outcomes and patient experiences in oncology, pro reporting remains low among black patients and within the community cancer care (CCC) setting where they often receive care. The overall goal of this proposed study is to increase black breast cancer patient engagement in pro reporting by establishing flexible and contextually aligned HIT-assisted pro implementation models in cccs serving a high proportion of black patients. Completing this work will set the stage to increase routine use of pros in clinical care to improve health outcomes and reduce disparities among black patients. In partnership with the association of community cancer centers (accc), we will develop models for successful implementation of pro reporting in five cccs in the accc network that serve a high proportion of black cancer patients (boston medical center, boston, MA; baptist hospital, memphis TN; brooklyn methodist, brooklyn NY; university of maryland, baltimore, MD; luminis health, lanham, MD). The HIT platform for this study will be improve, an epic- integrated pro platform with automated feedback and resources (AFR) centered around the preferences, needs and values of black patients. In line with the priorities of the NCI and nimhd, we will (aim 1) identify challenges, barriers, and enablers to HIT-assisted pro data collection among black breast cancer patients receiving care in cccs and develop pro implementation models that address these factors; (aim 2) conduct a phased implementation of the pro data collection models in five cccs using pdsa cycles to refine models and the RE-aim framework to evaluate success; and (aim 3) explore the potential of detecting disparities in outcomes based on pro data used in clinical care to inform future quality improvement efforts. Our expected outcomes are generalizable knowledge of the factors that trigger or deter black breast cancer patient engagement, and models with training materials and tools for feasible, pragmatic, and sustainable pro program implementation across the accc network. More than 80% of cancer patients nationwide receive their care at cccs, and approximately 65% of the nation's cancer patients are treated by a member of the accc network. The completion of this foundational work, with broad dissemination of lessons learned through the accc and beyond, will unlock the benefits of pro reporting to historically underserved patients and advance equitable cancer care. This work will also support a continued program of research to expand implementation and evaluation of pro programs among other diverse patient populations in oncology, determine the added benefit of AFR, and further the use of pro data for quality improvement.

Transactions

Action Obligated Date
Amendment $0
Amendment Increasing engagement in patient reported outcome measurement to improve breast cancer care using health information technology in community cancer settings -… $1,346,704
Amendment $1,346,704
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Amendment Increasing engagement in patient reported outcome measurement to improve breast cancer care using health information technology in community cancer settings -… $0
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Amendment $817,746
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Original award $817,746
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Subawards

Subrecipient Amount Awarded
President And Fellows Of Harvard College As Co-Investigator, Dr. Emmons will use her expertise in implementation to offer key perspectives in development, data collection, and how to improve patient… $32,242
Association Of Community Cancer Centers ACCC is a powerful community of more than 28,000 multidisciplinary practitioners and 2,100 cancer programs and practices nationwide. Founded in 1974, ACCC… $56,549
Luminis Health Research Institute Inc. The Luminis Health Research Institute, Inc. was formally established as a not-for-profit research organization in 2008 to encourage, support, and facilitate… $53,640
Boston Medical Center Corporation Boston Medical Center is committed to providing continued support throughout the length of this important and timely project. In year one, we will facilitate… $138,460
Weill Medical College Of Cornell University Facilitate recruitment of participants for semi-structed interviews and focus groups with patients and providers and will support project team site visits to… $114,494
Baptist Memorial Hospital-Tipton In year one, BCC will work with BWH to obtain IRB approval prior to initiating research. BCC will support collaboration between HIT and EPIC teams as well as… $86,537
University Of Maryland, Baltimore The University of Maryland, Baltimore will facilitate recruitment of participants for semi-structured interviews and focus groups with patients and providers,… $122,975
President And Fellows Of Harvard College As Co-Investigator, Dr. Emmons will use her expertise in implementation to offer key perspectives in development, data collection, and how to improve patient… $41,712
University Of Maryland, Baltimore The University of Maryland, Baltimore is committed to providing continued support throughout the length of this important and timely project. In years one and… $54,060
Baptist Memorial Hospital-Tipton Baptist Cancer Center is part of the Baptist Memorial Health Care Corporation. The Baptist Cancer Center(BCC) includes 24 outpatient oncology clinics, 8… $64,860
Association Of Community Cancer Centers ACCC is a powerful community of more than 27,000 multidisciplinary practitioners and 2,100 cancer programs and practices nationwide. Founded in 1974, ACCC… $66,790
Weill Medical College Of Cornell University Brooklyn Methodist Hospital is committed to providing continued support throughout the length of this important and timely project. In year one through two,… $81,765
Boston Medical Center Corporation Boston Medical Center is committed to providing continued support throughout the length of this important and timely project. In year one, we will facilitate… $111,704
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Quick answers

Who received award R01CA280619?

R01CA280619 was awarded to Brigham & Womens Hospital Inc. by National Cancer Institute (National Institutes of Health) on September 21, 2023.

How much is award R01CA280619 worth?

$6,537,472 has been obligated on R01CA280619.

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