Gender affirmation, quality of life, and access to care: a mixed-method longitudinal investigation

Active Project Grant Awarded Last action

Award ID
R01NR019315
Recipient
Awarding agency
Obligated
$7,658,100

Award facts

Assistance listing
93.361 Nursing Research
Completion date 91% complete
Originally
Funding
  • $6,931,706.00 Federal
  • $726,394.00 Non-federal
Place of performance
New York, NY 10021, USA

Award details come from USAspending.gov.

Description

Abstract
Gender minorities (GM) have gained greater visibility in U.S. Society in recent years. However, the physical and mental health of GM individuals remains a critical public health issue. GM face persistent stigma, discrimination, and barriers to services that affect their health and wellbeing over the life course. Gender affirmation is a process of recognizing a person's gender identity and expression, which may include emotional support as well as social and medical interventions; IT has been associated with mental health and wellbeing. Unmet needs for gender affirmation have been linked to greater risk behavior and poorer self-care among GM, particularly related to HIV risk and treatment. Clinicians who are specially trained in providing gender-affirming services may be uniquely positioned to support the emotional needs of GM individuals, with the potential to have a long-term impact on a person's trust and comfort in interacting with healthcare providers, engagement and retention in care, and self-care behaviors that influence one's health trajectory over the life course. There is a dearth of evidence on the healthcare needs of GM individuals after surgery, their psychosocial adjustment during this phase of their identity development, their quality of life, and long-term physical and emotional wellbeing. The goal of this prospective, mixed method, longitudinal cohort study is to build a rich evidence base on GM identity development after gender-affirming surgery and the long-term healthcare needs of GM individuals, examining changes in multiple domains of quality of life and their relationships with healthcare providers. Using a combination of quantitative and qualitative methods, our specific aims are to: 1. Document changes over time in GM individuals' (n = 300 recruited from a gender-affirming, post-surgical home healthcare program) psychosocial development after surgery, including such domains as (i) gender and sexual identity development, (II) intimacy and relationships, (III) social and community support, (IV) employment and financial wellbeing, and (v) environmental mastery and purpose in life. 2. Examine changes in GM individuals' health-related quality of life after surgery, including such domains as (i) physical health, (II) mental health and social wellbeing, (III) sexual function, satisfaction and health, (IV) health behaviors and self-care, and (v) engagement and retention in healthcare and relationships with healthcare providers. 3. Identify barriers and facilitators to GM individuals' engagement with their self-care and engagement and retention in home and subsequent healthcare for both gender-related and other health concerns. The study will address a significant GAP in the current evidence on best practices to support GM individuals during a pivotal life course transition, with the potential to improve their engagement in care and mitigate the pervasive disparities in healthcare access, outcomes, and quality of life affecting this population.

Transactions

Action Federal Non-federal Date
Amendment $0 $0
Amendment $0 $0
Amendment $648,528 $0
Amendment $0 $0
Amendment $0 $0
Amendment Health-related quality of life and psychosocial wellbeing for individuals managing chronic conditions after a major surgery - awareness of variations in… $648,528 $0
Amendment $0 $0
Amendment $0 $0
Amendment Health-related quality of life and psychosocial wellbeing for individuals managing chronic conditions after a major surgery - awareness of variations in… $0 $0
Amendment $691,201 $0
Amendment $691,201 $0
Amendment $709,116 $0
Amendment $709,116 $0
Amendment $690,614 $0
Amendment $690,614 $0
Amendment $726,394 $0
Original award $726,394 $726,394
Show all 17

Subawards

Subrecipient Amount Awarded
The Trustees Of Columbia University In The City Of New York The proposed study will be led by the multiple PI team of Dr. Bockting at Columbia University School of Nursing (CUSON) and Dr. Ryvicker (contact PI) at the… $992,571
The Trustees Of The University Of Pennsylvania UPENN SOW: Dr. Bowles, Co-Investigator will provide guidance on the sampling strategy, recruitment, retention, data collection procedures, measure selection and… $93,420
The Trustees Of The University Of Pennsylvania $83,040
The Trustees Of The University Of Pennsylvania $62,279

Quick answers

Who received award R01NR019315?

R01NR019315 was awarded to Visiting Nurse Service Of New York by National Institute of Nursing Research (National Institutes of Health) on July 1, 2021.

How much is award R01NR019315 worth?

$7,658,100 has been obligated on R01NR019315: $6,931,706 in federal funding and $726,394 in non-federal funding.

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