Vanderbilt University was awarded a $160,482 Project Grant from the National Science Foundation Division of Information and Intelligent Systems under the Computer and Information Science and Engineering program (CFDA #47.070).
The grant will support the development of a digital identity system to accelerate medical communications within rare disease communities. The system aims to streamline information sharing between patients, caregivers, researchers, and medical professionals addressing these conditions. By establishing consistent digital identities, the project seeks to facilitate collaboration and data access across traditionally siloed stakeholders.
The two-year grant period will allow Vanderbilt University's Sponsored Programs Administration division to implement and test the digital platform. Key outcomes include evaluating how the identity system improves care coordination and research progress for individuals facing rare or undiagnosed diseases. Insights from the project could inform future applications of digital tools to other underserved health issue areas.
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