Cooperative Agreement U01DD001268

This Cooperative Agreement award from the Centers for Disease Control and Prevention's (CDC) Disabilities Prevention program (CFDA 93.184) provides $680,000.00 to the Regents of the University of Minnesota for the "Surveillance of Spina Bifida Across the Lifespan" project. The award period runs from September 1, 2024 to August 31, 2029. As a sub-awardee, Gillette Children's Specialty Healthcare in St. Paul, Minnesota will participate in this project focused on national spina bifida...

This Project Grant award from the National Heart, Lung, and Blood Institute (NHLBI), under the Cardiovascular Diseases Research (CFDA 93.837) program, aims to establish patient-reported outcome measures to refine risk stratification and identify barriers to post-discharge specialty care for preterm infants with bronchopulmonary dysplasia (BPD). The $586,021 award to The Medical College of Wisconsin, Inc. will leverage mobile health strategies to recruit at least 750 infants from 15 sites in...

This Project Grant award from the Agency for Healthcare Research and Quality (AHRQ) under the Research on Healthcare Costs, Quality and Outcomes (CFDA 93.226) program provides $800,000 in funding to the University of Wisconsin-Madison to evaluate the impact of the "Bedside Notes" intervention on improving parent access to clinical notes and parent-reported outcomes for hospitalized children. The study will conduct a randomized controlled trial across 3 sites, with parents randomized to...

The National Institute of Child Health and Human Development (NICHD) awarded a $250,300 Project Grant (CFDA 93.865 - Child Health and Human Development Extramural Research) to Children's Mercy Hospital to conduct a Phase I clinical study investigating the use of inhaled ciclesonide, a synthetic glucocorticoid, for preventing bronchopulmonary dysplasia (BPD) in preterm infants born before 30 weeks gestation. The study aims to determine the maximum tolerable dose of inhaled ciclesonide that does...

This National Institute of Child Health and Human Development (NICHD) Small Business Innovation Research (SBIR) Phase I award provides $306,869 to Kate Allyn Prosthetic Research, LLC to develop a novel pediatric prosthetic foot-ankle system designed for children's active play and diverse activities. The goal is to create a prosthetic foot that can adapt to uneven terrain and provide the ankle range of motion needed for dynamic movements like hopscotch. The project team previously developed a...

This Project Grant award from the National Center for Advancing Translational Sciences (CFDA 93.350) provides $159,103 to investigate the experiences of parents seeking emergency care for their injured children with special healthcare needs. The study will engage at least 35 family caregivers to gather qualitative data on factors contributing to poor care quality and hospital complications for this population. The project aims to elucidate the mechanisms behind adverse outcomes in injured...

This Cooperative Agreement award, titled "BMT CORE - PEDIATRIC TRANSPLANTATION AND CELLULAR THERAPY CONSORTIUM (PTCTC): PROVIDING CLINICAL TRIAL ACCESS FOR CHILDREN WITH LIFE THREATENING DISEASES", is funded by the National Heart Lung and Blood Institute (NHLBI) under the Cardiovascular Diseases Research grant program (CFDA 93.837). The $184,489 award to the National Marrow Donor Program (doing business as Be The Match), a non-profit organization, aims to support a pediatric clinical...

This Cooperative Agreement award, with a total funding amount of $1,072,951, was granted by the National Institute of Allergy and Infectious Diseases (NIAID) under the Allergy and Infectious Diseases Research program (CFDA 93.855). The purpose of the award is to conduct a randomized clinical trial evaluating the efficacy and safety of low-dose versus moderate-dose busulfan conditioning regimens for hematopoietic cell transplantation in infants with severe combined immunodeficiency (SCID) due...

This Project Grant award from the National Institute of Child Health and Human Development (CFDA 93.865 - Child Health and Human Development Extramural Research) provides $244,696 to The Children's Hospital Corporation (doing business as Boston Children's Hospital) to gain understanding on how to best implement social risk screening and referral programs across different types of pediatric hospitals in the United States. The project aims to: 1) survey and interview clinical leaders from a...

The Department of Defense's Defense Health Agency awarded a $3,188,604 Project Grant titled "USE OF HIGH-THROUGHPUT SEQUENCING OF THE IMMUNOGLOBULIN LOCI FOR REFINED RISK STRATIFICATION IN PEDIATRIC B-ALL" to Seattle Children's Hospital, doing business as Seattle Children's Research Institute. This grant, funded through the Military Medical Research and Development (CFDA 12.420) program, supports biomedical research related to military medicine, with a focus on cancer, neurological...