This $465,000 federal Project Grant awarded by the National Institute on Minority Health and Health Disparities (CFDA 93.307 - Minority Health and Health Disparities Research) aims to compare technological and relational approaches to support families after a missed well-child visit. The study will: Demonstrate the feasibility of integrating a new referral protocol into existing resources for community health worker (CHW) outreach following missed well-child visits. Compare well-child visit...
This five-year, $156,340 Project Grant awarded by the National Heart, Lung, and Blood Institute (NHLBI) under the Cardiovascular Diseases Research program (CFDA 93.837) will support the development and preliminary efficacy testing of a communication-enhancement intervention for healthcare providers (HCPs) to improve health outcomes in pediatric sickle cell disease (SCD). The project aims to: 1) refine an individualization and perspective-taking (IPT) intervention by examining the perspectives of...
This federal Project Grant award from the National Cancer Institute (CFDA 93.393 - Cancer Cause and Prevention Research) provides $398,207 to The Washington University in St. Louis to develop and test a multilevel intervention to improve interdisciplinary communication quality in low-resource pediatric oncology hospitals. The project aims to: 1) evaluate the relationship between communication quality and structure around patient deterioration, 2) identify strategies to improve communication...
This Project Grant award of $800,000.00 from the U.S. Department of Health and Human Services Agency for Healthcare Research and Quality (AHRQ) under the Research on Healthcare Costs, Quality and Outcomes (CFDA 93.226) program supports a study titled "Bedside Notes: A Multicenter Trial to Improve Family Clinical Note Access and Outcomes for Hospitalized Children." The objective of the study is to evaluate the impact of the "Bedside Notes" health IT intervention, which...
This Project Grant award from the National Institutes of Health (NIH) Office of the Director under the Trans-NIH Research Support program (CFDA 93.310) provides $868,458 to the University of Texas at Austin to conduct a mixed-methods study characterizing the communication practices of Black caregivers and their late-talking children. The key products and services to be delivered under this 2-year award include: Qualitative data gathered through video-cued ethnography to understand Black...
This Project Grant award from the National Institute on Minority Health and Health Disparities (CFDA 93.307 - Minority Health and Health Disparities Research) provides $1,626,470.00 to the University of Illinois to conduct a longitudinal study examining the impact of structural racism and discrimination on therapeutic access and health outcomes for Black and Hispanic preschool children with developmental delays and disabilities. The study will enroll 300 families and collect multilevel data over...
This Project Grant award from the National Institute on Minority Health and Health Disparities (CFDA 93.307 - Minority Health and Health Disparities Research) is supporting a $1,511,818 research initiative by Duke University to develop a validated measure of practice-level equity and institutional racism in primary care settings. The goals are to: 1) identify practice-level structures, processes, policies, and norms that promote equity or create disparities in health outcomes between...
This Project Grant award of $392,882 from the National Heart, Lung, and Blood Institute (NHLBI) under the Cardiovascular Diseases Research program (CFDA 93.837) supports a research project titled "Addressing Racial Disparities in Chronic Lung Disease for Preterm Infants Through Parent Engagement." The project aims to: 1) characterize medical and social risk profiles of preterm infants with chronic lung disease, 2) describe the lived experiences of parents of Black preterm infants...
This Project Grant award of $790,989.00 from the National Institute of Child Health and Human Development (CFDA 93.865 - Child Health and Human Development Extramural Research) supports research to address the palliative care needs of children with rare diseases and their families. The principal investigator at the Children's Research Institute will evaluate the Family Centered (FACE) Pediatric Advance Care Planning intervention, which integrates the Carer Support Needs Assessment Tool (CSNAT)...
This Project Grant award from the National Institutes of Health (NIH) Office of the Director under the Trans-NIH Research Support program (CFDA 93.310) provides $394,696 to Boston Children's Hospital to conduct research on implementing social risk screening and referral programs in pediatric inpatient settings. The key objectives are to: Survey and interview clinical leaders at various hospital types to assess facilitators and barriers to implementing social risk screening and referral programs....
EQUITY FOCUSED COMMUNICATION INTERVENTION FOR FAMILY-CENTERED ROUNDS - ABSTRACT/PROJECT SUMMARY WHEN ADMITTED TO THE HOSPITAL, BLACK AND LATINO(A/X) CHILDREN ARE AT GREATER RISK OF MEDICAL ERRORS, SURGICAL COMPLICATIONS, LONGER, MORE-COSTLY HOSPITAL STAYS, AND MORTALITY COMPARED TO WHITE CHILDREN. ALTHOUGH MANY FACTORS PLAY A ROLE, POOR CLINICIAN COMMUNICATION LIKELY CONTRIBUTES TO THESE DISPARITIES IN HEALTH OUTCOMES. ACROSS SETTINGS, INCLUDING OUR PRELIMINARY WORK IN THE INPATIENT PEDIATRIC ENVIRONMENT, BLACK AND LATINO(A/X) PATIENTS HAVE BEEN SHOWN TO EXPERIENCE WORSE COMMUNICATION QUALITY AS EVIDENCED BY LESS PATIENT AND FAMILY-CENTERED, EMPATHIC, AND RESPECTFUL COMMUNICATION AS COMPARED TO WHITE PATIENTS. DESPITE ROBUST EVIDENCE THAT COMMUNICATION INEQUITIES EXIST AND INFLUENCE HEALTH OUTCOMES, FEW HAVE DEVELOPED AND TESTED COMMUNICATION INTERVENTIONS WITH A FOCUS ON EQUITY. TO MEET THIS EVIDENCE GAP WE WILL TEST THE FEASIBILITY, ACCEPTABILITY, AND PRELIMINARY EFFICACY OF AN EQUITY- FOCUSED COMMUNICATION INTERVENTION THAT TEACHES CLINICIANS COMMUNICATION SKILLS GROUNDED IN PRINCIPLES OF RACIAL EQUITY, LANGUAGE JUSTICE, AND STRUCTURAL HUMILITY. TO DO THIS, WE WILL CO- DEVELOP AND REFINE A CLINICIAN COACHING COMMUNICATION INTERVENTION WITH ITERATIVE FEEDBACK FROM BLACK AND LATINO(A/X) CAREGIVERS AS WELL AS CLINICIANS OF CHILDREN IN THE HOSPITAL. WE WILL THEN RANDOMIZE 10 CLINICIANS TO AN INTERVENTION OR WAITLIST GROUP; CLINICIANS IN THE INTERVENTION GROUP WILL RECEIVE THE INTERVENTION IMMEDIATELY, WHILE CLINICIANS IN THE WAITLIST GROUP WILL INITIALLY SERVE AS THE CONTROL ARM THEN RECEIVE THE INTERVENTION TO PROVIDE FEASIBILITY AND ACCEPTABILITY DATA. WE WILL ASSESS THE FEASIBILITY OF RECRUITING AND COLLECTING DATA AS WELL AS ACCEPTABILITY OF THE INTERVENTION BY CLINICIANS. WE WILL EXPLORE PRELIMINARY EFFICACY FOR THE EFFECT OF THE INTERVENTION ON CLINICIAN-CAREGIVER COMMUNICATION QUALITY. WE HYPOTHESIZE THAT OUR INTERVENTION WILL IMPROVE CLINICIAN COMMUNICATION QUALITY THROUGH INCREASING BEHAVIORS OF PARTNERSHIP, AFFIRMATION, SUPPORT, RESPECT, AND INTERPRETER BEST PRACTICE, WHICH WILL LEAD TO GREATER CAREGIVER PARTICIPATION DURING FAMILY-CENTERED ROUNDS. WE WILL EXPLORE THE EFFECT OF THE INTERVENTION ON CAREGIVER EMPOWERMENT, ADVERSE EVENTS, LENGTH OF STAY, AND CHILD 7 AND 30 DAY UNPLANNED READMISSION. THE NEW KNOWLEDGE GENERATED FROM THE PROPOSED RESEARCH WILL GUIDE OUR RESEARCH TEAM IN DESIGNING AND CONDUCTING AN NIH R01 CLINICAL TRIAL OF THE INTERVENTION TO ENHANCE THE STANDARD OF CARE FOR CHILDREN ADMITTED TO THE HOSPITAL.