Project Grant R01HD076903

This federal Project Grant award from the National Institute of Child Health and Human Development (NICHD) under the Child Health and Human Development Extramural Research program (CFDA 93.865) provides $170,424 to the Hugo W. Moser Research Institute at Kennedy Krieger, Inc. to develop and validate new patient-focused clinical outcome assessments for measuring responsivity in individuals with profound intellectual disability (PID). The key products and services to be delivered under this 5-year...

This Project Grant award from the National Institute of Mental Health (NIMH), under the Mental Health Research Grants program (CFDA 93.242), provides $257,612 to the University of California, Davis to conduct a pilot trial of the Individualized Placement and Support (IPS) model for supported employment of autistic adults in the community. The goal is to address the high unemployment rates among autistic adults by evaluating the acceptability, feasibility, and preliminary effectiveness of the IPS...

The National Institute on Deafness and Other Communication Disorders (NIDCD) awarded a $743,412 Project Grant (CFDA 93.173 - Research Related to Deafness and Communication Disorders) to the University of Oregon. The goal of this 5-year project is to evaluate the comparative effectiveness and implementation outcomes of different parent-implemented naturalistic communication intervention (PI-NCI) modalities for improving parent responsivity and child communication/language outcomes among...

This federal Project Grant award of $242,290, provided by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) under the Child Health and Human Development Extramural Research program (CFDA 93.865), aims to develop a measure to assess the fidelity of neurodiversity-affirming interventions (NAIs) for autistic individuals. The goal is to leverage qualitative interviews with autistic individuals and caregivers to establish a pool of items indicating the...

This Project Grant award from the National Institute of Child Health and Human Development (NICHD), under the Child Health and Human Development Extramural Research program (CFDA 93.865), provides $178,000.00 to The Children's Hospital of Philadelphia (CHOP) to design and validate a Pelizaeus Merzbacher Disease (PMD) severity scale. The goal is to develop a clinician-reported outcome measure that can be used to stratify PMD patients by disease severity, particularly early in the disease...

This Project Grant award of $670,525, provided by the National Institute on Deafness and Other Communication Disorders (NIDCD) under CFDA 93.173 "Research Related to Deafness and Communication Disorders", aims to develop objective clinical tools for managing children with Auditory Neuropathy Spectrum Disorder (ANSD). The key objectives are to: 1) establish electrocochleography as a noninvasive method to evaluate cochlear nerve function, 2) validate onset cortical auditory evoked...

This Project Grant award of $162,212 from the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD, CFDA 93.865 Child Health and Human Development Extramural Research) supports the "Cerebral Palsy Clinic to You: Using Human-Centered Design to Develop and Pilot an Online Health Tool for Adults with Cerebral Palsy" project. The goal is to leverage implementation science and human-centered design to adapt an existing online health tool for individuals...

The National Institute of Mental Health (NIMH) awarded a $1,323,471 Project Grant under the Mental Health Research Grants program (CFDA 93.242) to a team of researchers from the National Committee for Quality Assurance (NCQA), the RAND Corporation, and the University of Pittsburgh. The goal of this 4-year project, starting in September 2024, is to develop person-centered outcome measures for assessing the quality of goal-directed care for individuals with serious mental illnesses such as...

This Project Grant award from the National Institute of Mental Health (NIMH), under the Mental Health Research Grants (CFDA 93.242) program, provides $2,068,801 to conduct a service user-informed, mixed-methods study on the implementation and impacts of Certified Community Behavioral Health Clinics (CCBHCs) in New York State. The study has three key components: Assessing CCBHC implementation through qualitative interviews, clinic surveys, and administrative data to describe how clinics changed...

The National Institute of Child Health and Human Development awarded a $430,375 Project Grant (Federal Grant Program CFDA 93.865 - Child Health and Human Development Extramural Research) to the University of Missouri System, doing business as the Curators of the University of Missouri. This 2-year award, effective from Sep 19, 2023 to Aug 31, 2025, will fund a feasibility trial to remotely administer a Cognitive Orientation to Daily Occupational Performance (CO-OP) intervention to individuals...