The Project Grant award of $250,000.00 from the National Institutes of Health (NIH) Trans-NIH Research Support program (CFDA 93.310) will fund a 6-year longitudinal study by The MGH Institute of Health Professions, Inc. to investigate social connectedness in individuals with Amyotrophic Lateral Sclerosis (ALS). The study will leverage mobile technologies to remotely collect data from 200 ALS patients, including surveys, speech recordings, and GPS data, to determine the effects of declining speech and mobility functions on communicative participation, community mobility, and social connectedness. The research also aims to identify psychosocial risk and protective factors impacting these outcomes. The knowledge gained will inform development of targeted assessments and interventions to mitigate social isolation in people with progressive neurological diseases affecting speech.
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