Family professional partnership/cshcn - BVF is applying to virgin islands (VI) F2FHIC program for $96,750 in funding from the US department of health and human services mchb

Problem/need: VI's children's population of 87,146, includes 3,554 (24.52%) of children have special healthcare needs (cyshcn) with only 11% stated they receive care in a "well-functional system". Sixty-three (63%) of cyshcns stated they did not have medical home. Within the last year, 20% of cyshcns did not receive any healthcare with 67% stating they did not receive the necessary transition services to adult healthcare. Whose parents spoke a language other than english, having a higher rate of inadequate coverage. The VI has 18.9% children without insurance with 12.89% under the age of 5; this rate is 3 times the US rate (7.5%). Regarding language spoke at home, 75% spoke english and the remainder were spanish, french/patois/creole. In some households, the parents only communicate in their home language. Goals & objectives: goal 1:improve the participation of diverse families of cyshcn as partners in decision-making at all levels; by 2027, increase by 10% the # of families of cyshcn and professionals who have received information, education, and/or training; the # of cyshcn and their families from underrepresented and diverse communities trained to partner at all levels of shared decision-making; and the # and type of state agencies/programs and cbos assisted in providing services/information to families of cyshcn. Goal 2: assist in improving VI performance on the six core outcomes for cyshcn and their families for families engaged in BVF's F2F activities, predominately through "birth-to-career" not-for-profit coalition members, and program partners to provide family and professional training and support across the six core outcomes, and working intensively with 40 practices to improve family-centered care and medical homeness. Methodology: program implementation will include conducted with the F2F program director (.1 FTE), one 1.0 FTE and one .5 FTE with territory-wide F2F program coordinators (african-caribbean), who will provide information, training and support to families, health professionals, and community partners, conduct community outreach, and coordinate access to F2FHIC health information centers. The program will also connect families to other F2F services through BVF or directly with BVF and coalition and F2FHIC partners, healthcare providers for activities, projects and services. This partnership includes federally-funded and not-for-profit organizations, through collaborate efforts, specifically includes families with cyshcns and extends the project reach and effective in geographic areas separated by water. Coordination: the F2F will connect families through the F2F program coordinators who will be stationed at BVF telehealth centers with one center that will be full-functions family resource center that will also be utilized by program partners. BVF's partnerships with VI's child-serving state agencies will ensure coordination to complement state agencies' efforts to provide services. This includes the disability rights center of the VI, the VI developmental disabilities council, the emerging VI FAMILY2FAMILY network, MCH, VI department of health, the lion's club, UVI's school of education, experts will ensure incorporation of "best practices." evaluation: over five years, over 500 families, youth, and professionals will be trained; over 3,000 receives information and assistance (250 telephone; 1,250 in-person/virtual intensive; and 3,750 website visits); 200 families will receive in-person family support; 5 practices will participate in medical home or screening trainings;100 parents will be trained as BVF as F2FHIC navigators that participate in systems change activities. 80% of assisted families will report that the information and support they receive is relevant, of high quality, and useful; 60% will report greater confidence