Project Grant NU88EH001311

This federal Project Grant award in the amount of $223,500 was issued by the National Institute of Child Health and Human Development (NICHD) under the Child Health and Human Development Extramural Research program (CFDA 93.865). The award, with a performance period from September 10, 2024 to August 31, 2026, supports research to develop a holistic framework for designing optimal newborn screening (NBS) algorithms that are accurate and equitable, using cystic fibrosis (CF) as a model disorder....

This Project Grant award from the U.S. Department of Health and Human Services Health Resources and Services Administration (HRSA), under the Maternal and Child Health Federal Consolidated Programs (CFDA 93.110), provides $1,060,600 to the South Dakota Department of Health to strengthen the state's newborn screening system. The key objectives are to improve data collection and surveillance, enhance data accessibility, and increase public education and outreach to improve health outcomes for...

The National Institute of Child Health and Human Development (NICHD) awarded a $2,442,535 Project Grant (CFDA 93.865 - Child Health and Human Development Extramural Research) to Harvard Pilgrim Health Care Inc. The funding supports a 5-year research project to evaluate the long-term impact and value of implementing newborn genomic sequencing as part of public health screening programs. Key objectives include: Conducting interviews with clinicians, health system leaders, and newborn screening...

This Cooperative Agreement award from the National Institute of Allergy and Infectious Diseases (NIAID), under the Allergy and Infectious Diseases Research program (CFDA 93.855), provides $1,072,951 in funding to the National Marrow Donor Program (NMDP) to conduct clinical and mechanistic studies examining optimal preparative approaches for infants with severe combined immunodeficiency (SCID). The goal of the project is to compare the efficacy and safety of low-dose versus moderate-dose busulfan...

The U.S. Department of Health and Human Services, through the Maternal and Child Health Federal Consolidated Programs (CFDA 93.110), awarded a $1,570,478 Project Grant to the Ministry of Health in the Republic of the Marshall Islands (RMI). The grant funding will support the implementation of a comprehensive newborn screening (NBS) system on the islands of Majuro and Ebeye, which account for over 96% of births in the RMI. The project aims to establish the six core components of a successful...

This Project Grant award, funded by the Health Resources and Services Administration (HRSA) under the Maternal and Child Health Federal Consolidated Programs (CFDA 93.110), provides $1,060,600 to the State of Montana Department of Health and Human Services (DPHHS) to enhance the state's newborn screening system. The key objectives are to: 1) Ensure timely testing and treatment following diagnosis of genetic and metabolic conditions detected through newborn screening; 2) Improve short-term and...

This Project Grant award from the National Institute of Child Health and Human Development (CFDA 93.865 - Child Health and Human Development Extramural Research) will support research at Duke University to develop strategies for identifying candidate individuals for early genetic therapies. The key products and services to be delivered under this $153,252 award include: Reevaluating and refining guidelines for universal preconception carrier screening to improve uptake of testing and early...

The Nevada Department of Public Safety (NV DPS) was awarded a $665,635 Cooperative Agreement under the National Criminal History Improvement Program (NCHIP) by the U.S. Department of Justice, Bureau of Justice Statistics. The funding will be used to support several key activities: Provide permanent staff overtime to analyze the FBI criminal history record file against the state's criminal history database and resolve record errors, given the complexity and workload limitations of current...

This $265,347 Project Grant award from the National Heart, Lung, and Blood Institute (NHLBI) under the Cardiovascular Diseases Research program (CFDA 93.837) supports the development and initial validation of a point-of-care device to assess red blood cell sickling in sickle cell disease patients. The device, known as the Dynamic Sickling Assay (DSA), is designed to be a simple, standalone, and potentially CLIA-waived system with single-use disposable cartridges. The goal is for this system to...

This federal Project Grant award for $1,293,082 from the Health Resources and Services Administration (HRSA) under the Maternal and Child Health Federal Consolidated Programs (CFDA 93.110) will fund a comprehensive approach to improving the Washington newborn screening (NBS) program. The key objectives are to enhance the efficiency and equity of the NBS program by focusing on quality improvement, data management, and strategies for short- and long-term follow-up. Specifically, the award will...