This $376,226 Project Grant award from the National Institute of Child Health and Human Development (NICHD) under the Child Health and Human Development Extramural Research program (CFDA 93.865) will fund research to quantify the experiences and adverse impacts of medical ableism among people with disabilities. The primary objectives are to: 1) develop survey modules to measure medical ableism and its effects, 2) characterize experiences of medical ableism, and 3) identify adverse care and...
This federal Project Grant award from the National Institute of Child Health and Human Development (CFDA 93.865 - Child Health and Human Development Extramural Research) provides $681,469 to the University of Pittsburgh to conduct a mixed-methods study investigating the relationships between provider bias, experiences of ableism, and health outcomes for people with mobility disabilities. The project aims to prospectively assess the explicit and implicit disability biases of 40 rehabilitation...
This federal Project Grant award, valued at $665,844, was issued by the National Institute of Child Health and Human Development (NICHD) under the Child Health and Human Development Extramural Research program (CFDA 93.865). The award will fund a 5-year study led by Drexel University to examine the impact of ableism on maternal health outcomes among Medicaid-enrolled women with intellectual and developmental disabilities (I/DD). The study aims to use national Medicaid claims data from...
This $738,693 federal Project Grant award from the National Institute of Child Health and Human Development (CFDA 93.865 - Child Health and Human Development Extramural Research) will develop and evaluate an online continuing education program for practicing obstetricians to address ableism and improve perinatal care for disabled patients. The project will conduct focus groups and interviews to identify essential content, then design and test the educational program through a randomized...
This National Science Foundation Project Grant award of $274,144 provides funding for the "Disability Culture and Technology" project being conducted by Vanderbilt University from May 1, 2022 through April 30, 2023. The goal of the project is to document how disabled individuals use remote access technologies to form communities and shape society, both during and before the COVID-19 pandemic. The project will build an archive of oral histories, images, videos and other documentation...
This $242,290 Project Grant award from the National Institute of Child Health and Human Development (NICHD), under the Child Health and Human Development Extramural Research program (CFDA 93.865), aims to develop a measure to assess the fidelity of implementation of neurodiversity-affirming interventions (NAIs) for autistic individuals. The project will leverage qualitative interviews with autistic individuals and caregivers to establish a pool of items that capture the outcomes most affected by...
This $507,163 Project Grant award, funded by the National Institute of Child Health and Human Development (CFDA 93.865 Child Health and Human Development Extramural Research program), will support research to examine the impact of state laws prohibiting disability-based discrimination on equity in kidney transplantation for individuals with intellectual or developmental disabilities (IDD). The key products and services to be delivered under this 5-year grant include: Analyzing national...
The National Science Foundation awarded New York University a $618,490 project grant under the Social, Behavioral, and Economic Sciences program (CFDA 47.075) for work on "Disability Expertise and Design Justice for Post-COVID Equity." The two-year grant running from April 2021 through March 2023 will support NYU's efforts to advance equity and inclusion for people with disabilities in the post-pandemic environment through collaborative research and design projects. Leveraging the...
This Project Grant award of $1,155,838.00 from the National Institute of Child Health and Human Development (NICHD) under the Child Health and Human Development Extramural Research program (CFDA 93.865) supports research to develop a biopsychosocial approach to deeply characterize communicative participation in adolescents with Down syndrome. The project aims to: 1) construct speech production profiles, 2) investigate how personal perspectives and environment impact communicative...
This $400,000 Project Grant award from the National Institute on Disability, Independent Living, and Rehabilitation Research (CFDA 93.433) will be used by the University of Kansas Center for Research Inc. to assess the experiences of LGBTQ+ people with disabilities using the National Survey on Health and Disability. The award covers the period from September 1, 2024 to August 31, 2027. This project aims to generate insights that can inform efforts to improve the lives of this underserved...
This Project Grant award for $795,044, effective August 1, 2024 through July 31, 2029, is funded by the National Institute of Child Health and Human Development (NICHD) under the Child Health and Human Development Extramural Research program (CFDA 93.865). The award's primary objectives are to: 1) characterize the multiple factors comprising structural ableism, 2) develop and validate an individual-level measure of structural ableism, and 3) measure structural ableism at the community level and explore its relationships with health outcomes. The interdisciplinary research team, led by two disabled Principal Investigators, will take an intersectional, community-grounded approach, working closely with the disability community throughout the project. Key sub-awardees include the University of North Carolina at Chapel Hill, Virginia Tech, and Johns Hopkins University, who will contribute expertise in areas such as pediatric health, qualitative research, quantitative data analysis, and project management. The measures developed during this project will lay the foundation for identifying and evaluating interventions to dismantle structural ableism in partnership with the disability community.