The National Institute of Nursing Research (NINR) awarded a Project Grant (CFDA 93.361 - Nursing Research) totaling $159,432 to the University of Pittsburgh to assess communication needs, adapt the SBAR3 patient-provider communication intervention for adults with sickle cell disease (SCD), and evaluate the feasibility and acceptability of the adapted intervention. The project aims to: Assess the communication needs of patients with SCD through qualitative methods and human-centered design...
The National Institute of Nursing Research (NINR) awarded a $167,407 Project Grant (CFDA 93.361) to The Trustees of the University of Pennsylvania, doing business as the Clinical Practices of the University of Pennsylvania, to conduct the "Experience-Feedback" study. This 3-year project aims to evaluate a rapid digital information feedback loop between families caring for children with serious illnesses at home and pediatric palliative care providers. The study will explore...
This federal Project Grant award from the National Institutes of Health (NIH) Office of the Director under the Trans-NIH Research Support program (CFDA 93.310) provides $100,000.00 in funding to examine parent-adolescent communication and shared decision-making about participation in pediatric clinical trials. The primary research objectives are to: 1) Observe and analyze the positive and negative communication behaviors used by parents and adolescents when deciding whether to enroll in...
This federal Project Grant award from the National Institute of Child Health and Human Development (NICHD) under CFDA 93.865 (Child Health and Human Development Extramural Research) provides $790,989.00 to the Children's Research Institute to develop and evaluate the Family Centered (FACE-RARE) Pediatric Advance Care Planning intervention. The intervention is designed to address the palliative care needs and advance care planning for families with children who have rare diseases. Key...
This federal Project Grant award, valued at $398,207.00 and provided by the National Cancer Institute (CFDA 93.393 - Cancer Cause and Prevention Research), aims to develop and test a multilevel intervention to improve interdisciplinary communication quality in low-resource pediatric oncology hospitals. The key products and services to be delivered under this five-year grant include: Conducting a cross-sectional social network analysis across 20 hospitals to identify the relationship between...
This Project Grant award, valued at $849,608.00 and funded by the National Institute of Nursing Research (NINR) under the Nursing Research program (CFDA 93.361), aims to determine the feasibility of providing medically tailored frozen meals to children undergoing chemotherapy and their families. The key objectives are to work with a small business food provider to adapt meal flavors to accommodate taste changes from chemotherapy, and to collect quantitative and qualitative data to refine the...
This federal Project Grant award, titled "Caregiving Network Contribution to Children with Medical Complexity's Health," was provided by the National Institute of Child Health and Human Development (NICHD) under the Child Health and Human Development Extramural Research program (CFDA 93.865). The $745,325 award, effective January 1, 2025 through December 31, 2029, will support research to understand how caregiving networks influence health outcomes for children with neurologic...
This $189,246 Project Grant, awarded by the National Institute on Aging under its Aging Research program (CFDA 93.866), aims to improve palliative care delivery and patient-centered outcomes for older adults with cancer discharged to skilled nursing facilities (SNFs) and their family caregivers. The principal investigator, Dr. Singh, will conduct a pilot randomized controlled trial to test the feasibility of enrolling participants, collecting outcome data, and evaluating the preliminary efficacy...
This federal Project Grant award for $254,604 from the National Heart Lung and Blood Institute (NHLBI) under the Cardiovascular Diseases Research program (CFDA 93.837) supports the development and implementation of a novel, community-based collaborative care model to deliver the Promoting Resilience in Stress Management (PRISM) intervention among 25 adolescents and young adults with sickle cell disease. The award also aims to leverage electronic health records to characterize relationships...
This $588,631 Project Grant award from the National Institute of Child Health and Human Development (NICHD) under the Child Health and Human Development Extramural Research program (CFDA 93.865) will support a research project to deeply characterize communicative participation for adolescents with Down syndrome. The key objectives are to: 1) Construct detailed speech production profiles for this population, 2) Investigate how personal perspectives and communication environment impact...