Not listed
TRANSITION FOR YOUTH WITH AUTISM AND/OR EPILEPSY DEMONSTRATION PROJECTS - APPLICANT ORGANIZATION: OFFICE OF SPONSORED PROGRAMS; THE UNIVERSITY OF NORTH CAROLINA-CHAPEL HILL; CB #1350; 104 AIRPORT DRIVE, STE. 2200; CHAPEL HILL, NC 27599-1350 ADDRESS: DEPARTMENT OF NEUROLOGY, SOM, UNC-CH CB #7025; 170 MANNING DRIVE, CHAPEL HILL, NC 27599-7445 PRINCIPAL INVESTIGATOR: DIANA CEJAS, MD, MPH, FAAP (PH.): (919) 843-3642 (FAX): (919) 966-2230 E-MAIL: DIANA.CEJAS@CIDD.UNC.EDU. FUNDING OPPORTUNITY NUMBER: HRSA-24-042 NEEDS: COMPREHENSIVE, DEVELOPMENTALLY APPROPRIATE, CULTURALLY RESPONSIVE CARE AND SERVICES INCLUDING FAMILY NAVIGATION/PEER SUPPORT ARE OF THE UTMOST IMPORTANCE FOR ALL CYSHCN, ESPECIALLY FOR TRANSITION AGE YAES WITH COMPLEX HEALTH AND SOCIAL NEEDS. MOUNTING EVIDENCE DEMONSTRATES THE IMPERATIVE FOR HEALTH CARE SYSTEMS TO BE RESHAPED TO PROVIDE THIS HIGH LEVEL OF INTEGRATED, FAMILY-AND PATIENT-CENTERED CARE. HOWEVER, EVEN THIS MIGHT BE INSUFFICIENT WITHOUT INTENTIONAL PROGRAMS DESIGNED TO EXTEND BEYOND CLINIC WALLS INTO THE COMMUNITY. TRANSITION PROGRAMS THAT PROVIDE THIS "BEST PRACTICE" LEVEL OF CARE AND CONNECTION TO COMMUNITY-BASED SUPPORTS MUST INVOLVE YAES AND THEIR FAMILIES - AND THE PROVIDERS THAT SERVE THEM - IN ALL ASPECTS OF THE DESIGN, IMPLEMENTATION, AND CONTINUOUS QUALITY IMPROVEMENT OF THESE INITIATIVES. PROPOSED SERVICES: THE GOAL OF UNC DEPARTMENT OF NEUROLOGY'S WHOLE BRAIN HEALTH PROGRAM (WBHP) IS TO IMPROVE TRANSITION OUTCOMES, QUALITY OF LIFE AND WELL-BEING FOR YAES AGES 13-26 WITH EPILEPSY AND CO-OCCURRING INTELLECTUAL AND/OR DEVELOPMENTAL DISABILITIES WITH OR WITHOUT MENTAL/BEHAVIORAL HEALTH DIAGNOSES, HERETOFORE REFERRED TO AS EPILEPSYPLUS, AND THEIR FAMILIES/CAREGIVERS AS THEY TRANSITION FROM CHILD TO ADULT SYSTEMS INCLUDING PEDIATRIC TO ADULT HEALTH CARE, EDUCATION, EMPLOYMENT, AND COMMUNITY LIVING. GIVEN THE HIGH CO-OCCURRENCE OF INTELLECTUAL DEVELOPMENTAL DISABILITIES (I/DD) AND COMPLEX CARE NEEDS REQUIRING FAMILY SUPPORT AND COORDINATION FOR YAES WITH EPILEPSYPLUS, THE WBHP WILL PARTNER WIT H THE CAROLINA INSTITUTE FOR DEVELOPMENTAL DISABILITIES (CIDD), THE NC DIVISION OF CHILD AND FAMILY WELL-BEING/CYSHCN PROGRAM, AND DIVERSE STATE AND COMMUNITY STAKEHOLDERS INCLUDING DISABILITY AND FAMILY ORGANIZATIONS AND INDIVIDUAL PATIENTS/SELF-ADVOCATES. FUNDING WILL EXPAND CAPACITY FOR A COMPREHENSIVE, TRANSDISCIPLINARY WBHP TRANSITION CLINIC, HIRE FAMILY NAVIGATION AND PEER SUPPORT STAFF, TRAIN/MENTOR PEDIATRIC AND ADULT HEALTHCARE PROVIDERS, AND IMPLEMENT SYSTEMS SCIENCE APPROACHES TO IMPROVE COORDINATION AND ALIGNMENT OF EXISTING AND EMERGING TRANSITION RESOURCES FOR NC YAES. POPULATIONS TO BE SERVED: THE UNC WHOLE BRAIN HEALTH PROGRAM WILL SERVE NC YAES WITH EPILEPSYPLUS DEFINED AS 13-26-YEAR-OLDS WITH A SEIZURE DISORDER AND CO-OCCURRING I/DD, WITH-OR-WITHOUT MENTAL/BEHAVIORAL HEALTH DIAGNOSES AND THEIR FAMILIES/CAREGIVERS. ANOTHER TARGET IS HEALTHCARE PROVIDERS INCLUDING PEDIATRICIANS, ADULT NEUROLOGISTS, AND UNC RESIDENTS/FELLOWS/LEND TRAINEES. WE WILL LEVERAGE EXISTING RELATIONSHIPS TO PROVIDE RESPONSIVE, CONTEXT-APPROPRIATE SERVICES AND SUPPORT TO SERVE OTHER PROFESSIONALS, COMMUNITIES AND STAKEHOLDERS WHO WISH TO IMPLEMENT ANY ASPECT OF THE WBHP. ANNOTATION: THE UNC WHOLE BRAIN HEALTH PROGRAM FOR YAES WITH EPILEPSYPLUS WILL ACHIEVE ITS MISSION TO ADVANCE AND STRENGTHEN SYSTEMS OF SERVICES FOR YOUTH AND YOUNG ADULTS WITH SPECIAL HEALTH CARE NEEDS AND THEIR FAMILIES/CAREGIVERS. SPECIFIC GOALS INCLUDE: 1) CONDUCT A STATEWIDE AUDIENCE LANDSCAPE ANALYSIS OF TRANSITION SERVICES AND SUPPORTS FOR YAES AND THEIR FAMILIES/CAREGIVERS IN THE UNC CATCHMENT AREA 2) IMPLEMENT AN ENHANCED UNC TRANSITION CLINIC MODEL OFFERING TRANSDISCIPLINARY CARE, FAMILY NAVIGATION/PEER SUPPORT AND 3) CONDUCT PROVIDER AND PIPELINE TRAINING BASED ON THE SIX CORE ELEMENTS OF HEALTH CARE TRANSITION. THESE INTER-RELATED AND IMPACTFUL ACTIVITIES WILL RESULT IN MEASURABLE IMPROVEMENTS IN TRANSITION OUTCOMES FOR YAES.
$0 9/5/24 Not listed
TRANSITION FOR YOUTH WITH AUTISM AND/OR EPILEPSY DEMONSTRATION PROJECTS - APPLICANT ORGANIZATION: OFFICE OF SPONSORED PROGRAMS; THE UNIVERSITY OF NORTH CAROLINA-CHAPEL HILL; CB #1350; 104 AIRPORT DRIVE, STE. 2200; CHAPEL HILL, NC 27599-1350 ADDRESS: DEPARTMENT OF NEUROLOGY, SOM, UNC-CH CB #7025; 170 MANNING DRIVE, CHAPEL HILL, NC 27599-7445 PRINCIPAL INVESTIGATOR: DIANA CEJAS, MD, MPH, FAAP (PH.): (919) 843-3642 (FAX): (919) 966-2230 E-MAIL: DIANA.CEJAS@CIDD.UNC.EDU. FUNDING OPPORTUNITY NUMBER: HRSA-24-042 NEEDS: COMPREHENSIVE, DEVELOPMENTALLY APPROPRIATE, CULTURALLY RESPONSIVE CARE AND SERVICES INCLUDING FAMILY NAVIGATION/PEER SUPPORT ARE OF THE UTMOST IMPORTANCE FOR ALL CYSHCN, ESPECIALLY FOR TRANSITION AGE YAES WITH COMPLEX HEALTH AND SOCIAL NEEDS. MOUNTING EVIDENCE DEMONSTRATES THE IMPERATIVE FOR HEALTH CARE SYSTEMS TO BE RESHAPED TO PROVIDE THIS HIGH LEVEL OF INTEGRATED, FAMILY-AND PATIENT-CENTERED CARE. HOWEVER, EVEN THIS MIGHT BE INSUFFICIENT WITHOUT INTENTIONAL PROGRAMS DESIGNED TO EXTEND BEYOND CLINIC WALLS INTO THE COMMUNITY. TRANSITION PROGRAMS THAT PROVIDE THIS "BEST PRACTICE" LEVEL OF CARE AND CONNECTION TO COMMUNITY-BASED SUPPORTS MUST INVOLVE YAES AND THEIR FAMILIES - AND THE PROVIDERS THAT SERVE THEM - IN ALL ASPECTS OF THE DESIGN, IMPLEMENTATION, AND CONTINUOUS QUALITY IMPROVEMENT OF THESE INITIATIVES. PROPOSED SERVICES: THE GOAL OF UNC DEPARTMENT OF NEUROLOGY'S WHOLE BRAIN HEALTH PROGRAM (WBHP) IS TO IMPROVE TRANSITION OUTCOMES, QUALITY OF LIFE AND WELL-BEING FOR YAES AGES 13-26 WITH EPILEPSY AND CO-OCCURRING INTELLECTUAL AND/OR DEVELOPMENTAL DISABILITIES WITH OR WITHOUT MENTAL/BEHAVIORAL HEALTH DIAGNOSES, HERETOFORE REFERRED TO AS EPILEPSYPLUS, AND THEIR FAMILIES/CAREGIVERS AS THEY TRANSITION FROM CHILD TO ADULT SYSTEMS INCLUDING PEDIATRIC TO ADULT HEALTH CARE, EDUCATION, EMPLOYMENT, AND COMMUNITY LIVING. GIVEN THE HIGH CO-OCCURRENCE OF INTELLECTUAL DEVELOPMENTAL DISABILITIES (I/DD) AND COMPLEX CARE NEEDS REQUIRING FAMILY SUPPORT AND COORDINATION FOR YAES WITH EPILEPSYPLUS, THE WBHP WILL PARTNER WIT H THE CAROLINA INSTITUTE FOR DEVELOPMENTAL DISABILITIES (CIDD), THE NC DIVISION OF CHILD AND FAMILY WELL-BEING/CYSHCN PROGRAM, AND DIVERSE STATE AND COMMUNITY STAKEHOLDERS INCLUDING DISABILITY AND FAMILY ORGANIZATIONS AND INDIVIDUAL PATIENTS/SELF-ADVOCATES. FUNDING WILL EXPAND CAPACITY FOR A COMPREHENSIVE, TRANSDISCIPLINARY WBHP TRANSITION CLINIC, HIRE FAMILY NAVIGATION AND PEER SUPPORT STAFF, TRAIN/MENTOR PEDIATRIC AND ADULT HEALTHCARE PROVIDERS, AND IMPLEMENT SYSTEMS SCIENCE APPROACHES TO IMPROVE COORDINATION AND ALIGNMENT OF EXISTING AND EMERGING TRANSITION RESOURCES FOR NC YAES. POPULATIONS TO BE SERVED: THE UNC WHOLE BRAIN HEALTH PROGRAM WILL SERVE NC YAES WITH EPILEPSYPLUS DEFINED AS 13-26-YEAR-OLDS WITH A SEIZURE DISORDER AND CO-OCCURRING I/DD, WITH-OR-WITHOUT MENTAL/BEHAVIORAL HEALTH DIAGNOSES AND THEIR FAMILIES/CAREGIVERS. ANOTHER TARGET IS HEALTHCARE PROVIDERS INCLUDING PEDIATRICIANS, ADULT NEUROLOGISTS, AND UNC RESIDENTS/FELLOWS/LEND TRAINEES. WE WILL LEVERAGE EXISTING RELATIONSHIPS TO PROVIDE RESPONSIVE, CONTEXT-APPROPRIATE SERVICES AND SUPPORT TO SERVE OTHER PROFESSIONALS, COMMUNITIES AND STAKEHOLDERS WHO WISH TO IMPLEMENT ANY ASPECT OF THE WBHP. ANNOTATION: THE UNC WHOLE BRAIN HEALTH PROGRAM FOR YAES WITH EPILEPSYPLUS WILL ACHIEVE ITS MISSION TO ADVANCE AND STRENGTHEN SYSTEMS OF SERVICES FOR YOUTH AND YOUNG ADULTS WITH SPECIAL HEALTH CARE NEEDS AND THEIR FAMILIES/CAREGIVERS. SPECIFIC GOALS INCLUDE: 1) CONDUCT A STATEWIDE AUDIENCE LANDSCAPE ANALYSIS OF TRANSITION SERVICES AND SUPPORTS FOR YAES AND THEIR FAMILIES/CAREGIVERS IN THE UNC CATCHMENT AREA 2) IMPLEMENT AN ENHANCED UNC TRANSITION CLINIC MODEL OFFERING TRANSDISCIPLINARY CARE, FAMILY NAVIGATION/PEER SUPPORT AND 3) CONDUCT PROVIDER AND PIPELINE TRAINING BASED ON THE SIX CORE ELEMENTS OF HEALTH CARE TRANSITION. THESE INTER-RELATED AND IMPACTFUL ACTIVITIES WILL RESULT IN MEASURABLE IMPROVEMENTS IN TRANSITION OUTCOMES FOR YAES.
$449.9k 6/21/24 Not listed
TRANSITION FOR YOUTH WITH AUTISM AND/OR EPILEPSY DEMONSTRATION PROJECTS - APPLICANT ORGANIZATION: OFFICE OF SPONSORED PROGRAMS; THE UNIVERSITY OF NORTH CAROLINA-CHAPEL HILL; CB #1350; 104 AIRPORT DRIVE, STE. 2200; CHAPEL HILL, NC 27599-1350 ADDRESS: DEPARTMENT OF NEUROLOGY, SOM, UNC-CH CB #7025; 170 MANNING DRIVE, CHAPEL HILL, NC 27599-7445 PRINCIPAL INVESTIGATOR: DIANA CEJAS, MD, MPH, FAAP (PH.): (919) 843-3642 (FAX): (919) 966-2230 E-MAIL: DIANA.CEJAS@CIDD.UNC.EDU. FUNDING OPPORTUNITY NUMBER: HRSA-24-042 NEEDS: COMPREHENSIVE, DEVELOPMENTALLY APPROPRIATE, CULTURALLY RESPONSIVE CARE AND SERVICES INCLUDING FAMILY NAVIGATION/PEER SUPPORT ARE OF THE UTMOST IMPORTANCE FOR ALL CYSHCN, ESPECIALLY FOR TRANSITION AGE YAES WITH COMPLEX HEALTH AND SOCIAL NEEDS. MOUNTING EVIDENCE DEMONSTRATES THE IMPERATIVE FOR HEALTH CARE SYSTEMS TO BE RESHAPED TO PROVIDE THIS HIGH LEVEL OF INTEGRATED, FAMILY-AND PATIENT-CENTERED CARE. HOWEVER, EVEN THIS MIGHT BE INSUFFICIENT WITHOUT INTENTIONAL PROGRAMS DESIGNED TO EXTEND BEYOND CLINIC WALLS INTO THE COMMUNITY. TRANSITION PROGRAMS THAT PROVIDE THIS "BEST PRACTICE" LEVEL OF CARE AND CONNECTION TO COMMUNITY-BASED SUPPORTS MUST INVOLVE YAES AND THEIR FAMILIES - AND THE PROVIDERS THAT SERVE THEM - IN ALL ASPECTS OF THE DESIGN, IMPLEMENTATION, AND CONTINUOUS QUALITY IMPROVEMENT OF THESE INITIATIVES. PROPOSED SERVICES: THE GOAL OF UNC DEPARTMENT OF NEUROLOGY'S WHOLE BRAIN HEALTH PROGRAM (WBHP) IS TO IMPROVE TRANSITION OUTCOMES, QUALITY OF LIFE AND WELL-BEING FOR YAES AGES 13-26 WITH EPILEPSY AND CO-OCCURRING INTELLECTUAL AND/OR DEVELOPMENTAL DISABILITIES WITH OR WITHOUT MENTAL/BEHAVIORAL HEALTH DIAGNOSES, HERETOFORE REFERRED TO AS EPILEPSYPLUS, AND THEIR FAMILIES/CAREGIVERS AS THEY TRANSITION FROM CHILD TO ADULT SYSTEMS INCLUDING PEDIATRIC TO ADULT HEALTH CARE, EDUCATION, EMPLOYMENT, AND COMMUNITY LIVING. GIVEN THE HIGH CO-OCCURRENCE OF INTELLECTUAL DEVELOPMENTAL DISABILITIES (I/DD) AND COMPLEX CARE NEEDS REQUIRING FAMILY SUPPORT AND COORDINATION FOR YAES WITH EPILEPSYPLUS, THE WBHP WILL PARTNER WIT H THE CAROLINA INSTITUTE FOR DEVELOPMENTAL DISABILITIES (CIDD), THE NC DIVISION OF CHILD AND FAMILY WELL-BEING/CYSHCN PROGRAM, AND DIVERSE STATE AND COMMUNITY STAKEHOLDERS INCLUDING DISABILITY AND FAMILY ORGANIZATIONS AND INDIVIDUAL PATIENTS/SELF-ADVOCATES. FUNDING WILL EXPAND CAPACITY FOR A COMPREHENSIVE, TRANSDISCIPLINARY WBHP TRANSITION CLINIC, HIRE FAMILY NAVIGATION AND PEER SUPPORT STAFF, TRAIN/MENTOR PEDIATRIC AND ADULT HEALTHCARE PROVIDERS, AND IMPLEMENT SYSTEMS SCIENCE APPROACHES TO IMPROVE COORDINATION AND ALIGNMENT OF EXISTING AND EMERGING TRANSITION RESOURCES FOR NC YAES. POPULATIONS TO BE SERVED: THE UNC WHOLE BRAIN HEALTH PROGRAM WILL SERVE NC YAES WITH EPILEPSYPLUS DEFINED AS 13-26-YEAR-OLDS WITH A SEIZURE DISORDER AND CO-OCCURRING I/DD, WITH-OR-WITHOUT MENTAL/BEHAVIORAL HEALTH DIAGNOSES AND THEIR FAMILIES/CAREGIVERS. ANOTHER TARGET IS HEALTHCARE PROVIDERS INCLUDING PEDIATRICIANS, ADULT NEUROLOGISTS, AND UNC RESIDENTS/FELLOWS/LEND TRAINEES. WE WILL LEVERAGE EXISTING RELATIONSHIPS TO PROVIDE RESPONSIVE, CONTEXT-APPROPRIATE SERVICES AND SUPPORT TO SERVE OTHER PROFESSIONALS, COMMUNITIES AND STAKEHOLDERS WHO WISH TO IMPLEMENT ANY ASPECT OF THE WBHP. ANNOTATION: THE UNC WHOLE BRAIN HEALTH PROGRAM FOR YAES WITH EPILEPSYPLUS WILL ACHIEVE ITS MISSION TO ADVANCE AND STRENGTHEN SYSTEMS OF SERVICES FOR YOUTH AND YOUNG ADULTS WITH SPECIAL HEALTH CARE NEEDS AND THEIR FAMILIES/CAREGIVERS. SPECIFIC GOALS INCLUDE: 1) CONDUCT A STATEWIDE AUDIENCE LANDSCAPE ANALYSIS OF TRANSITION SERVICES AND SUPPORTS FOR YAES AND THEIR FAMILIES/CAREGIVERS IN THE UNC CATCHMENT AREA 2) IMPLEMENT AN ENHANCED UNC TRANSITION CLINIC MODEL OFFERING TRANSDISCIPLINARY CARE, FAMILY NAVIGATION/PEER SUPPORT AND 3) CONDUCT PROVIDER AND PIPELINE TRAINING BASED ON THE SIX CORE ELEMENTS OF HEALTH CARE TRANSITION. THESE INTER-RELATED AND IMPACTFUL ACTIVITIES WILL RESULT IN MEASURABLE IMPROVEMENTS IN TRANSITION OUTCOMES FOR YAES.
$449.9k 6/21/24