Appendix L - Family Support Data Collection Requirements.pdf

APPENDIX L

Family Support Data Collection Requirements

FAMILY SUPPORT PROGRAMS

FAMILY SUPPORT DATA COLLECTION REQUIREMENTS

All Family Support programs funded by the Office of Child development and Early Learning will be required to collect demographic information and performance measure data for all Family/Caregiver/Child participants. Additional information is available on the Family Support website’s data page: https://www.pa-home-visiting.org, or information may be found on Form 1 (demographics) and Form 2 (performance measures) using the following website:

https://mchb.hrsa.gov/programs-impact/programs/home-visiting/miechv-data-continuous-quality-improvement.

I. Demographics

D-1. Family Demographics. Previously called “Household” Demographics. Collected at enrollment and updated between June 1-30 and between September 1-30 of each year. All entries are required of all programs except entry d (Household Disability Benefits), which is optional:

a. Family (Case) Identifier

b. Total Number of People in the Household

c. Annual Household Income

d. Household Disability Benefits

e. Users of Tobacco Products

f. Low Student Achievement (of any Caregiver or Child in Home)

g. Child with Developmental Delays or Disabilities (any Child in Home)

h. Family Member is Serving, or Formally Served, in the US Armed Forces (any

Family Member Living in the Home)

i. History of Child Abuse or Neglect or Interactions with Child Welfare Services (any

Caregiver or Child in the Home)

j. Primary Referral Source for Family

D-2. Enrollment: Caregiver. Collected at initial enrollment. All entries are required of all programs except entry b (Middle Name), which is optional, and entries j-k, which apply only to Nurse-Family Partnership programs:

a. First Name

b. Middle Name

c. Last Name

d. Caregiver (Client) Identifier

e. EBHV Program

f. Family Support Programs

g. Program Type (Funding)

h. Date of Enrollment

i. NFPx Multips Client

D-3. Demographics: Caregiver. Collected at enrollment or within 15 days of enrollment.

Updated between June 1-30 and between September 1-30 of each year. Updated by the 10th of the next month if notified of a change. All entries are required of all programs:

a. Address

b. Birth Date

c. Gender https://www.pa-home-visiting.org/ https://mchb.hrsa.gov/programs-impact/programs/home-visiting/miechv-data-continuous-quality-improvement https://mchb.hrsa.gov/programs-impact/programs/home-visiting/miechv-data-continuous-quality-improvement

d. Enrolled Prenatally

e. Pregnancy Status

f. If Pregnant, Number of Children Expected from Current Pregnancy (used to calculate enrollment)

g. If Pregnant, Estimated Date of Delivery

h. History of Substance Abuse

i. Current Substance Use / Needs Substance Abuse Treatment

j. Self-Identified Disability

k. Plans of Safe Care

l. Race

m. Ethnicity

n. Legal Marital Status

o. Educational Attainment

p. Educational Status

q. Employment Status

r. Housing Status

s. Health Insurance Status

t. Measure 15: Caregiver Education (Only on Update)

u. Update: Caregiver

1. Question: Are there any changes to demographics for the Caregiver (6/30) and (9/30)? Yes/No.

2. Reason for Exit

D-4. Exit: Caregiver. Collected when exited from all Programs in the system. All entries are required of all programs:

a. Exit

b. Date of Exit

c. Reason for Exit

D-5. Demographics: Child. Collected at enrollment or first visit after birth if caregiver enrolled prenatally. Updated between June 1-30 and between September 1-30 of each year.

Updated by the 10th of the next month if notified of a change. All entries are required of all programs:

a. First Name

b. Middle Name

c. Last Name

d. Birth Date

e. Gender

f. Enrollment Date

g. Caregiver’s Relationship to Child

h. Caregiver’s Pregnancy Status

i. Child’s Birth Weight

j. Child’s Gestational Age at Birth

k. Born Substance Exposed / Plans of Safe Care

l. Race

m. Ethnicity

n. Self-Identified Disability

o. Primary Language Spoken at Home

p. Health Insurance Status

1. Usual Source of Medical Care

2. Usual Source of Dental Care

3. Update: Child

* See Child Demographics Above

D-6. Exit: Child. Collected when exited from all programs in the system. All entries are required of all programs:

a. Exit

b. Date of Exit

c. Reason for Exit

II. PERFORMANCE MEASURES

A. Performance Measure Benchmarks. The six benchmark areas captured through these performance measures are: improved maternal and newborn health; prevention of child injuries, child abuse, neglect, or maltreatment, and reduction of emergency department visits;

improvement in school readiness and achievement; reduction in crime or domestic violence;

improvements in family economic self-sufficiency; and improvements in the coordination and referrals for other community resources and supports.

1. Performance Measure 1: Preterm Birth. Percent of infants (among mothers who enrolled in home visiting prenatally (before 37 weeks) who are born preterm following program enrollment.

2. Performance Measure 2: Breastfeeding. Percent of infants (among mothers who enrolled in home visiting prenatally) who were breastfed any amount at 3 and 6 months of age.

3. Performance Measure 3. Depression Screening**. Percent of primary caregivers enrolled in home visiting who are screened for depression using a validated tool within 3 months of enrollment (for those not enrolled prenatally) or within 3 months of delivery (for those enrolled prenatally).

a. Depression must be defined in accordance with the validated depression screening tool’s definition of depression.

4. Performance Measure 4: Well Child Visit. Percent of children enrolled in home visiting who received the last recommended visit based on the American Academy of Pediatrics schedule.

5. Performance Measure 5: Postpartum Care. Percent of mothers enrolled in home visiting prenatally or within 30 days after delivery who received a postpartum visit with a healthcare provider within 8 weeks (56 days) of delivery.

6. Performance Measure 6: Tobacco Cessation Referrals. Percent of primary caregivers enrolled in home visiting who reported using tobacco or cigarettes at enrollment and were referred to tobacco cessation counseling or services within 3 months of enrollment.

a. Other forms of tobacco consist of: Combustibles (Cigars, Pipes, Hookahs, Bidis), Non-Combustibles (Chew, Dip, Snuff, Snus, Dissolvable), Electronic Nicotine Delivery Systems known as “Vaping.”

7. Performance Measure 7: Safe Sleep. Percent of infants enrolled in home visiting that are always placed to sleep on their backs, without bed-sharing or soft bedding.

8. Performance Measure 8: Child Injury. Rate of injury-related visits to the Emergency Department since enrollment among children enrolled in home visiting.

a. Injury-related emergency department visits are defined as injuries resulting from the following causes or mechanisms of injury: motor vehicle, suffocation, drowning, poisoning, fire/burns, falls, sports and recreation, and intentional injuries, such as child maltreatment.

9. Performance Measure 9: Child Maltreatment. Percent of children enrolled in home visiting with at least one investigated case of maltreatment following their enrollment date within the reporting period.

a. Collected via administrative data from the DHS Office of Children, Youth and

Families.

10. Performance Measure 10: Parent-Child Interaction**. Percent of primary caregivers enrolled in home visiting who receive an observation of caregiver-child interaction by the home visitor using a validated tool.

11. Performance Measure 11: Early Language and Literacy Activities. Percent of children enrolled in home visiting with a family member who reported that during a typical week s/he read, told stories, and/or sang songs with their child daily, every day.

12. Performance Measure 12: Developmental Screening**. Percent of children enrolled in home visiting with a timely screen for developmental delays using a validated screening tool.

a. Developmental delays include delays in any or all areas including cognitive, communication/language, physical/sensory, adaptive and social/emotional development.

13. Performance Measure 13: Behavioral Concerns and Home Visits. Percent of home visits where primary caregivers were asked if they have any concerns regarding their child’s development, behavior, or learning.

14. Performance Measure 14: Intimate Partner Violence Screening Indicator**. Percent of primary caregivers enrolled in home visiting who are screened for intimate partner violence (“IPV”) within 6 months of enrollment using a validated tool.

15. Performance Measure 15: Primary Caregiver Education. Percent of primary caregivers who enrolled in home visiting without a high school degree or equivalent who subsequently enrolled in, maintained continuous enrollment in, or completed high school or equivalent during their participation in home visiting.

16. Performance Measure 16: Continuity of Insurance Coverage. Percent of primary caregivers enrolled in home visiting who had continuous health insurance coverage for at least 6 consecutive months.

17. Performance Measure 17: Completed Depression Referrals. Percent of primary caregivers referred to services for a positive screen for depression who receive one or more service contacts.

a. Examples of completed referrals include an appointment with a therapist, appointment with a psychiatrist, meeting with a mental health consultant, follow up with primary care physician, follow up with OBGYN, inpatient psychiatric hospitalization, support groups.

b. For those participants who screen positive for depressive symptoms but are already receiving services for depression, you do not need to provide a referral.

18. Performance Measure 18: Completed Developmental Referrals. Percent of children enrolled in home visiting with positive screens for developmental delays (measured using a validated tool) who receive services in a timely manner.

a. A child may be excluded from the denominator if s/he has a previously identified developmental delay (prior to enrollment or prior to reaching an age-recommended screening).

19. Performance Measure 19: IPV Referrals. Percent of primary caregivers enrolled in home visiting with positive screens for IPV (measured using a validated tool) who receive referral information for IPV.

As of October 1, 2021, the following Performance Measures are optional according to the federal Health Resources and Services Administration. If these measures become a required data collection point, they will be added to the list of required data collection measures for selected Applicants.

20. Performance Measure 20: Substance Use Screening**. Percent of primary caregivers enrolled in home visiting who were screened for both unhealthy alcohol use and drug use using validated tool(s) within 6 months of enrollment.

21. Performance Measure 21: Completed Substance Use Referrals. Percent of primary caregivers enrolled in home visiting with positive screens for unhealthy alcohol use or drug use (measured using a validated tool) who receive services in a timely manner.

B. Screening Tools. Some performance measures listed above require the use of a validated screening tool. Those measure are noted with asterisks above and listed here:

**Performance Measure 3 **Performance Measure 10 **Performance Measure 12 **Performance Measure 14 **Optional Performance Measure 20

Approved screening tools are available using Appendix E of Form 2 Toolkit – Performance Indicators and Systems Outcomes found here: https://mchb.hrsa.gov/programs-impact/programs/home-visiting/miechv-data-continuous-quality-improvement. A link to this toolkit may also be found on the Family Support website under the data page:

https://www.pa-home-visiting.org.

NOTE: Due to changing federal and state requirements, the Department may add, modify, or remove any data collection requirement at any time during the term of this agreement.

https://mchb.hrsa.gov/programs-impact/programs/home-visiting/miechv-data-continuous-quality-improvement https://mchb.hrsa.gov/programs-impact/programs/home-visiting/miechv-data-continuous-quality-improvement https://www.pa-home-visiting.org/